May 2010
E-NEWS QUICK LINKS
 
OFFER Education Meeting


 
OFFER EDUCATION MEETING

 
"Group Discussion"
 
During these group discussions, Dr. Stuart Drescher, a licensed psychologist and ME/CFS patient, will introduce themes pertinent to ME/CFS and Fibromyalgia patients.  He'll then ask those in attendance about their experiences and how they deal with these illnesses.  These will be positive, supportive meetings.  Plan on attending!
 
Wednesday, May 5, 2010 at 7:00 p.m.
 
 
Upcoming Education Meetings:

June 2 - "Fibromyalgia Medications: The Good, the Bad and the Ugly" by N. Lee Smith, M.D.

July 7 - Group Discussion led by Dr. Stuart Drescher
 
To view the remaining 2010 Education Meeting Schedule, click here.
 
 
Location: 
Salt Lake County Complex, North Building, 2001 S. State Street, SLC, UT.
Park in the northeast corner of the complex.
 

OFFER CONFERENCE
 
There will be an OFFER Conference held on September 11, 2010 at the Marriott Hotel in Research Park, next to the University of Utah.  More information can be found on the website: www.OFFERUtah.org.  There will be a morning session for medical professionals and an afternoon session for ME/CFS and Fibromyalgia patients and their loved ones.
 
Volunteers will be needed as we prepare for the September Conference.  Help will be needed with many different tasks.  If you are able, volunteer at the OFFER website.
 



 
"The mark of a great player is in his ability to come back.  The great champions have all come back from defeat."
Author: Sam Snead



IN THE NEW LINKS
 
Researchers: Drugs show promise in fight against cancer, CFS
April 1, 2010
By Ed Yeates at KSL.com Salt Lake City, Utah
 
Fibromyalgia Affects Mental Health of Those Diagnosed and Their Spouses, MU Study Finds
By Emily Martin in HealthCanal.com
April 27, 2010
 
Specific measures of impaired motion are indicative of FM, according to researchers at the University of Granada (Spain).
ProHealth, Inc.
April 28, 2010
 
Chronic Fatigue Link Prompts Blood Ban
By Danny Rose in The Sydney Morning Herald
April 28, 2010
 
Nightshade Vegetables & Fibromyalgia/Chronic Fatigue Syndrome
By Adrienne Dellwo, About.com Guide to Fibromyalgia & CFS
April 25, 2010

Potential Risk to Blood Supply Probed
By Amy Dockser Marcus The Wall Street Journal. Health
April 4, 2010
 
Written Testimony Submitted to the CVSAC by Annette Whittemore/WPI for the CFSAC May 10 2010 meeting
April 29, 2010  

 

 
"Stop asking if the glass is half full or half empty.  Instead ask "What's in it?  How did it get there?  What can I do with it?"
Author: David Kaufman


CURRENT PATIENT STUDIES
 
Participants Wanted for Study of Chronic Fatigue
 
Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue.  Patients who qualify for the study will be asked to complete three questionnaires over a six month period.  Participating in the study will not alter the treatment that your physician gives you.  The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.
 
If you may be interested in participating in this study, please contact the study coordiantor, Kathleen O'Connor at (801) 587-4741.  For more information email kathleen.oconnor@hci.utah.edu.
 
Fibromyalgia Treatment Program
 
Researchers in the Department of Anesthesiology at The University of Utah are seeking individuals interested in participating in a clinical study to evaluate rehabilitation programs for treating Fibromyalgia.
 
If you:
* Have been diagnosed with Fibromyalgia Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly (less than 30 minutes per week)
 
You may be eligible for this study.  This study includes evaluations and 10 consecutive weekly, 2 1/2 hour treatment sessions.  All evaluations and treatments are at no cost to you.
 
If you are interested, please call The Pain Research Center at 801-585-7697 or visit our website at: www.painresearch.utah.edu/clinical
 
Please help Break the Chain on Pain
 
New Fibromyalgia Clinical Trial for Patients
 
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients.  We are currently recruiting participants for a nutrition and weight management study.
 
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients.  We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25.  Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center.  The treatment will be in a group format and will be provided at no cost.
 
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
 

 
"People are like sticks of dynamite.  The power is on the inside, but nothing happens until the fuse gets lit."
Author: Mac Anderson


INFO LINKS
 
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management.  Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php.  This is a wonderful upgrade from previous support board attempts.
 
OFFER'S Facebook site
OFFER Utah is in the process of setting up a Facebook site.  Check the OFFER website for more information.
 
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at:  www.offerutah.org under Resources.
 
The National Fibromyalgia Association has established a healthcare provider information page
Several Utah doctors and others in the Intermountain area have been listed.  To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address:
http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
Developing Coping Skills for Living with Fibromyalgia
Improve Your Life & Your Symptoms
by Adrienne Dellwo, About.com
Updated: February 28, 2009
Go to:  http://chronicfatigue.about.com/od/copingwithfmscfs/a/copingskills.htm
 
Chronic Fatigue Syndrome: The Basics
By: Lara Endreszl
Published Sunday, 28 December 2008
Go to: http://www.healthnews.com/family-health/chronic-fatigue-syndrome-the-basics-2346.html
 
Medicine Plus: Fibromyalgia Tutorial
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting. 
 

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"Procrastination is like a credit card: it's a lot of fun until you get the bill."
Author: Christopher Parker


IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
 "Living with Fibromyalgia" by Daneen Akers:
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD:


IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!



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"You never will be the person you can be if pressure, tension and discipline are taken out of your life."
Author: James G. Bilkey






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