June 2010
E-NEWS QUICK LINKS
 
OFFER Education Meeting


 
OFFER EDUCATION MEETING

 
"Fibromyalgia Medications: The Good, the Bad, and the Ugly"
 
by N. Lee Smith, M.D.
 
Wednesday, June 2, 2010 at 7:00 p.m.
 
 
Upcoming Education Meetings:

July 7 - Group Discussion led by Dr. Stuart Drescher

August 4 - Group Discussion led by Dr. Stuart Drescher
 
To view the remaining 2010 Education Meeting Schedule, click here.
 
 
Location: 
Salt Lake County Complex, North Building, 2001 S. State Street, SLC, UT.
Park in the northeast corner of the complex.
 

OFFER CONFERENCE
 
There will be an OFFER Conference held on September 11, 2010 at the Marriott Hotel in Research Park, next to the University of Utah.  More information can be found on the website: www.OFFERUtah.org.  There will be a morning session for medical professionals and an afternoon session for ME/CFS and Fibromyalgia patients and their loved ones.
 
Volunteers will be needed as we prepare for the September Conference.  Help will be needed with many different tasks.  If you are able, volunteer at the OFFER website.
 



 
"It is not enough to be busy, so are the ants.  The question is, "What are we busy about?"
Author: Henry David Thoreau



IN THE NEW LINKS
 
Germans Find XMRV, Retrovirus Linked to Chronic Fatigue Syndrome
By Adrienne Dellwo, About.com Guide to Fibromyalgia & CFS
May 25, 2010
 
CFIDS Association Webinars
ProHealth, Inc.
 
A New Way of Diagnosing Fibromyalgia
Pain Index Plus Symptoms, Not Tender Points, Equals Fibromyalgia, New Study Says
By Denise Mann
WebMD Health News
May 26, 2010
 
Vitamin D: Why You Are Probably NOT Getting Enough and How That Makes You Sick
Mark Hyman, MD in The Huffington Post
May 22, 2010
Researchers: Drugs show promise in fight against cancer, CFS
April 1, 2010
By Ed Yeates at KSL.com Salt Lake City, Utah
 
Fibromyalgia Affects Mental Health of Those Diagnosed and Their Spouses, MU Study Finds
By Emily Martin in HealthCanal.com
April 27, 2010
 
Specific measures of impaired motion are indicative of FM, according to researchers at the University of Granada (Spain).
ProHealth, Inc.
April 28, 2010
 
Written Testimony Submitted to the CVSAC by Annette Whittemore/WPI for the CFSAC May 10 2010 meeting

 

 
"True happiness consists not in the multitude of friends, but in their worth and choice."
Author: Samuel Johnson


CURRENT PATIENT STUDIES
 
Participants Wanted for Study of Chronic Fatigue
 
Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue.  Patients who qualify for the study will be asked to complete three questionnaires over a six month period.  Participating in the study will not alter the treatment that your physician gives you.  The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.
 
If you may be interested in participating in this study, please contact the study coordiantor, Kathleen O'Connor at (801) 587-4741.  For more information email kathleen.oconnor@hci.utah.edu.
 
Fibromyalgia Treatment Program
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
* Have been diagnosed with Fibromyalgia Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly (less than 30 minutes per week)
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 1/2 hour treatment sessions.  All evaluations and treatments are at no cost to you.
 
If you are interested, please call The Pain Research Center at 801-585-7697 or visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break the Chain on Pain
 
New Fibromyalgia Clinical Trial for Patients
 
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients.  We are currently recruiting participants for a nutrition and weight management study.
 
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients.  We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25.  Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center.  The treatment will be in a group format and will be provided at no cost.
 
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
 

 
"Maturity begins when we're content to feel we're right about something, without feeling the necessity to prove someone else is wrong."
Author: Sydney J. Harris


INFO LINKS
 
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management.  Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php.  This is a wonderful upgrade from previous support board attempts.
 
OFFER'S Facebook site
OFFER Utah is in the process of setting up a Facebook site.  Check the OFFER website for more information.
 
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at:  www.offerutah.org under Resources.
 
The National Fibromyalgia Association has established a healthcare provider information page
Several Utah doctors and others in the Intermountain area have been listed.  To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address:
http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
Developing Coping Skills for Living with Fibromyalgia
Improve Your Life & Your Symptoms
by Adrienne Dellwo, About.com
Updated: February 28, 2009
Go to:  http://chronicfatigue.about.com/od/copingwithfmscfs/a/copingskills.htm
 
Chronic Fatigue Syndrome: The Basics
By: Lara Endreszl
Published Sunday, 28 December 2008
Go to: http://www.healthnews.com/family-health/chronic-fatigue-syndrome-the-basics-2346.html
 
Medicine Plus: Fibromyalgia Tutorial
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting. 
 

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"Man often becomes what he believes himself to be.  If I keep on saying to myself that I cannot do a certain thing, it is possible that I may end by really becoming incapable of doing it.  On the contrary, if I shall have the belief that I can do it.  I shall surely acquire the capacity to do it, even if I may not have it at the beginning."
Author: Mahatma Gandhi


IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
 "Living with Fibromyalgia" by Daneen Akers:
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD:


IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!



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"What happens is not as important as how you react to what happens."
Author: Thaddeus Golas






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