Sponsored by OFFER and the Arthritis Foundation Utah/Idaho Chapter

 E-NEWS OCTOBER 2007 
 OFFER Home Page
E-News (Archives)

Professional Resources

Volunteer

Donate Now

 

  
NEXT OFFER EDUCATION MEETING
 
October 3, 2007 at 7:00 p.m.
 
 
Linda Bateman, M.D.
 
 
"Research Update" 
 
Don't miss this informative meeting as Dr. Bateman discusses several interesting research advancments in both CFS and FM. 
Dr. Bateman will also be answering questions from the audience. 
 
Dr. Lucinda Bateman, MD, is founder of the Salt Lake City-based Fatigue Consultation Clinic, and advocates ME/CFS and FM education and awareness as executive director of the non-profit OFFER (The Organization for Fatigue and Fibromyalgia Education and Research). A board member of the CFIDS Association of America and the International Association for CFS/ME (IACFS/ME), Dr. Bateman shines as a conduit between the research and clinical spheres, bringing scientific data to the forefront. For additional information, click on the link below: (http://www.fibromyalgiasupport.com/library/showarticle.cfm/id/8333) 
  
 
 
Location: 
Council Chambers, Salt Lake County Complex North Building
2001 South State Street, Salt Lake City, UT. 
(Park free at the northeast corner of the complex) 
 
OFFER's Education Meetings are the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 

 
 
 
 
OFFER WEBSITE PROVIDES WINDOW TO VALCYTE JOURNAL
 
If you read reviews of the February 2007 IACFS Conference or have heard the buzz about a promising new treatment for certain subsets of CFS here is an excellent Blog by one of Dr. Lucinda Bateman's patients currently taking Valcyte.  She has graciously given us permission to add a link to her blog site which is filled with useful information and great links.  Click here
 

 
OFFER MAY CONFERENCES DVD'S ARE COMING
 

 

 

 

The content of our May 2007 Provider Conference and Patient Conference is in the process of being put on DVD’s that will be made available through our website, www.offerutah.org, and at our OFFER EDUCATION MEETINGS.  Although the Provider Conference information is very technical, it does present some of the latest treatment methods and clinical trials that have been pursued.  The presentations are wide-ranging and cover landmark work in Fibromyalgia and Chronic Fatigue Syndrome.  Our Provider Conference presented an exciting picture of the strides in understanding that have been made since our 2005 conference.  This should be a time of hope for those who have suffered from CFS and FMS.  These materials will start to be available within the next couple of months.
 

 
"If you doubt you can accomplish something, then you can't accomplish it.
You have to have confidence in your ability, and then be
tough enough to follow through."  
Author: Rosalynn Carter (Former American First Lady)
 

 
IN THE NEWS LINKS
  
 
National Invisible Chronic Illness Awareness Week
Living with invisible illness is a roller coaster ride
Click on the link below for information on Invisible Chronic Illnesses like CFS and FM from the Invisible Chronic Illness Awareness Week held in September: http://www.restministries.org/invisibleillness/invisibleillnesshome.htm
 
 
Invisible Illness Awareness Video
For a great Invisible Awareness video, go to: http://www.youtube.com/watch?v=EantVCQO69g&mode=related&search=

 
 
Chronic Fatigue Syndrome HHV-6-Possible Cure?
Physicians Encouraged by Valcyte
 

 
'Chronic Fatigue Syndrome' Name Challenged
 
 
See Healthy™ Utah article on Chronic Fatigue Syndrome
by Kim McCleary
 
 
New CFS Prevalence Study is Published
by the CFIDS Association of America
Go to: http://www.cfids.org/advocacy/2007/gac_061207.asp and follow the link to the full text.
 
 
 
 


 
"If I find 10,000 ways something won't work, I haven't failed. I am not discouraged, because every wrong attempt discarded is another step forward."  
Author: Thomas A. Edison
 

INFO-LINKS
 
Great ideas for youth/adults who have to deal with CFS and FM
 
A wonderful booklet written by a young lady in our community.  Click here
 
A New Study for Fibromyalgia Patients 
Dr. Lucinda Bateman is actively seeking Fibromyalgia patients, ages 18-70, to participate in clinical research studies of three investigational drugs for the treatment of Fibromyalgia.  If you are interested, call Dr. Bateman’s office (801-359-7400) and talk to Ali Allen, RN, research coordinator, or others on the research team, to learn more about the drug studies currently underway.  Qualified participants receive study-related physician visits, lab evaluations, and the investigational medication at no cost.

 
Check out this Website for Men with Fibromyalgia
 
OFFEHere's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG Announces New Bulletin Board!
 
OFFER is excited to announce the launch of our new bulletin board.  This bulletin board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS.  If you would like to join the forum, just go to OFFER's website,  http://www.offerutah.org/ and click on the 'Bulletin Board' button in the side menu.  jJust follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.
 
 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org/Resources.html.
 
 
 

 
"Until you make peace with who your are ... you'll never be content with what you have."
Author:  Doris Mortman

 
E-NEWS SUBSCRIPTIONS 
 
 
Feel free to forward this email to anyone who might be interested.  To start your subscription to this free newsletter, send your request to:
 
-or- fill out the online form on our website at the following link:
 
You must add offerregistration@yahoo.com to your address book or safe list so that your E-news does not get filtered as spam.
 
You may unsubscribe at anytime by clicking the link at the bottom of the E-news.  At no time will OFFER ever sell or give you email address or any other personal information to anyone.
 
                                                               
"Let no man imagine that he has no influence. Whoever he may be, and wherever he may be placed, the man who thinks becomes a light and a power."
Author:  Henry George


 
  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.

 

 
Copyright 2007



 
This message was sent from OFFER UTAH. It was sent from: OFFER (Organization for Fatigue & Fibromyalgia Education and Research, 1002 E South Temple Ste 408, Salt Lake City, UT 84102. You can modify/update your subscription via the link below. Email Marketing Software