September 2010
E-NEWS QUICK LINKS
 
OFFER Education Meeting


 
OFFER EDUCATION MEETING

 
No OFFER Education Meeting for September in lieu of the Conference
 


ATTEND THE OFFER CONFERENCES: SEPTEMBER 11, 2010
 
***Save the Date***
 
Saturday, September 11, 2010
 
OFFER (Organization for Fatigue and Fibromyalgia Education and Research)
invites you to attend our conference:
 
ADVANCES IN THE SCIENCE AND TREATMENT OF
CHRONIC FATIGUE SYNDROME AND FIBROMYALGIA
 
for Healthcare Providers and Patients
 
Marriott Salt Lake City Downtown
75 South West Temple
Salt Lake City, UT 84101
(801) 531-0800
 
HEALTHCARE PROVIDER CONFERENCE
 
Saturday Morning, 8:30-12:30 am
 
Patrick Wood, MD. “Fibromyalgia: Advances in Theory and Practice”
 
Ila Singh, MD , PhD. “XMRV and human diseases: Prostate Cancer and Chronic Fatigue Syndrome”
 
Suzanne Vernon, PhD. “Science-Based Medicine: Biomarkers for the Objective Diagnosis and Treatment of CFS”
 
Expert Panel Discussion: FM/CFS Treatment Strategies: N. Lee Smith, MD, Lucinda Bateman, MD, Patrick Wood, MD, Ila Singh, MD, Phd, Stuart Drescher, PhD, Paul Shepherd, PhD
 

PATIENT EDUCATION CONFERENCE
 
Saturday Afternoon 1:00-4:00 pm
 
(Vendors 12 noon – 5:00 pm)
 
Lynn Matallana. `“The Treatment of Fibromyalgia: The Need for Patient/Physician Collaboration”
 
Suzanne Vernon, PhD. “Science-Based Medicine: Biomarkers for the Objective Diagnosis and Treatment of CFS”
 
Lucinda Bateman, MD. ”The Utah Connection:  Amazing local contributions to big time FM and CFS research"
 
For more information and to register, please visit the OFFER website: www.offerutah.org
 
To request conference brochures, please email mindi@offerutah.org
 
Volunteers are needed to assist with the conference.  If you would like to volunteer, please click here.
 
Over the past several years, OFFER has conducted conferences to educate both healthcare providers, patients, caregivers, and others interested in learning more about these debilitating illnesses.
 
If you know of any friends, family, or medical providers you think might benefit in
attending the Patient or Provider Conference, please forward a copy of
this issue of the OFFER E-NEWS to them.

 



 
"Procrastination is like a credit card: it's a lot of fun until you get the bill."
Author: Christopher Parker



IN THE NEW LINKS
 
Second Paper Supports Viral Link to Chronic Fatigue Syndrome
August 23, 2010
By Martin Enserink
Science
 
Does X (the Virus, That Is) Mark the Spot in Chronic Fatigue Syndrome?
August 25, 2010
By Amy Dockser Marcus
The Wall Street Journal U.S. Health Blog
 
Betting on X - As in XMRV - With a Big-Ticket Research Center
August 26, 2010
By Amy Dockser Marcus
The Wall Street Journal U.S. Health Blog
Noise Sensitivity in Fibromyalgia & Chronic Fatigue Syndrome
August 14, 2010
By Adrienne Dellwo
About.com
 
Study Finds Tai Chi can help Fibromyalgia Patients
By Pam Belluck (the New York Times)
The Scranton Times Tribune
Published: August 26, 2010
 
Possible New Chronic Fatigue Syndrome Drug Investigated
August 25, 2010
By Adrienne Dellwo
About.com
 
CFIDSLink Aug 2010: From the CEO's Desk: More on XMRV
By The CFIDS Association of America on August 6, 2010

 

 
"People become really quite remarkable when they start thinking that they can do things.  When they believe in themselves they have the first secret of success."
Author: Norman Vincent Peale


CURRENT PATIENT STUDIES
 
Participants Wanted for Study of Chronic Fatigue
 
Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue.  Patients who qualify for the study will be asked to complete three questionnaires over a six month period.  Participating in the study will not alter the treatment that your physician gives you.  The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians.
 
If you may be interested in participating in this study, please contact the study coordinator, Kathleen O'Connor at (801) 587-4741.  For more information email kathleen.oconnor@hci.utah.edu.
 

New Fibromyalgia Clinical Trial for Patients
 
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients.  We are currently recruiting participants for a nutrition and weight management study.
 
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients.  We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25.  Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center.  The treatment will be in a group format and will be provided at no cost.
 
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
 

 
"If you want to know your past; look into your present conditions.  If you want to know your future; look into your present actions."
Author: Chinese Proverb


INFO LINKS
 
"Pharmacological Treatment of Fibromyalgia:  The Good, the Bad, and the Ugly"
N. Lee Smith, M.D. - VIDEO
June 2, 2010
 
Antiviral treatment creates improvement in a subset of CFS/CFIDS/ME patients
Massachusetts CFIDS/ME & FM Association
August 29, 2010
 
 
Establishing "Disability" for Claimants with Fibromyalgia and Chronic Fatigue Syndrome
24-7 Press Release
June 26, 2010
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management and is gaining popularity.  Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php.  This is a great place to learn more information and join in on the discussion.
 
OFFER'S Facebook Site is Now Available!
OFFER Utah now has a Facebook site.  Go to: http://www.facebook.com/pages/OFFER-Utah/110674102285101 to view the Facebook page and join as a friend.  This is a great place to check for announcements about upcoming Education meetings and the September Conference.
 
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at:  www.offerutah.org under Resources.
 
The National Fibromyalgia Association has established a healthcare provider information page
Several Utah doctors and others in the Intermountain area have been listed.  To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address:
http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
Medicine Plus: Fibromyalgia Tutorial
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting. 
 

E-NEWS SUBSCRIPTIONS
 
Feel free to foward this email to anyone who might be interested.  To start your subscription to this free newsletter, send your request to: offerregistration@yahoo.com,
 
-or- fill out the online form on our website at the following link:
 
You must add offerregistration@yahoo.com to your address book or safe list so that your E-news does not get filtered as spam.
 
You may unsubscribe at anytime by clicking the link at the bottom of the E-news.  At no time will OFFER ever sell or give your email address or any other personal information to anyone.
 



 
"Never does a man portray his character more vividly than his proclaiming the character of another."
Author: Winston Churchill


IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
 "Living with Fibromyalgia" by Daneen Akers:
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD:


IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!



FORWARD OFFER E-NEWS TO A FRIEND!

You can notify your friends to sign up for the E-news by forwarding this email or send them the following link:  http://www.offerutah.org/enews%20signup.htm
 


 
"Look closely at the present you are constructing:  it should look like the future you are dreaming."
Author: Alice Walker






This message was sent from OFFER UTAH. It was sent from: OFFER (Organization for Fatigue & Fibromyalgia Education and Research, 1002 E South Temple Ste 408, Salt Lake City, UT 84102.

Email Marketing by
iContact - Try It Free!