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~~~
"The real person you are
is revealed in the moments when
you're certain no other person
is watching. When no one is
watching, you are driven by what
you expect of yourself."
Author: Ralph S.
Marston, Jr.
~~~
~~~
"In everyone's life, at some
time, our inner fire goes
out.
It is then burst into flame
by an encounter with another
human being. We should all
be thankful for those people
who rekindle the inner
spirit. "
Author: Albert
Schweitzer
~~~
~~~
When you want what you've never
had, you must do what you've
never done.
Author: Unknown
~~~
~~~
You are not here merely
to make a living. You
are here in order to
enable the world to live
more amply, with greater
vision, with a finer
spirit of hope and
achievement.
Author: Woodrow
Wilson
~~~
If you
concentrate on finding
whatever is good in every
situation, you will discover
that your life will suddenly
be filled with gratitude, a
feeling that nurtures the
soul."
Author:
Rabbi Harold Kushner
~~~
~~~
" There are two big
forces at work, external and
internal. We have very little
control over external forces
such as tornados, earthquakes,
floods, disasters, illness and
pain. What really matters is
internal force. How do I
respond to those disasters?
Over that I have complete
control."
Author: Leo Buscaglia
~~~
~~~
"We cannot become what
we need to be by
remaining what we are.
Author: Max
Dupree
~~~
|
WE NEED YOUR HELP
THIS HOLIDAY SEASON
OFFER is an all volunteer
organization.
Normally, OFFER has a Christmas
Fundraising Campaign that we
mail out, but because our
volunteers are not feeling up to
it this year we are making this
appeal through the OFFER
E-NEWS.
On November 27th, the widely
read ImmuneSupport.com website
announced OFFER's coming Medical
Conference as follows:
"On May 4-5, 2007, an almost
unprecedented gathering of top
U.S. CFS and FM researchers will
convene in Salt Lake City, Utah
to describe their Advances
in Understanding and Treating
Chronic Fatigue Syndrome and
Fibromyalgia Syndrome."
great events happen.
If you can make a year-end
Christmas donation, or know
family or friends who might want
support our efforts, go to:
http://www.offerutah.org/donate.html
and give whatever you can.
It will be greatly appreciated!
Have a wonderful holiday season!
~~~
OFFER
E-NEWS Redesign January 2007
OFFER E-NEWS will undergo a
major redesign starting with the
January 2007 issue! The new
design will look very much like
the OFFER web site,
http://www.offerutah.org/.
The new-look OFFER E-NEWS will
be more user friendly and
provide easier access to the
OFFER web site.
~~~
OFFER
2007 Conferences rapidly
approaching!
OFFER's 2007 Provider
and Patient Conferences
have been scheduled. The
Provider
Conference is
set for all day
Friday, May 4th and
Saturday morning May
5th, 2007. The
Patient
Conference is
set for the
afternoon of Saturday,
May 5th, 2007.
Please go to the
following link on
OFFER's website to see
the details regarding
the Provider Conference.
If you are a
person with CFS or
Fibromyalgia and would
like your medical
providers to attend this
groundbreaking
conference, you
can print the flyer and,
if you like, the actual
speaker list that is on
our website and
give them to your
providers so they can
pencil in the dates.
Medical providers plan
their schedules months
in advance, so the
sooner you get this
information to your
providers the better
chance that they can
attend. The link is:
http://www.offerutah.org/Conference.html
~~~
OFFER Education Meetings
OFFER's Education Meetings are
the
first Wednesday
of each month at
7:00 p.m.,
and are free and open to
everyone.
Council Chambers, Salt Lake
Country Complex North Building
2001 South State Street, Salt
Lake City, UT.
(Park free at the northeast
corner of the complex)
~~~
December 6, 2006
Stuart Drescher, Ph.D.
Offer Board Member
"Panel Discussion: Attitude and
Health"
~~~
January 3, 2006
Jan Racine
"Coping with Fibromyalgia over
the Years"
Find more information about
upcoming meetings at
~~~~~~~~~~~
OFFER EDUCATION
MEETING
DVDs ARE AVAILABLE FOR
SALE ON THE
OFFER WEBSITE
~~~~~~~~~~~~
IN
THE NEWS LINKS:
November 3rd CFS
Press Conference Was
Held at the National
Press Club in
Washingtion, DC.
The Center for
Disease Control and
the CFIDS
Association of
America held a
November 3rd press
conference
announcing the
national CFS public
awareness campaign
that shifted into
high gear that
week. Click on the
link for the
complete transcript
of the press
conference :
<META
HTTP-EQUIV=Refresh
CONTENT="0;
URL=/ym/login?nojs=1">
~~~
October 11, 2006
P.A.N.D.O.R.A. announces the
International Advocacy Video
Contest on CFS, FM, GWS and
MCS.
~~~
CFS: New insights, new hope -
Chronic Fatigue Syndrome
~~~
Fibromyalgia Fit Tips
Click on the link below to learn
the latest Fibro Fit Tips:
~~~
Participate in FM and
CFS Research from your Home
If you would like
to contribute to a global fact
bank on people with serious
chronic illness, click on the
link below. The purpose of the
survey is to pinpoint the
factors that distinguish those
patients who achieve better
health and recovery. The
"Niagara Health Study,"
conducted by Canada's Brock
University, is gathering the raw
data via an online
"no-names-involved" survey. A
report on the data and findings
from this worldwide study will
be reported by mid-2007.
~~~
INFO-LINKS
~~~
Pharmacotherapy for CFS
The most common prescription and
over-the-counter drugs,
nutritional supplements and
herbal remedies that physicians
are using to treat their
patients with CFS, From the
CFIDS organization:
http://www.cfids.org/special/pharma.pdf
~~~
Prescription Drug Assistance
Programs
~~~
Young Adults Forum Section,
Youth Chat
pediatric education
packages for kids with cfs
~~~
Mayo Clinic's Health Symptom
Checker
~~~
How to Talk to your Health Care
Provider
~~~~~~~~~
Participate in Future CFS or
FM Research!
Interested
in participating in future
genetic or new research?
Just fill out the registration form
at
and mail it to
OFFER
1002 E. South Temple, Suite 408
Salt Lake City, UT 84102
OFFER will contact you when
there's a study that may
interest
you;
and of course, you can choose
whether or not to participate.
Your information is kept
confidential.
~~~
Meditation for Fibromyalgia
Would you like to
participate in a research
study on whether mindfulness
meditation can help relieve
Fibromyalgia symptoms?
To qualify to participate,
you need to be:
Female and at least 18 years
old
Have a Fibromyalgia
diagnosis from a physician
Be relatively healthy, other
than Fibromyalgia
Be able to access the
Internet from home
For information about
participating in the
meditation study,
immediately call (801)
585-7690.
~~~
"Does a single 25-minute period
of moderate exercise have
different effects on people with
CFS and FM?"
Researchers are seeking FM and
CFS patients to volunteer for a
new study entitled, "Exercise
Effects on Sensory Receptors and
Cytokines in CFS and FM." The
principal investigator is
Kathleen Light, Ph.D., of the
University of Utah
Anesthesiology Department. The
study is part of the
University's new Program for
Research on Mechanisms and
Treatment of Chronic Fatigue and
Fibromyalgia Syndromes,
co-directed by Alan Light and C.
Richard Chapman.
~~~
National Data
Bank for Rheumatic Diseases
(NDB)
Fibromyalgia Research
is conducting research into
factors that lead to the
development
of fibromyalgia. They need the
help of people with fibromyalgia
in researching this important
issue. For
more information go to
~~~
Other Support Groups in
Utah
for a list of other support
groups around the state.
These include patient-led and
professionally facilitated
groups.
~~~
Promote OFFER
You
can support OFFER and
promote awareness of FMS
and CFS,
by buying DVDs and CDs
of OFFER Conferences
and Education Meetings,
T-shirts, wrist bands,
or turtlejewelry -
a gentle reminder
that "slow and
steady wins the
race"
and we must learn to
pace - Order online
at:
Thank
you for your continuing
support!
~~~
See
OFFER's New Web Site
Visit OFFER's new web site at
http://www.offerutah.org.
~
See
our new online store where
we feature OFFER
educational DVD's and CD's of
our past conference and
education meetings,T-Shirts, and
turtle jewelry to remind
ourselves to pace. Don't forget
to order an "OFFER HOPE"
wristband, they are great to
remind us that to "OFFER
HOPE" to anyone needing
it is one of the most important
and meaningful things we can do.
Make it your personal mantra!
~
Check out the "Resource" section
for links to many informative
web sites, and for past issues
of E-News. Let us know
what you
think about the new site. We
welcome any suggestions and
hope to have more to OFFER in
the future!
~~~
Urgent
Call For Volunteers!
OFFER
is in need of volunteers who would
like to help in one or
more of the following areas:
-
-
Education Meeting,
sales, planning
speakers, publicizing,
information table,
running microphone,
operating camera
-
Data entry,
office/clerical/phones
-
Fundraising
-
Special event planning
and operating
(Rally/Walk October 7th,
2007 Conference
Planning, etc.)
-
DVD/CD production,
editing, and packaging
-
Distribution of
Brochures and DVD's
-
Website content review
and writing
-
Public service
announcements and
publicity
-
Writing reviews of
monthly education
meetings
-
Shopping, errands,
cleaning, driving,
cooking, etc., for
homebound individuals
If you have an interest in
doing any of these,
please call OFFER
at 328-8080
or send an email to
offerregistration@yahoo.com.
~~~
E-News
Subscriptions:
You must add
offerregistration@yahoo.com
to your address book or safe
list so that your E-news
does not get filtered as
spam.
You may unsubscribe at
anytime by clicking the link
at
the bottom of the E-news.
At no time will OFFER
ever sell or give your email
address or any other
personal information to
anyone.
~~~ ~~~
Arthritis Foundation
Programs
FIBROMYALGIA AND
ARTHRITIS
SELF-MANAGEMENT CLASSES:
The
Arthritis Management Program
can help you learn to manage
your condition on a
day-to-day basis. Trained
volunteers, many of whom
have Arthritis or
Fibromyalgia, lead the
courses. The program allows
you to share experiences
with others, offering you
the opportunity to both help
and learn from others.
~~~
Say "Know" to
Fibromyalgia Pain
Take the Arthritis
Foundation Self-Help
Program, designed for people
with Arthritis, Fibromyalgia
and related conditions, to
learn how to better manage
pain and stress, how to
effectively use relaxation
and sleep techniques, and
for information about
medications
and alternative therapies.
Call the Arthritis
Foundation at
801-536-0990/800-444-4993 or
look
online at
http://www.arthritis.org
~~~
FREE Community Arthritis
Classes
The Utah Arthritis
Program, the
Arthritis
Foundation, and
TOSH-The Orthopedic
Specialty Hospital
present a four-part
series on
osteoarthritis.
What will be covered?
-
An orthopedic surgeon will
present the latest in
medical and surgical options
related to osteoarthritis.
-
A physical therapist will
discuss exercise and
lifestyle management
options.
-
A nutritionist will talk
about important dietary
considerations.
-
A Utah Department of
Health/Arthritis Foundation
representative will share
information on local
arthritis classes and
resources.
LOCATION: TOSH-The
Orthopedic Specialty Hospital
(The building with the glass
pyramid on top)
5848 S. Fashion Blvd. (300
East) Murray, UT 84107
|
Please
note: the inclusion of information
in this newsletter does not
constitute or imply endorsement by
OFFER or the Arthritis Foundation
Utah/Idaho Chapter. Please consult
your medical care provider before
using any medication or therapy.
