The E-news will
be changing its format. So look for it in
the near future!
OFFER EDUCATION
MEETING
"Chronic Fatigue Syndrome: Experiences of
Women during Pregnancy, Childbirth and the
Postpartum Period"
Panel Discussion
Moderator: Peggy Rosati Allen, CNN, WHNP,
MS
“Chronic Fatigue Syndrome:
Experiences of Women during Pregnancy,
Childbirth and the Postpartum Period” will
provide a synopsis of expert opinion and
the current scientific evidence, albeit
scant, that addresses the experience of
childbirth in women with chronic fatigue
syndrome. The presentation will include a
panel of women with chronic fatigue
syndrome who will share their experiences
of pregnancy, childbirth, and early
parenting. Target audience for this
presentation will be women with chronic
fatigue syndrome and their families who
may be anticipating or have experienced
pregnancy, birth, and early parenting.
Peggy Rosati Allen, CNM,
WHNP, MS is an Assistant Clinical
Professor with BirthCare HealthCare,
faculty practice for the graduate
nurse-midwifery and women’s health nurse
practitioner programs with the University
of Utah College of Nursing. She is also
the author of “Chronic Fatigue Syndrome:
Implications for Women and their Health
Care Providers During the Childbearing
Years”, published as a feature article in
the July/August 2008 issue of the Journal
of Midwifery and Women’s Health. Peggy
was awarded the 2009 Journal of Midwifery
and Women’s Health Mary Ann Shah New
Author award for this publication, an
award sponsored by the publisher Elsevier
and the JMWH editorial board given to a
first-time published author whose article,
among other criteria, makes a significant
contribution to clinical practice, policy,
education, or research.
Wednesday, March 3, 2010 at 7:00 p.m.
To view the 2010 Education Meeting
Schedule,
click here.
Location: Salt Lake County
Complex, North Building, 2001 S. State
Street, SLC, UT.
The CFIDS Association of
America reports on the
three negative studies of
XMRV in CFS
A study published
on Feb. 25, 2010,
in the British
Medical Journal by
Frank van
Kuppeveld, et al,
of the Netherlands
did not find
evidence of
xenotropic murine
leukaemia
virus-related
virus (XMRV) in 32
patients with CFS
and 43 matched
controls. This
study used blood
samples collected
in 1991-1992 from
CFS patients
defined by the
Oxford criteria.
None of the cases
or controls tested
positive by
sensitive
polymerase chain
reaction (PCR).
The Association's
scientific
director, Suzanne
D. Vernon, PhD,
has written an
analysis of this
study and provided
some context for
the three negative
reports of XMRV
that have been
published in the
last 51 days.
Please read
"Playing A Weak
Hand Well" at
"The starting point
of all achievement is desire.
Keep this constantly in mind.
Weak desires bring weak results,
just as a small fire makes a small
amount of heat."
Author: Napoleon Hill
CURRENT PATIENT
STUDIES
Participants
Wanted for Study
of Chronic Fatigue
Individuals
who have had
severe,
unexplained
fatigue for at
least six
months and who
have no
serious
abnormalities
on medical
tests are
wanted for a
study of
chronic
fatigue.
Patients who
qualify for
the study will
be asked to
complete three
questionnaires
over a six
month period.
Participating
in the study
will not alter
the treatment
that your
physician
gives you.
The purpose
of the study
is to evaluate
whether
patients
treated by
certain types
of physicians
improve faster
than patients
treated by
other types of
physicians.
If you may be
interested in
participating
in this study,
please contact
the study
coordinator,
Kathleen
O’Connor at
(801)
587-4741. For
more
information
email
kathleen.oconnor@hci.utah.edu
or visit our
website at:
Researchers
in the
Department
of
Anesthesiology
at The
University
of
Utah
are
seeking
individuals
interested
in
participating
in a
clinical
study
to
evaluate
rehabilitation
programs
for
treating
Fibromyalgia.
If
you:
*
Have
been
diagnosed
with
Fibromyalgia
Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly ( less than 30 minutes per week)
You may be eligible for this study. This study includes evaluations and
10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and treatments are at no cost to you.
If you
are
interested,
please
call
The
Pain
Research
Center
at
801-585-7697
or
The Fibromyalgia Research Team at the University of Utah School of Medicine’s Pain Research Center is beginning a new clinical trial on Fibromyalgia patients. We are currently recruiting participants for a nutrition and weight management study.
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients. We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25. Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center. The treatment will be in a group format and will be provided at no cost.
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
Here's a great site for Men with
Fibromyalgia. Spouses or SO's of
Men with Fibromyalgia are also
welcome. Very interesting.
Click here
OFFERUTAH.ORG Support Board!
The OFFER
Support Board should be back
on-line shortly. We have
a new volunteer who is
currently working out the
final
details. Keep checking
back.
Offer's
Website
Visit OFFER's
web site for additional resources
to important health information
and CFS/FM research studies at:
http://www.offerutah.org under
Resources
You
must add
offerregistration@yahoo.com
to your address book or
safe list so that your
E-news does not get
filtered as spam.
You
may unsubscribe at anytime
by clicking the link at
the bottom of the E-news.
At no time will OFFER ever
sell or give you email
address or any other
personal information to
anyone.
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER
WEBSITE YOU'RE IN FOR A TREAT! IT HAS
ADDED NEW INFORMATION AND LOTS OF VIDEOS
FROM OFFER'S CONFERENCES AND EDUCATION
MEETINGS!
"There comes a moment when
you have to stop revving up the car and
shove it into gear."
Author: David Mahoney
Please Note: the inclusion of
information in this newsletter does not
constitute or imply endorsement by OFFER.
Please consult your medical care provider
before using any medication or therapy.
This message was sent from OFFER UTAH. It was sent from:
OFFER (Organization for Fatigue & Fibromyalgia Education
and Research, 1002 E South Temple Ste 408, Salt Lake City,
UT 84102. You can modify/update your subscription via the
link below.