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E-NEWS DECEMBER 2009

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OFFER EDUCATION MEETING

"Discussion on XM Retrovirus"

Dr. Bateman will present an up-to-the-minute update on the XM retro virus that has been newly associated with CFS. This meeting will give important updates of the retrovirus and what we can expect from it's association with CFS.

Lucinda Bateman, M.D.

Wednesday, December 2, 2009 at 7:00 p.m.

OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,

and are free and open to everyone.

To view the 2009 Education Meeting Schedule, click here.

Additional Education Meetings will be uploaded to OFFER's website

within the next week or so.

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IN THE NEWS LINKS

Expert Answers on Chronic Fatigue Syndrome

By The New York Times

November 24, 2009

See article at: http://consults.blogs.nytimes.com/2009/11/24/expert-answers-on-chronic-fatigue-syndrome/

A primer for XMRV, XAND, M.E. - and CFS

By Mary Schweitzer, Ph.D.

November 21, 2009

See article at: http://cfsknowledgecenter.ning.com/profiles/blog/show?id=2477197%3ABlogPost%3A29529&page=2#c_438

Medical breakthrough puts Reno in spotlight

Medical study buoys patients, earns scientists global acclaim

By Lenita Powers: lpowers@rgj.co

October 31, 2009

See article at: http://www.rgj.com/article/20091031/NEWS/91031028/1021/SPARKS/Medical-breakthrough-puts-Reno-in-spotlight---

CFIDS/FMS Lecture by Dr Nancy Klimas
October 17, 2009
See article at: http://www.ncf-net.org/forum/klimas.htm

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"Gratitude is not only the greatest of virtues, but the parent of all others."

Author: Cicero

INFO-LINKS

The National Fibromyalgia Association has established a healthcare provider information page
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge. Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory

Develop Coping Skills for Living With Fibromyalgia

Improve Your Life & Your Symptoms

By Adrienne Dellwo, About.com

Updated: February 28, 2009

See article at: http://chronicfatigue.about.com/od/copingwithfmscfs/a/copingskills.htm

Chronic Fatigue Syndrome: The Basics

By: Lara Endreszl

Published: Sunday, 28 December 2008 http://www.healthnews.com/family-health/chronic-fatigue-syndrome-the-basics-2346.html

Medline Plus: Fibromyalgia Tutorial

Click here

Check out this Website for Men with Fibromyalgia

Here's a great site for Men with Fibromyalgia. Spouses or SO's of Men with Fibromyalgia are also welcome. Very interesting. Click here

Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources

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"People are lonely because they build walls instead of bridges."

Author: Joseph F. Newton

E-NEWS SUBSCRIPTIONS

Feel free to forward this email to anyone who might be interested. To start your subscription to this free newsletter, send your request to:

offerregistration@yahoo.com,

-or- fill out the online form on our website at the following link:

http://offerutah.org/enews%20signup.htm

You must add offerregistration@yahoo.com to your address book or safe list so that your E-news does not get filtered as spam.

You may unsubscribe at anytime by clicking the link at the bottom of the E-news. At no time will OFFER ever sell or give you email address or any other personal information to anyone.

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PARTICIPANTS WANTED FOR STUDY OF CHRONIC FATIGUE

Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue. Patients who qualify for the study will be asked to complete three questionnaires over a six month period. Participating in the study will not alter the treatment that your physician gives you. The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.

If you may be interested in participating in this study, please contact the study coordinator, Kathleen O’Connor at (801) 587-4741. For more information email kathleen.oconnor@hci.utah.edu or visit our website at:

https://hci-as2.hci.utah.edu/CFSurvey/app.

FIBROMYALIGA TREATMENT PROGRAM

Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.

If you:
* Have been diagnosed with Fibromyalgia Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly ( less than 30 minutes per week)

You may be eligible for this study. This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and treatments are at no cost to you.

If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical

Please help Break The Chain On Pain

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NEW OFFER YOUTH GROUP AND YOUTH INFORMATION SITE!

http://www.offerutah.org/youthinformation1.htm

As an extension of the youth panel, a video has been created by Scott Stevens and Peggy Allen, featuring Lauren Allen, Jessica Turner, Jenny Wilson - young women with CFS. The purpose is to describe problems they have experienced as CFS students dealing with their schools. A 10-minute version was edited from the 43 minute complete film which was presented at the May meeting of the CFS Advisory Board in Washington D.C. We will preserve the longer version as well as the 10-minute presentation.

http://www.offerutah.org/CFSAC.htm

"When we take control of our mental state by deliberately choosing our thoughts and attitudes, we can alter the meaning we associate to the experiences we have and results we see in our life."

Author: Clayton J. Moore

IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:

"Living with Fibromyalgia" by Daneen Akers: http://www.offerutah.org/daneenakers.htm

"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD: http://www.offerutah.org/kathleenlight.htm

IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT! IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!

Go to: http://www.offerutah.org/index.htm

FORWARD OFFER E-NEWS TO A FRIEND!

You can notify your friends to sign up for the E-news by forwarding this email or send them the following link: http://www.offerutah.org/enews%20signup.htm

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"The measure of a man is not, "How did he die?" but "How did he live? not "What did he gain?" but "What did he give?""
Author: Unknow

Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER. Please consult your medical care provider before using any medication or therapy.