March 2011
E-NEWS QUICK LINKS
 
OFFER Education Meeting


 
OFFER EDUCATION MEETING

 
"Group Discussion*"
 
by Stuart Drescher PhD
 
Wednesday, March 2, 2011 at 7:00 p.m.

Location: 
Salt Lake County Complex, North Building, 2001 S. State Street, SLC, UT.
Park in the northeast corner of the complex.
 
 
Upcoming Education Meetings:

April 6 - Stuart Drescher, PhD "Group Discussion*"
 
May 4 - N. Lee Smith, M.D. "Topic to be announced"
 
*During these group discussions, Dr. Stuart Drescher, a licensed psychologist and ME/CFS patient, will introduce themes pertinent to ME/CFS and Fibromyalgia patients.  He'll then ask those in attendance about their experiences and how they deal with these illnesses.  These will be positive, supportive meetings.  They will not be filmed to respect privacy concerns. 
Plan on attending!

 
To view the remaining 2011 Education Meeting Schedule, click here.
 
 


NEW OFFER OUTREACH LINKS
 
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management and is gaining popularity.  Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php.  This is a great place to learn more information and join in on the discussion.
 
OFFER'S Facebook Site is Now Available!
OFFER Utah has a Facebook site.  Go to: http://www.facebook.com/pages/OFFER-Utah/110674102285101 to view the Facebook page and join as a friend.  This is a great place to check for announcements about upcoming Education meetings. 
 
OFFER'S YouTube Site is Now Available!
OFFER Utah now has a YouTube site.  Go to: http://www.youtube.com/user/OFFERUtah to view the latest video.
 
OFFER'S Twitter is Now Available!
OFFER Utah now has a twitter site.  Go to: http://twitter.com/offerutahorg to follow OfferUtahorg and stay up-to-date on the latest news and information.
 
OFFER'S Blog: Linda's Corner is Now Available!
Linda Milne, one of OFFER Utah's current board members has a blog.  Go to: http://www.offerutah.org/lindascorner/ to learn valuable information.


SEPTEMBER 2010 OFFER CONFERENCE FOR HEALTHCARE PROVIDERS AND PATIENTS

 
Both conferences were very successful, not in small part due to the tireless efforts of numerous OFFER volunteers!!

 
The conferences were held September 11, 2010 at the Downtown Salt Lake City, Marriott Hotel.
 
All presentations were filmed and are now available on the OFFER website.  The website allows visitors to access all of the presentations.  The information is located in the "What's New" box on the home page with a link to the healthcare provider's videos and a link to the patient conference videos.  Anyone can access either session of the conference.
 
To access the presentations, click here: http://www.offerutah.org/conferences.htm
 
DVD's of the presentation will also be available.
 




 
"Man often becomes what he believes himself to be.  If I keep on saying to myself that I cannot do a certain thing, it is possible that I may end by really becoming incapable of doing it.  On the contrary, if I shall have the belief that I can do it.  I shall surely acquire the capacity to do it, even if I may not have it at the beginning."
Author: Mahatma Gandhi



IN THE NEWS LINKS
 
The Lancet, Early Online Publication, 18 February 2011
DOI:10.1016/S0140-6736(11)60096-2
Comparison of adaptive pacing therapy, cognitive behaviour therapy, graded exercise therapy, and specialist medical care for chronic fatigue syndrome (PACE): a randomised trial

Psychotherapy Eases Chronic Fatigue Syndrome, Study Finds
By David Tuller
The New York Times
February 17, 2011
 
Trial offers hope for ME sufferers
(UKPA) - February 17, 2011
The Press Association
 
Psychotherapy And Exercise Look Best to Treat Chronic Fatigue Syndrome
Friday, 02/18/11 - All Things Considered
Richard Knox
VPR News Vermont Public Radio
 
Study Says 2 Therapies Help Fight Chronic Fatigue Syndrome
Cognitive behavior counseling and exercise program enhanced standard treatment, according to British researchers
By Alan Mozes
HealthDay Reporter
Executive Health February 18, 2011
Bloomberg Businessweek
 
Study finds therapy and exercise best for Chronic fatigue syndrome
By Annabel Tautou
FrenchTribune.com
February 19, 2011
 
Behaviour, exercise therapy best for chronic fatigue: study
By Maria Cheng
Winnipeg Free Press
February 26, 2011
 
A Step Closer to Tests for Chronic Fatigue Syndrome and Lyme Disease
By Amy Dockser Marcus
Wall Street Journal - Health
February 23, 2011
 
Spinal Fluid May Hold Clues to Lyme Disease, Chronic Fatigue Syndrome
Strong evidence suggests that the central nervous system is involved in both conditions
 
PODCAST: Interview with ME/CFS Patient Crusader Rik Carlson
February 3, 2011
ProHealth
 
Underfunding of Fibromyalgia & Chronic Fatigue Syndrome Research
By Adrienne Dellwo
About.com
February 9, 2011
 
XMRV Link to CFS Accelerates Scientific Inquiry and Sustains Media Interest
CFIDS Association of America
Updated most recently on February 25, 2011
 
Fibromyalgia News: Pain Drug Recalled
By Adrienne Dellwo
About.com

 
"The fishermen know that the sea is dangerous and the storm terrible, but they have never found these dangers sufficient reasons for remaining ashore."
Author: Vincent Van Gogh


CURRENT PATIENT STUDIES
 
Fibromyalgia Clinical Trial for Patients
 
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients.  We are currently recruiting participants for a nutrition and weight management study.
 
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients.  We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25.  Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center.  The treatment will be in a group format and will be provided at no cost.
 
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
 

 
"Plenty of people miss their share of happiness, not because they never found it, but because they didn't stop to enjoy it."
Author: William Feather


INFO LINKS
 
Lucinda Bateman, M.D., at the Fatigue Consultation Clinic in Salt Lake City, is currently giving new patient priority to adolescents ages 12-17, who have symptoms of fibromyalgia.
Please call (801) 359-7400 to initiate a visit.  Their website is:
http://www.fcclinic.com/about_dr.html
 
Smooth Moves: Eight Tips for Moving
By Carole Jean
CFIDS & Fibromyalgia Self-Help
 
"Pharmacological Treatment of Fibromyalgia:  The Good, the Bad, and the Ugly"
N. Lee Smith, M.D. - VIDEO
June 2, 2010
 
Antiviral treatment creates improvement in a subset of CFS/CFIDS/ME patients
Massachusetts CFIDS/ME & FM Association
August 29, 2010
  
Establishing "Disability" for Claimants with Fibromyalgia and Chronic Fatigue Syndrome
24-7 Press Release
June 26, 2010
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at:  www.offerutah.org under Resources.
 
The National Fibromyalgia Association has established a healthcare provider information page
Several Utah doctors and others in the Intermountain area have been listed.  To see the list, it's necessary to register with The National Fibromyalgia Association, but it's free of charge.  Here is the address:
http://www.fmaware.org/site/PageServer?pagename=resources_hcProviderDirectory
 
Medicine Plus: Fibromyalgia Tutorial
 
Check out this Website for Men with Fibromyalgia
Here's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting. 
 

E-NEWS SUBSCRIPTIONS
 
Feel free to foward this email to anyone who might be interested.  To start your subscription to this free newsletter, send your request to: offerregistration@yahoo.com,
 
-or- fill out the online form on our website at the following link:
 
You must add offerregistration@yahoo.com to your address book or safe list so that your E-news does not get filtered as spam.
 
You may unsubscribe at anytime by clicking the link at the bottom of the E-news.  At no time will OFFER ever sell or give your email address or any other personal information to anyone.
 



 
"The majority of men meet with failure because of their lack of persistence in creating new plans to take the place of those, which fail."
Author: Napoleon Hill


IF YOU HAVEN'T EXPLORED THE OFFER 2008 PATIENT CONFERENCE VIDEOS NOW ON OFFER'S WEBSITE, HERE ARE A COUPLE OF GREAT PRESENTATIONS TO START WITH:
 
 "Living with Fibromyalgia" by Daneen Akers:
 
"New Research and Biomarkers for FMS/CFS" by Kathleen Light, PhD:


IF YOU HAVEN'T CHECKED OUT THE NEW OFFER WEBSITE YOU'RE IN FOR A TREAT!  IT HAS ADDED NEW INFORMATION AND LOTS OF VIDEOS FROM OFFER'S CONFERENCES AND EDUCATION MEETINGS!



FORWARD OFFER E-NEWS TO A FRIEND!

You can notify your friends to sign up for the E-news by forwarding this email or send them the following link:  http://www.offerutah.org/enews%20signup.htm
 


 
"Patience and perseverance have a magical effect before which difficulties disappear and obstacles vanish."
Author: John Quincy Adams