Individuals who
have had severe, unexplained fatigue for
at least six months and who have no
serious abnormalities on medical tests
are wanted for a study of chronic
fatigue. Patients who qualify for the
study will be asked to complete three
questionnaires over a six month period.
Participating in the study will not
alter the treatment that your physician
gives you. The purpose of the study is
to evaluate whether patients treated by
certain types of physicians improve
faster than patients treated by other
types of physicians.
If you may be
interested in participating in this
study, please contact the study
coordinator, Kathleen O’Connor at (801)
587-4741. For more information email
kathleen.oconnor@hci.utah.edu or
visit our website at:
As an extension of the
youth panel, a video has been created by Scott
Stevens and Peggy Allen, featuring Lauren Allen,
Jessica Turner, Jenny Wilson - young women with
CFS. The purpose is to describe problems they have
experienced as CFS students dealing with their
schools. A 10-minute version was edited from the 43
minute complete film which was presented at the May
meeting of the CFS Advisory Board in Washington
D.C. We will preserve the longer version as well as
the 10-minute presentation.
"You are today where your thoughts have brought
you; you will be tomorrow where your thoughts
take you."
Author: James Allen
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE
YOU'RE IN FOR A TREAT! IT HAS ADDED NEW
INFORMATION AND LOTS OF VIDEOS FROM OFFER'S
CONFERENCES AND EDUCATION MEETINGS!
Researchers in
the Department of Anesthesiology at The University
of Utah are seeking individuals interested in
participating in a clinical study to evaluate
rehabilitation programs for treating Fibromyalgia.
If you:
* Have been diagnosed with Fibromyalgia
Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly ( less than
30 minutes per week)
You may be eligible for this study.
This study includes evaluations and
10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and
treatments are at no cost to you.
If you
are interested, please call The Pain Research Center
at 801-585-7697 or
Understanding
Fibromyalgia: Lessons from the Broader Pain
Research Community
David A. Williams, Daniel J. Clauw
Abstract
Fibromyalgia
(FM) is a chronic pain condition marked by centrally
mediated augmentation of pain and sensory processes.
Skepticism has marked the history of this condition,
but more recent study has identified neurobiological
underpinnings supporting many of the symptoms
associated with this condition. Early research in FM
had unprecedented latitude within the rheumatology
community to borrow heavily from theory and methods
being applied in chronic pain research more
generally. These insights facilitated rapid advances
in FM research, not the least of which was the
abandonment of a peripheral focus in favor of
studying central mechanisms associated with central
augmentation. Currently, rapid-paced discovery is
taking place in FM genetics, patient assessment, new
therapeutic targets, and novel methods of treatment
delivery. Such insights are not likely to be limited
in application just to FM and could have relevance
to the broader field of pain research as well.
Perspective
This manuscript reviews
the history of FM and its diagnosis, evidence
supporting central augmentation of pain in FM,
potential mechanisms of central augmentation,
current approaches to integrated care of FM, and
areas of active collaboration between FM research
and other chronic pain conditions.
"I am
determined to be cheerful and happy in whatever
situation I may find myself. For I have learned
that the greater part of our misery or
unhappiness is determined not by our
circumstance by by our disposition."
Author: Martha Washington
INFO-LINKS
Develop Coping Skills for Living
With Fibromyalgia
Here's a great
site for Men with Fibromyalgia. Spouses or
SO's of Men with Fibromyalgia are also
welcome. Very interesting.
Click here
OFFERUTAH.ORG
Announces New Discussion Board!
OFFER is
excited to announce the launch of our new
discussion board. This discussion board is
open to anyone and will provide a forum for
those who want to share their journey with
others who are living with CFS and/or FMS.
If you would like to join the forum, just go
to OFFER's website,
http://www.offerutah.org/ and click on
the 'Discussion Board' button in the side
menu. Just follow the instructions to
register. If you have questions, click on
'FAQ' or email the administrator.
Offer's Website
Visit OFFER's web site
for additional resources to important health
information and CFS/FM research studies at:
http://www.offerutah.org under Resources
You must add
offerregistration@yahoo.com to your
address book or safe list so that your
E-news does not get filtered as spam.
You may unsubscribe at
anytime by clicking the link at the bottom
of the E-news. At no time will OFFER ever
sell or give you email address or any other
personal information to anyone.
"People
who consider themselves victims of their
circumstances will always remain victims unless
they develop a greater vision for their lives."
Author: Stedman Graham
Please
Note: the inclusion of information in this
newsletter does not constitute or imply endorsement
by OFFER or the Arthritis Foundation Utah/Idaho
Chapter. Please consult your medical care provider
before using any medication or therapy.
Copyright 2007
This
message was sent from OFFER UTAH. It was sent from: OFFER
(Organization for Fatigue & Fibromyalgia Education and Research,
1002 E South Temple Ste 408, Salt Lake City, UT 84102. You can
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