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 E-NEWS FEBRUARY 2010 
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OFFER EDUCATION MEETING
 
There will be no meeting in February.
 
 
Additional Meetings will be uploaded to OFFER's website
as the information becomes available.
 


 
 



IN THE NEWS LINKS
 
Summary of Dr. Lucinda Bateman and the CFIDS Association webinar called "XMRV: Implications for CFS."
By Adrienne Dellwo, About.com Guide to Fibromyalgia & CFS
January 30, 2010
 
Dr. Reeves Out at the CDC
by 'Bringing the Heat: An ME/CFS Blog' on January 29, 2010
 
Many women look for treatment to fight a chronic pain disorder
By Dr. Faye Cohen
01/28/2010 St. Louis Post-Dispatch
See article at:   http://www.stltoday.com/stltoday/lifestyle/stories.nsf/healthfitness/story/29E11A405109AE4E862576B800764C64?OpenDocument
 
 
Stanford University Publishes New Data on Immuno-potential of Hemispherx's Ampligen(R). May Enhance Bioactivity of Cancer Immunotherapies
January 28, 2010: 1:36 PM ET  CNN Money.com
 
 


"Your past is not your potential.  In any hour you can choose to liberate the future."
Author: Marilyn Ferguson


CURRENT PATIENT STUDIES 
 

Participants Wanted for Study of Chronic Fatigue
 
Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue.   Patients who qualify for the study will be asked to complete three questionnaires over a six month period.  Participating in the study will not alter the treatment that your physician gives you.  The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.  
 
If you may be interested in participating in this study, please contact the study coordinator, Kathleen O’Connor at (801) 587-4741. For more information email kathleen.oconnor@hci.utah.edu or visit our website at:


Fibromyalgia Treatment Program
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
*  Have been diagnosed with Fibromyalgia Syndrome
*  Are between 21 and 65 years of age
*  Do not exercise regularly ( less than 30 minutes per week)  
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 ½ hour treatment sessions.  All evaluations and treatments are at no cost to you. 
 
If you are interested, please call The Pain Research Center at 801-585-7697 or
visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break The Chain On Pain
 
 
 
New Fibromyalgia Clinical Trial for Patients
 
The Fibromyalgia Research Team at the University of Utah School of Medicine’s Pain Research Center is beginning a new clinical trial on Fibromyalgia patients. We are currently recruiting participants for a nutrition and weight management study.
 
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients. We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25. Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center. The treatment will be in a group format and will be provided at no cost.
 

If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.


 
 
INFO-LINKS
 
The National Fibromyalgia Association has established a healthcare provider information page   
Several Utah doctors and others in the Intermountain area have been listed. To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address: http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
 
Develop Coping Skills for Living With Fibromyalgia
Improve Your Life & Your Symptoms
By Adrienne Dellwo, About.com
Updated: February 28, 2009
 
 
Chronic Fatigue Syndrome: The Basics
 
 
Medline Plus: Fibromyalgia Tutorial
 
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
 
OFFERUTAH.ORG Support Board!

The Support Board on the website has been removed until we can find a volunteer willing to help manage it.  There seems to be an interest in the OFFER community to have the Support Board, but there are frequent software updates and someone must monitor the discussions for objectionable comments and watch out for the spam.  It wouldn't require more than a couple of hours a week to keep the software up-to-date and manage the board.  The software is not difficult to understand, it simply requires a commitment to keep things running smoothly.


Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org under Resources
 
 
 

 
"Even a mistake may turn out to be the one thing necessary to a worth while achievement."
Author: Henry Ford


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"If you treat an individual...as if he were what he ought to be, and could be, he will become what he ought to be and could be."  
Author: Johann Wolfgang Von Goethe
 
IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
"Living with Fibromyalgia" by Daneen Akers: http://www.offerutah.org/daneenakers.htm
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD: http://www.offerutah.org/kathleenlight.htm
 


 
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!

 
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