If you read reviews of the February 2007
IACFS Conference or have heard the buzz about a
promising new treatment for certain subsets of CFS
here is an excellent Blog by one of Dr. Lucinda
Bateman's patients currently taking Valcyte. She
has graciously given us permission to add a link to
her blog site which is filled with useful
information and great links. Click
here
OFFER MAY CONFERENCES DVD'S ARE
COMING
The content of our May
2007 Provider Conference and Patient Conference is
in the process of being put on DVD’s that will be
made available through our website,
www.offerutah.org, and at our OFFER EDUCATION
MEETINGS. Although the Provider Conference
information is very technical, it does present some
of the latest treatment methods and clinical trials
that have been pursued. The presentations are
wide-ranging and cover landmark work in Fibromyalgia
and Chronic Fatigue Syndrome. Our Provider
Conference presented an exciting picture of the
strides in understanding that have been made since
our 2005 conference. This should be a time of hope
for those who have suffered from CFS and FMS. These
materials will start to be available within the next
couple of months.
"Don't
ask yourself what the world needs; ask yourself what
makes you come alive. And then go and do that.
Because what the world needs is people who have come
alive."
Author: Howard Thurman
IN THE NEWS LINKS
CFIDS Association of America
Announces New Scientific Director
Suzanne
Vernon, PhD, will lead the Association's research
program for chronic fatigue syndrome (CFS). Dr.
Vernon was OFFER's keynote speaker at our Patient
Conference this spring. At the time, she worked for
the U.S. Department of Health and Human Services
Centers for Disease Control and has been heavily
involved in research projects exploring the causes
of CFS.
"To be a great champion you must believe you are
the best.
If
you're not, pretend you are."
Author: Muhammad Ali
INFO-LINKS
Great ideas for youth/adults
who have to deal with CFS and FM
A wonderful
booklet written by a young lady in our
community.
Click here
A New Study for Fibromyalgia
Patients
Dr.
Lucinda Bateman is actively seeking
Fibromyalgia patients, ages 18-70, to
participate in clinical research studies
of three investigational drugs for the
treatment of Fibromyalgia. If you are
interested, call Dr. Bateman’s office
(801-359-7400) and talk to Ali Allen,
RN, research coordinator, or others on
the research team, to learn more about
the drug studies currently underway.
Qualified participants receive
study-related physician visits, lab
evaluations, and the investigational
medication at no cost.
Check out this Website for
Men with Fibromyalgia
OFFEHere's a
great site for Men with Fibromyalgia.
Spouses or SO's of Men with Fibromyalgia are
also welcome. Very interesting.
Click here
OFFERUTAH.ORG Announces New Bulletin Board!
OFFER is
excited to announce the launch of our new
bulletin board. This bulletin board is open
to anyone and will provide a forum for those
who want to share their journey with others
who are living with CFS and/or FMS. If you
would like to join the forum, just go to
OFFER's website,
http://www.offerutah.org/ and click on
the 'Bulletin Board' button in the side
menu. jJust follow the instructions to
register. If you have questions, click on
'FAQ' or email the administrator.
You must add
offerregistration@yahoo.com to your
address book or safe list so that your
E-news does not get filtered as spam.
You may unsubscribe at
anytime by clicking the link at the bottom
of the E-news. At no time will OFFER ever
sell or give you email address or any other
personal information to anyone.
Courage is not the absence of fear, but the
conquering of it."
Author: Dan Millman
Please
Note: the inclusion of information in this
newsletter does not constitute or imply endorsement
by OFFER or the Arthritis Foundation Utah/Idaho
Chapter. Please consult your medical care provider
before using any medication or therapy.
Copyright 2007
This
message was sent from OFFER UTAH. It was sent from: OFFER
(Organization for Fatigue & Fibromyalgia Education and Research,
1002 E South Temple Ste 408, Salt Lake City, UT 84102. You can
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