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 E-NEWS DECEMBER 2008 
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NEXT OFFER EDUCATION MEETING
 
December 3rd at 7:00 p.m.
 
 
Youth Panel - Living with CFS/FM
 

 
Moderated by Peggy Allen, APRN
 
 

 
Location: 
Council Chambers, Salt Lake County Complex North Building
2001 South State Street, Salt Lake City, UT. 
(Park free at the northeast corner of the complex)

 
OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 
To view the 2008 Education Meeting Schedule, click here.

 
 
 
 
SUMMARY OF OFFER'S SEPTEMBER PATIENT CONFERENCE
 
Thank you to Linda Milne, an OFFER Board Member and Executive Committee Member, for writing a summary of OFFER's September Patient Conference.  Please click on the following link to read this informative summary: http://www.offerutah.org/OFFER%20Patient%20Conference%20Summarty%209.13.08.htm
 
 

 
CFIDS ASSOCIATION OF AMERICA

 
 
This Thanksgiving season is the ideal time for those who want to support the groundbreaking progress of the premier national CFS organization, the CFIDS ASSOCIATION OF AMERICA, to make a donation.  Now that they have reached their historic goal of raising $1 Million for their Research Campaign (see below), it is even more important that their organization has our continued support to leverage those funds to the fullest.  Their efforts are generating excitement about potential breakthroughs in diagnosis and treatment.  Also, their outstanding advocacy work will be even more vital in bringing new developments to the national forefront. 

Toward that end the OFFER Board of Directors has approved a $5000 contribution to the general fund of the CFIDS ASSOCIATION OF AMERICA.  Please join OFFER in giving to this premier national CFS organization at this time of thanksgiving.  If just half of our readers gave $10 it would do a great deal to serve the cause of CFS.  To make an unrestricted donation to the CFIDS ASSOCIATION OF AMERICA go to:
 
 
CFIDS Association of America Research Campaign Reaches $1 Million Goal!
See related stories at  http://www.cfids.org/cfidslink/2008/100801.asp an
 
 
CFNew Papers Drawn from CFS Dataset Underscore the Power of Partnerships
See related stories at http://www.cfids.org/cfidslink/2008/100803.asp 

 

 
FORWARD OFFER E-NEWS TO A FRIEND!
 
You can notify your friends to sign up for the E-news by forwarding this email or send them the following link: http://www.offerutah.org/offerenewsignup.htm
   
  
 

 
THE NATIONAL FIBROMYALGIA ASSOCIATION HAS ESTABLISHED A HEALTHCARE PROVIDER INFORMATION PAGE.   
 
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
 

 
NEW OFFER WEBSITE LINK TO SELECTED ARCHIVED
OFFER EDUCATION MEETING VIDEOS IS NOW ACCESSIBLE FOR FREE!
 
OFFER has begun to make archived OFFER EDUCATION MEETING videos available on the OFFER website, www.offerutah.org.  We have started with four classic meetings from 2006.  You can view these videos at no charge as often as you like and at your own pace.  Go to www.offerutah.org, click on the EDUCATION MEETINGS button, scroll down to the bottom of the page and click on:  "To view some of our previously recorded Education Meetings, click here".  To go there right now just click on the following link: http://www.offerutah.org/Offeredseminars.htm
 
If the response to this service is good, we plan to keep adding archived videos and to make current meetings available as well.  If you like this feature, you can let OFFER know through the "CONTACT US" button on the OFFER website.  If you find these videos to be helpful, a donation to OFFER would also encourage and support our continuing efforts to educate patients, healthcare providers, third party claim payers, and the general public about chronic fatigue syndrome and fibromyalgia.
 
The 2007 Provider's and Patient's Conferences should be posted to the Internet by the end of October.  The content will be free of charge with links to the content from the website.  Also, we are working on previous Education Meeting videos and hope to add some of them within the next month.  
 

 
NEW FIBROMYALIGA TREATMENT PROGRAM
 
 
Sponsored by the University of Utah Department of Anesthesiology
Go to the OFFER website for more information or click here.

 
"It doesn't matter which side of the fence you get off on sometimes.  What matters most is getting off.  You cannot make progress without making decisions."  
Author: Jim Rohn
 

 
IN THE NEWS LINKS
  
 

 
Exercising when you have Fibromyalgia and Chronic Fatigue Syndrome
 
 
 
Gene profiling of patients chronic fatigue syndrome/myalgic encephalomyelitis
 
Source: Current Rheumatology Reports, December 2008
 
 
Jazz Pharmaceuticals, partner report positive fibromyalgia drug tests
 
 
 
CHMP delivers negative opinion on duloxetine in fibromyalgia
See article in Scrips World Pharmaceutical News at: http://www.scripnews.com/news/chmp-delivers-negative-opinion-on-duloxetine-in-fibromyalgia-1602
See additional article in Pharma Times at: http://www.pharmatimes.com/WorldNews/article.aspx?id=14612

 
 

 
 
 


 
"Hem your blessings with thankfulness so they don't unravel."  
Author: Unknown

INFO-LINKS
 
Treatment for Fibromyalgia Overview
 
Teresa Kaldis, M.D. reviews the different treatment options.  Click here
 
Great ideas for youth/adults who have to deal with CFS and FM
 
A wonderful booklet written by a young lady in our community.  Click here
 
A New Study for Fibromyalgia Patients 
Dr. Lucinda Bateman is actively seeking Fibromyalgia patients, ages 18-70, to participate in clinical research studies of three investigational drugs for the treatment of Fibromyalgia.  If you are interested, call Dr. Batemanís office (801-359-7400) and talk to Ali Allen, RN, research coordinator, or others on the research team, to learn more about the drug studies currently underway.  Qualified participants receive study-related physician visits, lab evaluations, and the investigational medication at no cost.

 
Check out this Website for Men with Fibromyalgia
 
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG Announces New Discussion Board!
 
OFFER is excited to announce the launch of our new discussion board.  This discussion board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS.  If you would like to join the forum, just go to OFFER's website,  http://www.offerutah.org/ and click on the 'Discussion Board' button in the side menu.  Just follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.
 
 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org/Resources.html.
 
 
 

 
"If you believe you can, you probably can.  If you believe you won't, you most assuredly won't.  Belief is the ignition switch that gets you off the launch pad."
Author:  Dennis Waitley

 
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  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.

 

 
Copyright 2007



 
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