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The May 4th Meeting
is now on the OFFER website for viewing:
Dr. N. Lee
Smith's presentation at the May 4, 2011 OFFER
Education Meeting on the subject of "Creating
Stress Resilience: How Spiritual Well-being
Reduces Pain and Suffering" presented truly
remarkable and potentially life-altering
insights into creating stress resilience for
anyone who is not aware of the research based
principles and practices he reviewed.
June 1, 2011 OFFER
Education Meeting:
"Group Discussion*"
An in-depth discussion of the principles and
practices creating stress reduction
by Stuart Drescher, PhD
Wednesday, June 1, 2011 at 7:00 p.m.
Location:
Salt
Lake County Complex, North Building, 2001 S.
State Street, SLC, UT.
Park
in the northeast corner of the complex.
*
During these group discussions, Dr. Stuart
Drescher, a licensed psychologist and ME/CFS
patient, will introduce themes pertinent to
ME/CFS and Fibromyalgia patients. He'll then
ask those in attendance about their
experiences and how they deal with these
illnesses. These will be positive,
supportive meetings. They will not be filmed
to respect privacy concerns.
Plan
on attending!
To
view the remaining 2011 Education
Meeting Schedule,
click here.
OFFER'S NEW BLOG: LINDA'S CORNER:
OFFERUtah.org has a blog with great ideas
for dealing with ME/CFS and Fibromyalgia.
Visit and share. We WANT
your comments and ideas if a post strikes a
chord with you. Let's get a conversation
going.
It's true, making health-related goals can
pull us forward to a better place. But if
goals lack this one thing, they will
probably fail. Drop by Linda's Corner
and find out how to set a goal and raise the
odds you will achieve it.
To stay up-to-date on health management tips
as well as what's happening in the ME/CFS &
Fibromyalgia word, go to Linda's
Corner on OFFER's home page
under "What's New."
http://www.offerutah.org/lindascorner/
OFFERUtah.org Support Board!
The
Offer Support Board has been revamped with
entirely new and very gifted management and
is gaining popularity. Go to the OFFER
website and click on "Support Group" or go
to:
www.offerutah.org/supportboard/index.php.
This is a great place to learn more
information and join in on the discussion.
OFFER'S Facebook Site
is Now Available!
OFFER Utah
has a Facebook site. Go to:
http://www.facebook.com/pages/OFFER-Utah/110674102285101
to view the Facebook page and join as a friend.
This is a great place to check for announcements
about upcoming Education meetings.
OFFER'S YouTube Site
is Now Available!
OFFER'S Twitter is Now
Available!
SEPTEMBER 2010 OFFER CONFERENCE FOR
HEALTHCARE PROVIDERS AND PATIENTS
All presentations were filmed and
are now available on the OFFER
website. The website allows visitors
to access all of the presentations.
The information is located in the
"What's New" box on the home page
with a link to the healthcare
provider's videos and a link to the
patient conference videos. Anyone
can access either session of the
conference.
DVD's of the presentation will
also be available.
"It
isn't what you have, or who you are, or what
you are doing that makes you happy or
unhappy. Is is what you think about."
Author: Dale Carnegie
New Survey of People with
Fibromyalgia or Another Chronic Pain
Condition Shows the Devastating
Impact on Pivotal Life Decisions and
Everyday Activities
Source: National Fibromyalgia
Association and American Pain
Foundation
May 12, 2011
Marketwire, Incorporated
THE
ITERATION OF X:
Journal of Virology
Study Finds No XMRV
Suzanne D.
Vernon, PhD,
Scientific Director
K. Kimberly
McCleary, President
& CEO
The CFIDS
Association of
America
Go to:
http://www.cfids.org/xmrv/jvi-may2011.asp
Study Finds No Link Between XMRV Virus, Chronic Fatigue Syndrome
Researchers say patients should 'reconsider' taking antiretrovirals
U.S. News & World Report LP
Chronic fatigue, fibromyalgia cause 'bone-crushing fatigue,' pain for many
By Wendy Leonard, Deseret News
May 13, 2011
Deseret News
Study Blowback Shows Controversy Over Chronic Fatigue Syndrome
May 17, 2011
The Wall Street Journal
Live Web chat: A
doctor with
fibromyalgia
helps others
with the
condition
By Shari
Roan, Los
Angeles
Times/For
the Booster
Los
Angeles
Times
The Doctor In Your Mind: Biofeedback training can help control the body's 'autonomic' functions to reduce the need for medication
"More than anything else, I believe its
our decisions, not the conditions of our
lives that determine our destiny."
Author: Anthony
Robbins
CURRENT PATIENT STUDIES
New Chronic Illness Research
Study
Taralyn Clark is a graduate student at
BYU. The purpose of this study is to
examine family relationships where one
parent suffers from chronic illness as
well as study the role leisure plays in
families. Your participation would
provide important insights that would
help scholars and practitioners
developing programs for families who
have a family member with chronic
illness. Families who participate in
this research need to have two parents
living at home, one of whom has been
diagnosed with a chronic illness that
includes chronic pain, requires daily
management, and limits normal activity
and routine. Also asking that the adult
with the illness has been ill for 6
months to ten years. Additionally, at
least one adolescent child (aged 12-18
years) needs to be living at home and
will to participate in the research.
Due to confidentiality laws, the leader
of your support group cannot give me
your contact information. This means you
need to contact Taralyn! If your family
meets the criteria and you are willing
to learn more about what your
participation in this study would mean,
please contact Taralyn Clark at
taralynclark@gmail.com of (208)
360-1938.
Fibromyalgia
Clinical Trial for Patients
The Fibromyalgia
Research Team at the University of Utah
School of Medicine's Pain Research
Center is beginning a new clinical trial
on Fibromyalgia patients. We are
currently recruiting participants for a
nutrition and weight management study.
The Fibromyalgia
Research Team has been awarded a
National Institutes of Health grant to
provide nutrition and coping education
for symptom and weight management for
overweight or obese Fibromyalgia
patients. We are recruiting participants
who have been diagnosed with
Fibromyalgia syndrome, are between the
ages of 21 and 65, and have a Body Mass
Index of at least 25. Eligible patients
will undergo pre and post treatment
evaluations and will receive 12 weeks of
treatment at the University of Utah Pain
Research Center. The treatment will be
in a group format and will be provided
at no cost.
If you have any
questions or would like additional
information about this study please do
not hesitate to contact Mark Herrera at
(801) 585-7692.
"One of the greatest things in life
is that no one has the authority to
tell you what you want to be. You're
the one who'll decide what you want
to be."
Author: Jaime Escalante
INFO LINKS
Lucinda Bateman,
M.D., at the Fatigue Consultation
Clinic in Salt Lake City, is
currently giving new patient
priority to adolescents ages 12-17,
who have symptoms of fibromyalgia.
Please call
(801) 359-7400 to initiate a
visit. Their website is:
http://www.fcclinic.com/about_dr.html
Smooth Moves:
Eight Tips for Moving
By Carole Jean
CFIDS &
Fibromyalgia Self-Help
"Pharmacological
Treatment of Fibromyalgia: The
Good, the Bad, and the Ugly"
N. Lee Smith,
M.D. - VIDEO
OFFER's Website
Visit OFFER's website for
additional resources to important health
information and CFS/FM research studies
at:
www.offerutah.org under Resources.
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