Join OFFER for a rare gathering of patients
and their family members answering questions and
sharing their struggles and triumphs, coping
techniques and frustrations, and much more, in a
candid panel discussion. Bring a family member or
friend and give them a glimpse of your journey.
Location:
Council
Chambers, Salt Lake County Complex North Building
2001
South State Street, Salt Lake City, UT.
(Park
free at the northeast corner of the complex)
OFFER's
Education Meetings are the first
Wednesday of each month at
7:00 p.m.,
Join the OFFER
Board and key OFFER volunteers for a gathering to
celebrate our successes and explore our direction
for next year and beyond. If you have thought that
you would like to get more involved with OFFER as a
volunteer, but didn't know where to start, this is
your chance. If you would like to learn more about
OFFER, its accomplishments, and its history, join
us. If you would just like to hang out with a group
of people sharing some of the same struggles that
you face every day, come and join us for food and
festivities!
"Free Food and a Fun Time"
If you plan to attend, please email your
RSVP to Linda Milne at
milne92@gmail.com. Linda
will have an entrance pass for you when you
arrive.
Location:
Moreau Medical Building (Auditorium, downstairs)
1002 East South Temple, Salt Lake City, UT.
OFFER WEBSITE PROVIDES
WINDOW TO VALCYTE JOURNAL
If you read reviews of the February 2007
IACFS Conference or have heard the buzz about a
promising new treatment for certain subsets of CFS
here is an excellent Blog by one of Dr. Lucinda
Bateman's patients currently taking Valcyte. She
has graciously given us permission to add a link to
her blog site which is filled with useful
information and great links. Click
here
OFFER MAY CONFERENCES DVD'S ARE
COMING
The content of our May
2007 Provider Conference and Patient Conference is
in the process of being put on DVD’s that will be
made available through our website,
www.offerutah.org, and at our OFFER EDUCATION
MEETINGS. Although the Provider Conference
information is very technical, it does present some
of the latest treatment methods and clinical trials
that have been pursued. The presentations are
wide-ranging and cover landmark work in Fibromyalgia
and Chronic Fatigue Syndrome. Our Provider
Conference presented an exciting picture of the
strides in understanding that have been made since
our 2005 conference. This should be a time of hope
for those who have suffered from CFS and FMS. These
materials will start to be available within the next
couple of months.
Courage is not the absence of fear, but the
conquering of it."
Author: Dan Millman
INFO-LINKS
Great ideas for youth/adults who
have to deal with CFS and FM
A wonderful
booklet written by a young lady in our
community.
Click here
A New Study for Fibromyalgia
Patients
Dr. Lucinda
Bateman is actively seeking Fibromyalgia
patients, ages 18-70, to participate in
clinical research studies of three
investigational drugs for the treatment of
Fibromyalgia. If you are interested, call
Dr. Bateman’s office (801-359-7400) and talk
to Ali Allen, RN, research coordinator, or
others on the research team, to learn more
about the drug studies currently underway.
Qualified participants receive study-related
physician visits, lab evaluations, and the
investigational medication at no cost.
Check out this Website for Men
with Fibromyalgia
OFFEHere's a great
site for Men with Fibromyalgia. Spouses or SO's
of Men with Fibromyalgia are also welcome. Very
interesting.
Click here
OFFERUTAH.ORG Announces New Bulletin Board!
OFFER is
excited to announce the launch of our new
bulletin board. This bulletin board is open to
anyone and will provide a forum for those who
want to share their journey with others who are
living with CFS and/or FMS. If you would like
to join the forum, just go to OFFER's website,
http://www.offerutah.org/ and click on the
'Bulletin Board' button in the side menu. jJust
follow the instructions to register. If you
have questions, click on 'FAQ' or email the
administrator.
You must add
offerregistration@yahoo.com to your address
book or safe list so that your E-news does not
get filtered as spam.
You may unsubscribe at
anytime by clicking the link at the bottom of
the E-news. At no time will OFFER ever sell or
give you email address or any other personal
information to anyone.
Please
Note: the inclusion of information in this
newsletter does not constitute or imply endorsement
by OFFER or the Arthritis Foundation Utah/Idaho
Chapter. Please consult your medical care provider
before using any medication or therapy.
