"Learn to enjoy
every minute of your life. Be happy now. Don't wait for
something outside of yourself to make you happy in the
future. Think how really precious is the time you have to
spend, whether it's at work or with your family. Every
minute should be enjoyed and savored."
Author: Earl Nightingale
INFO-LINKS
The National
Fibromyalgia Association has established a
healthcare provider information page
Here's a great site for Men
with Fibromyalgia. Spouses or SO's of Men with
Fibromyalgia are also welcome. Very interesting.
Click here
OFFERUTAH.ORG Support Board!
The Support Board on the website has been removed
until we can find a volunteer willing to help manage
it. There seems to be an interest in the OFFER
community to have the Support Board, but there
are frequent software updates and someone must monitor
the discussions for objectionable comments and watch
out for the spam. It wouldn't require more than
a couple of hours a week to keep the software
up-to-date and manage the board. The software is not
difficult to understand, it simply requires a
commitment to keep things running smoothly.
Offer's Website
Visit
OFFER's web site for additional resources to important
health information and CFS/FM research studies at:
http://www.offerutah.org under Resources
You must add offerregistration@yahoo.com to
your address book or safe list so that your E-news
does not get filtered as spam.
You may unsubscribe at anytime by clicking the
link at the bottom of the E-news. At no time will
OFFER ever sell or give you email address or any
other personal information to anyone.
Individuals who have had severe,
unexplained fatigue for at least six months and who have
no serious abnormalities on medical tests are wanted for a
study of chronic fatigue. Patients who qualify for the
study will be asked to complete three questionnaires over
a six month period. Participating in the study will not
alter the treatment that your physician gives you. The
purpose of the study is to evaluate whether patients
treated by certain types of physicians improve faster than
patients treated by other types of physicians.
If you may be interested in
participating in this study, please contact the study
coordinator, Kathleen O’Connor at (801) 587-4741. For more
information email
kathleen.oconnor@hci.utah.edu or visit our website at:
Researchers in
the Department of Anesthesiology at The University
of Utah are seeking individuals interested in
participating in a clinical study to evaluate
rehabilitation programs for treating Fibromyalgia.
If you:
* Have been diagnosed with Fibromyalgia
Syndrome
* Are between 21 and 65 years of age
* Do not exercise regularly ( less
than 30 minutes per week)
You may be eligible for this
study. This study includes
evaluations and
10 consecutive weekly, 2 ½ hour treatment sessions. All evaluations and
treatments are at no cost to you.
If you are
interested, please call The Pain Research Center
at 801-585-7697 or
As an extension of the youth panel, a
video has been created by Scott Stevens and Peggy Allen, featuring
Lauren Allen, Jessica Turner, Jenny Wilson - young women with CFS.
The purpose is to describe problems they have experienced as CFS
students dealing with their schools. A 10-minute version was edited
from the 43 minute complete film which was presented at the May
meeting of the CFS Advisory Board in Washington D.C. We will preserve
the longer version as well as the 10-minute presentation.
"There is no failure
except in no longer trying. There is no defeat except
from within, no insurmountable barrier except our own
inherent weakness of purpose."
Author: Elbert
Hubbard
IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS
NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS
TO START WITH:
IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A
TREAT! IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM
OFFER'S CONFERENCES AND EDUCATION MEETINGS!
"Laughter is to life
what shock absorbers are to automobiles. It won't take the
potholes out of the road, but it sure makes the ride smoother."
Author: Barbara Johnson
Please Note: the
inclusion of information in this newsletter does not constitute or
imply endorsement by OFFER. Please consult your medical care provider
before using any medication or therapy.
