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 E-NEWS JANUARY 2009 
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NO OFFER EDUCATION MEETING IN JANUARY!
 
The next OFFER EDUCATION MEETING will be on
February 4th at 7:00 p.m.
 

Location: 
Council Chambers, Salt Lake County Complex North Building
2001 South State Street, Salt Lake City, UT. 
(Park free at the northeast corner of the complex)

OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 
To view the 2009 Education Meeting Schedule, click here.

 
 
 
OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ONLINE!
 
Thanks to Scott Stevens, an OFFER Board Member and Executive Committee Member, OFFER's September 2008 Patient Conference presentations are now available for viewing on the OFFER website.  Please click on the following link to view these informative presentations: http://www.offerutah.org/2008%20conference.htm
 
 

 
OFFER WEBSITE HAS A NEW LOOK AND FEEL!  CHECK IT OUT!

Thanks again to months of effort on the part of our webmaster, Scott Stevens, for an all new OFFER website.  Scott has added numerous video presentations from previous OFFER Conferences and OFFER EDUCATION MEETINGS plus much more.  Please click on the following link and let OFFER know how you like our new look (and sounds):
http://www.offerutah.org/index.htm


 
FORWARD OFFER E-NEWS TO A FRIEND!
 
You can notify your friends to sign up for the E-news by forwarding this email or send them the following link: http://www.offerutah.org/enews%20signup.htm
   
  

 
THE NATIONAL FIBROMYALGIA ASSOCIATION HAS ESTABLISHED A HEALTHCARE PROVIDER INFORMATION PAGE.   
 
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
 

 
9th INTERNATIONAL IACFS/ME CONFERENCE
 
If you are a patient, caregiver and or an advocate, you will not want to miss this conference offering talks by internationally known researchers, physicians, legal experts and patient advocates. Every presentation has been designed to provide participants with knowledge and empowerment to face the difficult health issues persons with CFS/FM encounter daily.
 
Patient Session: March 12, 2009 
Professional Session: March 13-15, 2009
 
Location: Peppermill Resort, Reno, Nevada 
 
Go to the OFFER Website to view the brochures at http://www.offerutah.org or for complete information on the entire IACFS/ME Conference go to: http://www.iacfsme.org.

 

 
FIBROMYALIGA TREATMENT PROGRAM
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
*  Have been diagnosed with Fibromyalgia Syndrome
*  Are between 21 and 65 years of age
*  Do not exercise regularly ( less than 30 minutes per week)  
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions.  All evaluations and treatments are at no cost to you. 
 
If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break The Chain On Pain 

 
"You can conquer almost any fear if you will make up your mind to do so.  For remember, fear doesn't exist anywhere except in the mind."  
Author: Dale Carnegie

 
IN THE NEWS LINKS
  

Exercising when you have Fibromyalgia and Chronic Fatigue Syndrome
 
 
Gene profiling of patients chronic fatigue syndrome/myalgic encephalomyelitis
Source: Current Rheumatology Reports, December 2008
 
 
Jazz Pharmaceuticals, partner report positive fibromyalgia drug tests
 
 
Chronic Fatigue Syndrome: The Basics
By: Lara Endreszl

 

 


"The more tranquil a man becomes, the greater is his success, his influence, his power for good.  Calmness of mind is one of the beautiful jewels of wisdom."  
Author: James Allen

INFO-LINKS
 
Treatment for Fibromyalgia Overview
Teresa Kaldis, M.D. reviews the different treatment options.  Click here
 
Great ideas for youth/adults who have to deal with CFS and FM
A wonderful booklet written by a young lady in our community.  Click here
 
A New Study for Fibromyalgia Patients 
Dr. Lucinda Bateman is actively seeking Fibromyalgia patients, ages 18-70, to participate in clinical research studies of three investigational drugs for the treatment of Fibromyalgia.  If you are interested, call Dr. Bateman’s office (801-359-7400) and talk to Ali Allen, RN, research coordinator, or others on the research team, to learn more about the drug studies currently underway.  Qualified participants receive study-related physician visits, lab evaluations, and the investigational medication at no cost.

Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG Announces New Discussion Board!
OFFER is excited to announce the launch of our new discussion board.  This discussion board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS.  If you would like to join the forum, just go to OFFER's website,  http://www.offerutah.org/ and click on the 'Discussion Board' button in the side menu.  Just follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.
 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources
 
 
 

 
"There are no limitations to the mind except those we acknowledge; both poverty and riches are the offspring of thought."
Author:  Napoleon Hill

 
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"If human beings are perceived as potentials rather than problems, as possessing strengths instead of weaknesses, as unlimited rather than dull and unresponsive, then they thrive and grow to their capabilities."
Author:  Barbara Bush


  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.


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