"Discovery of a Potential Retroviral Link to Chronic
Fatigue Syndrome"
and
"FM/CFS
Couples Panel Discussion"
Hot from the
national media. The OFFER Board will present an
up-to-the-minute accurate update on the XM retro
virus that has been newly associated with CFS.
This will follow the presentation of a panel of 4
couples: the patient and their primary support
person. We will get the picture of care issues from
both view points. It should be very informative.
The panel discussion is enough reason to come, but
this meeting is to get this very important update of
the retrovirus and what we can expect from it's
association with CFS.
Linda Milne, OFFER
Board
Wednesday, November 4,
2009 at 7:00 p.m.
OFFER's
Education Meetings are usually the first
Wednesday of each month at
7:00 p.m.,
and are
free and open to everyone.
To view the 2009 Education Meeting Schedule,
click here.
Additional Education Meetings will be
uploaded to OFFER's website
Here's a
great site for Men with Fibromyalgia.
Spouses or SO's of Men with Fibromyalgia
are also welcome. Very interesting.
Click here
OFFERUTAH.ORG newly designed Support
Board!
Over
the last year, we have had a
"message Board" for patients and
caregivers to share ideas on how to
cope with CFS/ME and Fibromyalgia or
to discuss how they are feeling.
Over time, most of us have lost the
ties to loved ones and friends we
once had. This "Support Board" is
intended to be a place to find new
friends who understand our
illnesses. It should also be a
place to pick up good ideas on how
to cope with our illnesses.
Our
previous board was regularly
attacked by spammers. This new
board has great security features to
keep "spammers" out. Take a look
and see what you think.
To
join in, just go to OFFER's website,
http://www.offerutah.org/index.htm
and click on the 'Support Board'
button in the side menu. Just
follow the instructions to
register. If you have questions,
click on 'FAQ' or email the
administrator.
Offer's
Website
Visit OFFER's web
site for additional resources to
important health information and CFS/FM
research studies at:
http://www.offerutah.org under
Resources
"Happiness doesn't depend on what we
have, but it does depend on how we feel
toward what we have. We can be happy
with little and miserable with much."
Author: William Dempster Hoard
E-NEWS SUBSCRIPTIONS
Feel free
to forward this email to anyone
who might be interested. To
start your subscription to this
free newsletter, send your
request to:
You must
add
offerregistration@yahoo.com
to your address book or safe
list so that your E-news does
not get filtered as spam.
You may
unsubscribe at anytime by
clicking the link at the bottom
of the E-news. At no time will
OFFER ever sell or give you
email address or any other
personal information to anyone.
Individuals who
have had severe, unexplained fatigue for
at least six months and who have no
serious abnormalities on medical tests
are wanted for a study of chronic
fatigue. Patients who qualify for the
study will be asked to complete three
questionnaires over a six month period.
Participating in the study will not
alter the treatment that your physician
gives you. The purpose of the study is
to evaluate whether patients treated by
certain types of physicians improve
faster than patients treated by other
types of physicians.
If you may be
interested in participating in this
study, please contact the study
coordinator, Kathleen O’Connor at (801)
587-4741. For more information email
kathleen.oconnor@hci.utah.edu or
visit our website at:
Researchers in the Department of
Anesthesiology at The University
of Utah are seeking individuals
interested in participating in a
clinical study to evaluate
rehabilitation programs for
treating Fibromyalgia.
If you:
* Have been diagnosed with
Fibromyalgia Syndrome
* Are between 21 and 65
years of age
* Do not exercise
regularly ( less
than 30 minutes per
week)
You may be
eligible for
this study.
This study
includes
evaluations and
10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and
treatments are
at no cost to
you.
If you are interested, please
call The Pain Research Center at
801-585-7697 or
As an extension of the
youth panel, a video has been created by Scott
Stevens and Peggy Allen, featuring Lauren Allen,
Jessica Turner, Jenny Wilson - young women with
CFS. The purpose is to describe problems they have
experienced as CFS students dealing with their
schools. A 10-minute version was edited from the 43
minute complete film which was presented at the May
meeting of the CFS Advisory Board in Washington
D.C. We will preserve the longer version as well as
the 10-minute presentation.
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE
YOU'RE IN FOR A TREAT! IT HAS ADDED NEW
INFORMATION AND LOTS OF VIDEOS FROM OFFER'S
CONFERENCES AND EDUCATION MEETINGS!
"No one is in control of your happiness but you;
therefore, you have the power to change anything
about yourself or your life that you want to
change."
Author: Barbara DeAngelis
Please
Note: the inclusion of information in this
newsletter does not constitute or imply endorsement
by OFFER. Please consult your medical care provider
before using any medication or therapy.
Copyright 2007
This
message was sent from OFFER UTAH. It was sent from: OFFER
(Organization for Fatigue & Fibromyalgia Education and Research,
1002 E South Temple Ste 408, Salt Lake City, UT 84102. You can
modify/update your subscription via the link below.
