Council
Chambers, Salt Lake County Complex North Building
2001
South State Street, Salt Lake City, UT.
(Park
free at the northeast corner of the complex)
OFFER's
Education Meetings are usually the first
Wednesday of each month at
7:00 p.m.,
and are
free and open to everyone.
To view the 2008 Education Meeting Schedule,
click here.
OFFER EDUCATION
MEETING VIDEOS IS NOW ACCESSIBLE FOR FREE!
Thanks to Scott Stevens, our OFFER website
webmaster and tech Guru, OFFER has begun to make
archived OFFER EDUCATION MEETING videos
available on the OFFER website,
www.offerutah.org. We have started with
four classic meetings from 2006. You can view
these videos at no charge as often as you like
and at your own pace. Go to
www.offerutah.org, click on the EDUCATION
MEETINGS button, scroll down to the bottom of
the page and click on: "To view some of
our previously recorded Education Meetings,
click here". To go there right now
just click on the following link:
http://www.offerutah.org/Offeredseminars.htm.
If the response to this service is good, we plan
to keep adding archived videos and to make
current meetings available as well. If you like
this feature, you can let OFFER know through the
"CONTACT US" button on the OFFER website. If
you find these videos to be helpful, a donation
to OFFER would also encourage and support our
continuing efforts to educate patients,
healthcare providers, third party claim payers,
and the general public about chronic fatigue
syndrome and fibromyalgia.
NEW FIBROMYALIGA
TREATMENT PROGRAM
Sponsored by the University of Utah
Department of Anesthesiology
Go to the OFFER website for more information
or
click here.
OFFER WEBSITE PROVIDES
WINDOW TO VALCYTE JOURNAL
If you read reviews of the February 2007 IACFS
Conference or have heard the buzz about a promising
new treatment for certain subsets of CFS here is an
excellent Blog by one of Dr. Lucinda Bateman's
patients currently taking Valcyte. She has
graciously given us permission to add a link to her
blog site which is filled with useful information
and great links. Click
here
"One
of the greatest discoveries a man makes, one of his
great surprises, is to find he can do what he was
afraid he couldn't do."
Author: Henry Ford
IN THE NEWS LINKS
Fibroymalgia
Affects Woman More Often than Men
By Society for
Women's Health Research
Fibromyalgia patients
experience a range of symptoms of varying
intensities that increase and decrease over time and
often resemble other conditions. For years, because
of their complex nature and a lack of research on
the condition . . . To read further, click on the
link below:
Steve Kanzer, Pipex's
chairman and CEO said: "As we enter this Phase II
clinical trial of oral flupirtine for treatment of
fibromyalgia, the product's . . .
California
Legislature Considers resolution to create a
Fibromyalgia Legislative Task Force
A resolution was
proposed in the California State legislature on
March 3rd to create a Fibromyalgia Legislative Task
Force. The resolution begins "This measure
would establish a Legislative Task Force on
Fibromyalgia, consisting of specified members, to
establish a public information and outreach
campaign, work with other state and local agencies
to promote fibromyalgia education and training
programs for physicians and other health
professionals, collaborate with a broad group of
stakeholders, review current state policies and
practices concerning treatment of fibromyalgia,
develop a State Fibromyalgia Strategic Plan to be
submitted to the Governor and the Legislature by
September 1, 2009, and hold a Fibromyalgia Summit
during the 2009–10 Regular Session of the
Legislature." A link to the complete text of
the Resolution can be viewed at the following link:
http://info.sen.ca.gov/pub/07-08/bill/asm/ab_0101-0150/acr_112_bill_20080303_introduced.pdf
"The greatest glory in living lies not in never
falling,
but in rising every time we fall."
Author: Nelson Mandela
INFO-LINKS
Treatment for
Fibromyalgia Overview
Teresa
Kaldis, M.D. reviews the different
treatment options.
Click here
Great ideas for youth/adults
who have to deal with CFS and FM
A wonderful
booklet written by a young lady in our
community.
Click here
A New Study for Fibromyalgia
Patients
Dr.
Lucinda Bateman is actively seeking
Fibromyalgia patients, ages 18-70, to
participate in clinical research studies
of three investigational drugs for the
treatment of Fibromyalgia. If you are
interested, call Dr. Bateman’s office
(801-359-7400) and talk to Ali Allen,
RN, research coordinator, or others on
the research team, to learn more about
the drug studies currently underway.
Qualified participants receive
study-related physician visits, lab
evaluations, and the investigational
medication at no cost.
Check out this Website for
Men with Fibromyalgia
OFFEHere's a
great site for Men with Fibromyalgia.
Spouses or SO's of Men with Fibromyalgia are
also welcome. Very interesting.
Click here
OFFERUTAH.ORG Announces New Bulletin Board!
OFFER is
excited to announce the launch of our new
bulletin board. This bulletin board is open
to anyone and will provide a forum for those
who want to share their journey with others
who are living with CFS and/or FMS. If you
would like to join the forum, just go to
OFFER's website,
http://www.offerutah.org/ and click on
the 'Bulletin Board' button in the side
menu. jJust follow the instructions to
register. If you have questions, click on
'FAQ' or email the administrator.
You must add
offerregistration@yahoo.com to your
address book or safe list so that your
E-news does not get filtered as spam.
You may unsubscribe at
anytime by clicking the link at the bottom
of the E-news. At no time will OFFER ever
sell or give you email address or any other
personal information to anyone.
"Without continual growth and progress, such
words as
improvement, achievement, and success have no
meaning."
Author: Benjamin Franklin
Please
Note: the inclusion of information in this
newsletter does not constitute or imply endorsement
by OFFER or the Arthritis Foundation Utah/Idaho
Chapter. Please consult your medical care provider
before using any medication or therapy.
Copyright 2007
This
message was sent from OFFER UTAH. It was sent from: OFFER
(Organization for Fatigue & Fibromyalgia Education and Research,
1002 E South Temple Ste 408, Salt Lake City, UT 84102. You can
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