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About Chronic Fatigue Syndrome

Chronic Fatigue Syndrome (CFS) is a real and often misunderstood disorder, characterized by variable but often severe flu-like fatigue, exertion intolerance, headaches, dizziness, cognitive dysfunction, and mild to moderate symptoms of infection or allergy such as sore or scratchy throat, tender lymph nodes, low grade fever, joint and muscle aches. Symptoms are worsened by physical or emotional "stress" and certain types of activity, especially aerobic exercise. CFS typically has a distinct period of onset, striking men and women, young to middle aged, often during periods of additional stress (such as starting college, going abroad on a mission, or attending graduate school).

The prevalence of Chronic Fatigue Syndrome in this country is probably between 1-10 cases per 1000 in the population. For example, researchers at DePaul University estimate that Chronic Fatigue Syndrome affects four out of every 1000 people in the United States, with 90% of these cases largely undiagnosed and untreated. Most research suggests that CFS is three times more common in women than men (5.2 women out of 1,000), a rate that is similar to autoimmune diseases such as lupus and multiple sclerosis. Chronic Fatigue Syndrome is four times as common as HIV infection and poses a higher lifetime risk of lung cancer in women. There may be more than a million cases in the United States. Based on a population of 1,514,417 adults (over the age of 18) in the state of Utah, this amounts to 6,000 cases of Chronic Fatigue Syndrome, 90% of which may be undiagnosed and not properly treated.

Those who become ill are often rendered completely disabled from school or work, in the prime of active life, and may remain sick for years. At this point, very little has been proven regarding the exact cause, natural history, and treatment of the illness. A large and growing body of published scientific evidence exists supporting dysfunction in the immune system, the central nervous system, aspects of the hypothalamic-pituitary-adrenal axis and the autonomic nervous system, and a genetic risk of tendency to develop the disorder. The case definition of Chronic Fatigue Syndrome was initially published in 1988, revised in 1994, and is recognized by knowledgeable physicians, the Center for Disease Control (CDC), the National Institutes of Health (NIH), and the Surgeon General of the United States. Good research regarding Chronic Fatigue Syndrome is ongoing at major universities in the United States and around the world.