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OFFER E-NEWS
APRIL 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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OFFER E-NEWS
APRIL 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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~~
"We can do no great
things, only small things with great love." Mother Teresa
~~
~~
"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around."
Leo Passacaglia
~~
"Behold
the Turtle:
He makes progress only when he sticks his neck out". -James Bryant Conant
Have a few
laughs
for the shell of it! |
OFFER
Education Meetings:
OFFER's
Education Meetings are the
first Wednesday of each month at 7:00 p.m.,
and are free
and open to everyone.
Park free at
the Salt Lake County Complex North Building,
2001 South
State Street, Salt Lake City, UT.
April 5, 2006 "Headaches and Fibromyalgia" Susan Baggaley, MS Family Nurse Practitioner
University of
Utah, Neurology
~~~ May 3, 2006 "Fibromyalgia Update" N. Lee Smith, M.D., OFFER Board Member
Internist,
HealthSouth
~~~~~~~~~~~
"In
the News" Links:
Fibromyalgia Guide; one lesson a day for the next 7 days http://arthritis.about.com/c/ec/17.htm Chronic Fatigue Syndrome could be the result of brain injuries, read "Hit-and-run Injury to the Brain" at http://www.unsw.edu.au/news/pad/media/2006/feb/Hit_and_run.html
The
Effects of Sodium Oxybate on Clinical Symptoms
and
Sleep Patterns in Patients with Fibromyalgia
http://www.immunesupport.com/library/showarticle.cfm/id/4850
~~~~~~~~~~~~
5th
Annual Inspiring Hope Through Awareness
Neuroendocrineimmune Disorders Conference April 29, 2006 - 9:00 am to 3:30 pm Emma Lou Olson Civic Center - 1801 N.E. 6th Street, Pompano Beach, Florida - Conference fee: $15 tax deductible donation CHRONIC FATIGUE SYNDROME- FIBROMYALGIA -
GULF WAR
SYNDROME -MULTIPLECHEMICAL SENSITIVITIES
AND RELATED
ILLNESSES
Key note speakers:
Roland Staud,
MD (Fibromyalgia Session) and
Nancy Klimas,
MD (Chronic Fatigue Syndrome Session).
Other
speakers:
Patricia Fennell, MSW, LCSW-R, leading author
and clinician,
Dr. Bruce
Hofmann Life Coach from Peak Performance,
Alicia
Paulino-Grishman, Esq.-Dell & Schaeffer and Social Security
Attorneys Lyle Lieberman & Robert Gutierrez. Platinum Sponsor:
Forest Laboratories - Don't miss this empowering conference!
Hosted by P.A.N.D.O.R.A. - Patient Alliance for Neuroendocrineimmune Disorders Organization for Research and Advocacy, Inc. 501 c 3 non profit charitable organization-
Volunteer
Help Line 954-783-6771
For more information visit http://www.pandoranet.info/ or call 954-783-6771
~~~~~~~~
May 12th is
International
CFIDS/ME Awareness Day:
Tell Congress That You Are Concerned About CFIDS
http://www.cfids.org/advocacy/awareness-day.asp
...Please consider joining us for this year's event. We recognize that for many people affected by CFIDS, limitations imposed by health, strained finances and other responsibilities make it impossible to consider traveling to Washington, D.C., so we are extremely grateful for the efforts and sacrifice that participants make to take part in
this
experience. As the date approaches, we'll have a "virtual lobby
day" through
CFIDS Link and our Grassroots Action Center
http://capwiz.com/cfids/home
enabling
those who can't be with
us
in Washington
to augment the impact of what advocates are
able to
accomplish in person on Capitol Hill.
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Support OFFER
and Promote Awareness:
You can support OFFER and promote awareness of FMS and CFS,
by buying
T-shirts or recordings of OFFER conference
and Education
Meeting sessions.
Order on line
at http://offerutah.org/Menu_menu_1.html
Another way to help is by buying turtle jewelry --
a gentle reminder that "slow
and steady wins the race"
and we must learn to pace --
available at
Thank you for your continuing support!
~~~~~~~~~~~~
Interested in Participating in Future Research? Interested in participating in future Fibromyalgia or CFS research?
Just fill out
the registration form at
and mail it
to
OFFER
1002 E.
South Temple, Suite 408
Salt Lake
City, UT 84102
OFFER will
contact you when there's a study that may interest you;
and of
course, you can choose whether or not to participate.
Your
information is kept confidential.
~~~
National Data Bank for Rheumatic Diseases (NDB)
Fibromyalgia Research
The National
Data Bank for Rheumatic Diseases (NDB)
is conducting
research into factors that lead to the development of
fibromyalgia. They need the help of people with fibromyalgia in
researching this important issue. For more
information go to
~~~~~~~~~~~~
Have a Great Physician or Health Care Provider?
We need your help in
expanding OFFER's list of health care professionals
who treat FMS and CFS. If you are a patient and would like
to recommend someone, please email us at
offerregistration@yahoo.com
giving the
practitioner's name, title, address, and phone number,
along with a
brief description of how that person helped you.
OFFER will
contact the practitioners to ensure they are willing to
be included
on the referral list.
Interested
practitioners also are invited to contact OFFER at
offerregistration@yahoo.com.
The referral
list is on line at
http://offerutah.org/Doctors.htm
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Other Support Groups in Utah:
for a list of
other support groups around the state.
These include
patient-led and professionally facilitated groups.
To suggest a
group for this list, please contact OFFER at
offerregistration@yahoo.com
~~~~~~~~~~~
Visit OFFER's
new web site at
http://www.offerutah.org. We
would
like to thank
Anthony Walker and Claims Management for the old web site and
for the help in transitioning to the new site, and pwc (person
with CFIDS) and webmaster Scott Stevens, for the implementation
and development of the new site.
Check out the
"Resource" section for links to many informative web sites, and
for past issues of E-News. Let us know what you think about the
new site. We welcome any suggestions and
hope to have
more to OFFER in the future!
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URGENT CALL FOR VOLUNTEERS
OFFER is in
need of volunteers who would like to help in one or more of the
following areas:
FIBROMYALGIA AND ARTHRITIS SELF-MANAGEMENT CLASSES:
The Arthritis Management Program can help you learn to manage
your
condition on a day-to-day basis. Trained volunteers, many
of whom have
Arthritis or Fibromyalgia, lead the courses.
The program
allows you to share experiences with others,
offering you
the opportunity to both help and learn from others.
~~~
Say "Know" to
Fibromyalgia Pain
Take the
Arthritis Foundation Self-Help Program, designed for people with
Arthritis, Fibromyalgia and related conditions, to learn how to
better manage pain and stress, how to effectively use relaxation
and sleep
techniques, and for information about medications
and
alternative therapies.
SPRING
SPECIAL: Class tuition & textbook is $30.
Mention this
coupon to receive the textbook for FREE ($15 value).
Pre-registration is required as seats are limited.
Call the
Arthritis Foundation at 801-536-0990/800-444-4993 or
on line at
http://www.arthritis.org
Pick the date
and location that work best for you and sign up today:
SANDY
May 1
through June 12, Mondays, 1-3 P.M.
Sandy Senior
Center
9310 South
1300 East
ST.GEORGE
May 2006
(call about dates/time)
Dixie Regional Hospital
1380 East
Medical Center Drive, (River Rd. Campus)
MURRAY
May 2006 (call about dates/time)
TOSH, The Orthopedic Specialty Hospital 5848 South Fashion Blvd. (300 East)
CEDAR
CITY
June
7-July 12, Wednesdays, 1-3 P.M.
Cedar City Senior Center,
489 East 200
South
~~~
FREE
Community Arthritis Classes
The Utah Arthritis Program, the Arthritis Foundation, and
TOSH-The Orthopedic Specialty Hospital present a four-part
series on osteoarthritis.
What will be
covered?
• An
orthopedic surgeon will present the latest in medical and
surgical options related to osteoarthritis.
• A physical therapist will discuss exercise and lifestyle management options. • A nutritionist will talk about important dietary considerations. • A Utah Department of Health/Arthritis Foundation representative will share information on local arthritis classes and resources.
Schedule, *6:30-7:30 p.m.
Monday,
May 1- Arthritis of the knee
Tuesday, May 2- Arthritis of the hand Wednesday, May 3- Arthritis of the hip Thursday, May 4- Arthritis of the foot/ankle
*A 30 minute
question and answer session will follow each session
LOCATION:
TOSH-The Orthopedic Specialty Hospital
(The building
with the glass pyramid on top)
5848 S.
Fashion Blvd. (300 East) Murray, UT 84107
For more
information, call 538-9340, or visit
www.health.utah.gov/arthritis
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Please
note: the inclusion of information in this newsletter does not
constitute or imply endorsement by OFFER or the Arthritis Foundation
Utah/Idaho Chapter. Please consult your medical care provider before
using any medication or therapy.