April 2011
E-NEWS QUICK LINKS

OFFER Education Meeting


OFFER EDUCATION MEETING

"Group Discussion*"
by Stuart Drescher PhD
Wednesday, April 6, 2011 at 7:00 p.m.

Location:
Salt Lake County Complex, North Building, 2001 S. State Street, SLC, UT.
Park in the northeast corner of the complex.
*During these group discussions, Dr. Stuart Drescher will introduce themes pertinent to ME/CFS and Fibromyalgia patients. These will be positive, supportive meetings.
To view the remaining 2011 Education Meeting Schedule, click here.


NEW OFFER OUTREACH LINKS
OFFER'S NEW BLOG: LINDA'S CORNER:
OFFERUtah.org has a blog with great ideas for dealing with ME/CFS and Fibromyalgia. Visit and share. We WANT your comments and ideas if a post strikes a chord with you. Let's get a conversation going.
A 4-part April series will feature must-have information about How People with Special Health Needs can Prepare for an Emergency Disaster.
To join the 4-part April series, or stay up-to-date on health management tips as well as what's happening in the ME/CFS & Fibromyalgia word, go to Linda's Corner on OFFER's home page under "What's New." http://www.offerutah.org/lindascorner/
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management and is gaining popularity. Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php. This is a great place to learn more information and join in on the discussion.
OFFER'S Facebook Site is Now Available!
OFFER Utah has a Facebook site. Go to: http://www.facebook.com/pages/OFFER-Utah/110674102285101 to view the Facebook page and join as a friend. This is a great place to check for announcements about upcoming Education meetings.
OFFER'S YouTube Site is Now Available!
OFFER Utah now has a YouTube site. Go to: http://www.youtube.com/user/OFFERUtah to view the latest video.
OFFER'S Twitter is Now Available!
OFFER Utah now has a twitter site. Go to: http://twitter.com/offerutahorg to follow OfferUtahorg and stay up-to-date on the latest news and information.



SEPTEMBER 2010 OFFER CONFERENCE FOR HEALTHCARE PROVIDERS AND PATIENTS

All presentations were filmed and are now available on the OFFER website. The website allows visitors to access all of the presentations. The information is located in the "What's New" box on the home page with a link to the healthcare provider's videos and a link to the patient conference videos. Anyone can access either session of the conference.
To access the presentations, click here: http://www.offerutah.org/conferences.htm
DVD's of the presentation will also be available.




"The only thing worse than being blind is having sight but no vision."
Author: Helen Keller



IN THE NEWS LINKS
Research Shows Retrovirus isn't Behind Chronic Fatigue Syndrome
Trine Tsouderos, Chicago Tribune
March 20, 1022
Knoxville News Sentinel

Chronic Fatigue Syndrome and Psychotherapy
John Falk
March 1, 2011
The Huffington Post
The Puzzle of Chronic Fatigue
by Amy Dockser Marcus
March 5, 2011
The Wall Street Journal
Unlocking Chronic Fatigue Syndrome
by Amy Dockser Marcus
March 22, 2011
The Wall Street Journal
An Illness That's Hard to Live With - Or Define
By Leonard A. Jason
March 5, 2011
The Wall Street Journal Life & Style
Troubles of Chronic Fatigue Syndrome Start with Defining It
By David Tuller
The New York Times
March 4, 2011
Organizations Announce Coalition 4 ME/CFS, the First US Coalition to Promote a National ME/CFS Agenda
Coral Gables, FL
PR.com
March 16, 2011
An Etiological Model for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
By Leonard A. Jason, Matthew Sorenson, Nicole Porter, Natalie Belkairous
Scientific Research Publishing/Neuroscience & Medicine
March 17, 2011
Patients With Intractable Pain Report Relief Using HCG
Steven Fox
Medscape Medical News
March 28, 2011
Vibration Therapy: Can Reduce Fibromyalgia, Chronic Head & Neck Pain Substantially
ProHealth.com
March 25, 2011


"The only disability in life is a bad attitude."
Author: Scott Hamilton


CURRENT PATIENT STUDIES
New Chronic Illness Research Study
Taralyn Clark is a graduate student at BYU. The purpose of this study is to examine family relationships where one parent suffers from chronic illness as well as study the role leisure plays in families. Your participation would provide important insights that would help scholars and practitioners developing programs for families who have a family member with chronic illness. Families who participate in this research need to have two parents living at home, one of whom has been diagnosed with a chronic illness that includes chronic pain, requires daily management, and limits normal activity and routine. Also asking that the adult with the illness has been ill for 6 months to ten years. Additionally, at least one adolescent child (aged 12-18 years) needs to be living at home and will to participate in the research.
Due to confidentiality laws, the leader of your support group cannot give me your contact information. This means you need to contact Taralyn! If your family meets the criteria and you are willing to learn more about what your participation in this study would mean, please contact Taralyn Clark at taralynclark@gmail.com of (208) 360-1938.

Fibromyalgia Clinical Trial for Patients
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients. We are currently recruiting participants for a nutrition and weight management study.
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients. We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25. Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center. The treatment will be in a group format and will be provided at no cost.
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.


"If you are lucky enough to find a way of life you love, you have to find the courage to live it."
Author: John Irving


INFO LINKS
Lucinda Bateman, M.D., at the Fatigue Consultation Clinic in Salt Lake City, is currently giving new patient priority to adolescents ages 12-17, who have symptoms of fibromyalgia.
Please call (801) 359-7400 to initiate a visit. Their website is:
http://www.fcclinic.com/about_dr.html
Smooth Moves: Eight Tips for Moving
By Carole Jean
CFIDS & Fibromyalgia Self-Help
"Pharmacological Treatment of Fibromyalgia: The Good, the Bad, and the Ugly"
N. Lee Smith, M.D. - VIDEO
June 2, 2010
http://www.offerutah.org/Ed.Mtg.060210.htm
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at: www.offerutah.org under Resources.

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OFFER (Organization for Fatigue & Fibromyalgia Education and Research | 1002 E South Temple Ste 408 | Salt Lake City, UT 84102

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