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E-NEWS SPECIAL EDITION: BREAKING NEWS: OCTOBER 2009

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OFFER EDUCATION MEETING

"Discovery of a Potential Retroviral Link to Chronic Fatigue Syndrome"

and

"FM/CFS Couples Panel Discussion"

Hot from the national media. The OFFER Board will present an up-to-the-minute accurate update on the XM retro virus that has been newly associated with CFS. This will follow the presentation of a panel of 4 couples: the patient and their primary support person. We will get the picture of care issues from both view points. It should be very informative. The panel discussion is enough reason to come, but this meeting is to get this very important update of the retrovirus and what we can expect from it's association with CFS.

Linda Milne, OFFER Board

Wednesday, November 4, 2009 at 7:00 p.m.

OFFER's Education Meetings are usually the first Wednesday of each month at 7:00 p.m.,

and are free and open to everyone.

To view the 2009 Education Meeting Schedule, click here.

Additional Education Meetings will be uploaded to OFFER's website

within the next week or so.

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BREAKING NEWS

Discovery of a potential retroviral link to Chronic Fatigue Syndrome

(sampling of articles below)

Whittemore Peterson Institute 10/09/2009 Press Release:
http://www.wpinstitute.org/news/news_current.html

Whittemore Peterson Institute Questions and Answers:
http://www.wpinstitute.org/xmrv/xmrv_qa.html

National Institutes of Health (NIH) publication on XMRV:
http://www.nih.gov/news/health/oct2009/nci-08.htm

Suzanne D. Vernon, PhD, Scientific Director, CFIDS Association of America:
http://www.cfids.org/cfidslink/2009/110402.asp

ME agenda article on XMRV (with good links) from England:
http://meagenda.wordpress.com/2009/10/16/me-research-uk-response-to-xmvr-study-xmrv-and-mecfs-a-stunning-find/

MEagenda media survey and copy of Paul R. Cheney, MD, PhD article on XMRV:
http://wp.me/p5foE-2aQ

MEagenda media survey 10/17/09
http://meagenda.wordpress.com/2009/10/17/whittemore-peterson-institute-xmrv-retrovirus-study-link-with-cfs-media-round-up-10/

Dr. David Bell personal statement regarding the XMRV discovery:
http://www.davidsbell.com/PrintLynNewsV6N2.htm

The New Yorker interview of Laura Hillenbrand on the XMRV discovery:
http://www.newyorker.com/online/blogs/backissues/2009/10/back-issues-laura-hillenbrand.html

New York Times article on XMRV:
http://www.nytimes.com/2009/10/13/health/13fatigue.html?pagewanted=2&_r=1&ref=health

National Public Radio: Talk of the Nation: Science Friday October 16, 2009:
http://www.npr.org/templates/rundowns/rundown.php?prgId=5&prgDate=10-16-2009

National Public Radio: Morning Edition: Interview of Daniel Peterson, MD:
http://www.npr.org/templates/player/mediaPlayer.html?action=1&t=1&islist=false&id=113650222&m=113650172

Scientific American 10/08/09 article on XMRV:
http://www.scientificamerican.com/article.cfm?id=chronic-fatigue-syndrome-retrovirus

Science News article on XMRV:
http://sciencenews.org/view/generic/id/48157/title/Retrovirus_might_be_culprit_in_chronic_fatigue_syndrome

European ME Alliance Press Release on XMRV:
http://www.euro-me.org/news-Q42009-002.htm

CFSAC Agenda Presentation: XMRV Association with CFS Dr. D Peterson:
http://www.hhs.gov/advcomcfs/meetings/agendas/cfsac091029_agenda.html

Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER. Please consult your medical care provider before using any medication or therapy.