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~~~
If we could see the miracle of a
single flower clearly, our whole
life would change.
author: Buddha
~~~
~~~
Pull me 'round
Push me to the limit
Maybe I may bend
But I know where I'm not goin'-
I will not be broken!
Bonnie Raitt lyrics
~~~
~~~
We can't solve problems by
using the same kind of thinking
we used when we created them.
Author: Albert Einstein
~~~
~~~
Never attribute to malice
what can easily
be explained
by ignorance.
Author: Harold S.Kuschner
from
How Good Do We Have to Be?
~~~
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OFFER Education Meetings:
the
first Wednesday of each month
at 7:00 p.m.,
and
are free and open to everyone.
Council Chambers, Salt Lake County Complex North
Building,
2001
South State Street, Salt Lake City, UT.
(Park
free at the northeast corner of the complex.)
~~~
July 5, 2006
Lucinda Bateman, M.D.,
OFFER
Executive Director, IACFS and CFIDS Board Member
“Select
Research Advances & Implications for
Treatment of Fibromyalgia and Chronic Fatigue Syndrome,
Part II”
~~~
August 2, 2006
Kathleen Light, Ph.D.
University
of Utah
“New
University of Utah Research
on
Sources of Chronic Fatigue and Pain”
To learn
about participating in the study “Exercise Effects on
Sensory Receptors and Cytokines in CFS and FM,” contact Dr.
Bateman at (801) 359-7400 or
support@fcclinic.com, or Dr. White at
andrea.white@health.utah.edu or (801) 573-5387.
To be
contacted when there are future studies, enroll in the
research registry at
http://offerutah.org/OFFERSurvey.htm
~~
September 6,
2006
Special Meeting for people who care about young people
who suffer with CFS/FM. Local officials will explain
504s, students' rights,
and
how schools can accommodate for their needs.
~~
Find
more information about upcoming meetings, see
~~
FEBRUARY AND MARCH EDUCATION MEETING
DVDs NOW
AVAILABLE
~
February, 2006:
"Postural Guidelines and Helpful Habits
to Minimize Body Stress"
by Dawn Duran,
PT, MHS, CSCS
from Canyon
Rim Physical Therapy
If you
missed February’s Meeting you missed learning
about
“the Rule of
Tongue,” Kegels for men and women, and other
bits of advice and helpful tips that anyone, no
matter what their health condition, can do –
from breathing correctly to stabilizing the
core.
~
March 2006: "Finding and
Evaluating Medical
and Self-Help Information"
by
Paul Shepherd, OFFER Board member, patient
advocate
With so
much conflicting information about CFS, FM, and
other conditions, it's hard to know what is
reliable. Paul offered help by assembling a
wealth of information about finding and
evaluating sources via the Internet and other
places, lists of good links, and
some important questions to ask.
~~~~~~~~~~~
LOCAL AWARENESS EVENTS
"Faces of CFS" a traveling photo exhibit,
will be visiting a few select US cities this year,
including ours!
Mark your
calendar to make sure you don't miss it:
OCTOBER 4-7
SALT
LAKE CITY MAIN LIBRARY, 3rd Floor
Other related
awareness activities:
-Oct. 4, 7
p.m. Kim McCleary, CFIDS CEO and the nation's top CFS
Advocate, speaks at Education Meeting
-Oct. 5, 7
p.m. free
film at
the SLC Main Library
-Oct. 7, 1
p.m. rally on East steps of City/County Building
then "Walk-a-Block" for CFS/FMS awareness,
followed by free films at 2 p.m. at the SLC Main
Library
~~~~~
IN THE NEWS LINKS:
~~~
"Guidance
for Fibromyalgia Patients
Who
are having Elective Surgery"
~~
~~~
CDC/CFIDS Campaign to
"Spark!" Public Awareness Update:
Look
for the full-page CFS ad in the July issues of
Ladies' Home Journal and
Better Homes and Gardens
~~~~~
INFO-LINKS
~~~
Pharmacotherapy for CFS
The most common prescription
and over the counter drugs, nutritional
supplements and herbal remedies that physicians are
using to treat their patients with CFS. From the
CFIDS organization: http://www.cfids.org/special/pharma.pdf
~~~
~~~
Young Adults Forum Section, Youth Chat
pediatric education packages for kids with cfs
~~~~~~~~~
Promote OFFER
Support
OFFER and promote awareness of FMS and CFS,
by
buying DVDs and CDs of OFFER Conferences and
Education Meetings, T-shirts, wrist bands, or turtle
jewelry -
a gentle reminder that "slow and steady wins the
race"
and we must learn
to pace. Order online at
Thank
you for your continuing support!
~~~~~~~~~
Participate in Future CFS or FM
Research!
Interested
in participating in future genetic or new research?
Just fill out the registration form at
and mail it to
OFFER
1002
E. South Temple, Suite 408
Salt Lake City, UT
84102
OFFER
will contact you when there's a study that may interest
you;
and
of course, you can choose whether or not to participate.
Your
information is kept confidential.
~~
"Does
a single 25-minute period of moderate exercise
have different effects on
people with CFS and FM?"
Researchers are seeking FM and CFS patients to volunteer
for a new study entitled, “Exercise Effects on Sensory
Receptors and Cytokines in CFS and FM.” The principal
investigator is Kathleen Light, Ph.D.,of the University
of Utah Anesthesiology Department.
The study is part of the University's new Program
for Research
on Mechanisms and Treatment of Chronic Fatigue and
Fibromyalgia Syndromes,co-directed by Alan Light and
C. Richard Chapman.
To learn about
the program's research plans, attend Dr.
Kathleen Light's talk at the Aug. 2 Education
Meeting.
For information about participating in the
exercise study, contact
~~~
National Data
Bank for Rheumatic Diseases (NDB)
Fibromyalgia Research
is
conducting research into factors that lead to the
development
of
fibromyalgia. They need the help of people with
fibromyalgia
in researching this
important issue. For more information
go to
~~~
Other
Support Groups in Utah
for a
list of other support groups around the state.
These
include patient-led and professionally facilitated
groups.
~~~
See OFFER's New Web Site
Visit
OFFER's new web site at
http://www.offerutah.org.
~
See our new online store where we
feature OFFER
educational DVD's & CD's of past conference & education
meetings,
T-Shirts, & handmade
turtle jewelry to remind ourselves to pace.
Don't forget to order an "OFFER HOPE"
wristband, they're great
to
remind us that to "OFFER HOPE" to
anyone needing it is one
of
the most important and meaningful things we can do.
Make
it your personal mantra!
~
Check
out the "Resource" section for links to many informative
web
sites, and for past issues of E-News.
Let us know what you
think about the new site. We welcome any suggestions
and
hope to have more to
OFFER in the future!
~~~
Urgent Call For Volunteers!
OFFER
is in need of volunteers who would like to help in one
ormore of the following areas:
-
Education Meeting: sales, planning speakers,
publicizing, information table, running microphone,
operating camera
-
Data entry, office/clerical /phones
-
Fundraising
-
Special event planning and operating (Rally/Walk
October 7, 2007 Conference Planning, etc.)
-
DVD/CD production, editing, and packaging
-
Distribution of Brochures and DVD's
-
Website content review and writing
-
Public service announcements and publicity
-
Writing reviews of monthly education meetings
-
Shopping, errands, cleaning, driving, cooking,
etc., for homebound individuals
~~~
E-News Subscriptions:
Feel free to forward this email to anyone who might
be interested. To start your subscription to this
free newsletter, send your request
to
offerregistration@yahoo.com
or fill out the online form
on our
website at this link
You may unsubscribe at anytime by clicking the
link at the bottom of the E-news. At no time
will OFFER ever sell or give your email address
or any other personal information to anyone.
~~~
Arthritis Foundation Programs
~
UT Arthritis Walk 2006 At Historic
Wheeler Farm
Date
changed to October 7, 2006 at 10:00 a.m.
Time to Walk the Walk!
The Arthritis Walk® is the Arthritis
Foundation’s annual nationwide event
that raises awareness and funds to fight
arthritis, the nation’s leading cause of
disability.
At the Event…
-Choose from a three-mile or one-mile
walk route
-Write an inspirational message on
the Wall of Heroes
-Wear a blue “hero” hat if you have
arthritis
-Enjoy the fun, festivities and free
health information
Once you register, you can set up
your own personal Web page and
begin fund raising. Raise $100 or
more and earn an official Arthritis
Walk® T-shirt.
~
FIBROMYALGIA AND ARTHRITIS
SELF-MANAGEMENT CLASSES:
The Arthritis Management Program can
help you learn to manage your condition
on a day-to-day basis. Trained
volunteers, many of whom have Arthritis
or Fibromyalgia, lead the courses. The
program allows you to share experiences
with others, offering you the
opportunity to both help and learn from
others.
~~~
Say "Know" to Fibromyalgia Pain
Take the Arthritis Foundation
Self-Help Program, designed for
people with Arthritis, Fibromyalgia
and related conditions, to learn how
to better manage pain and stress,
how to effectively use relaxation
and sleep techniques, and for
information about medications
and alternative therapies. Call the
Arthritis Foundation at
801-536-0990/800-444-4993 or look
on line at
http://www.arthritis.org
~
FREE
Community Arthritis Classes
The Utah Arthritis Program,
the Arthritis Foundation, and
TOSH- The Orthopedic Specialty Hospital present a
four-part series on osteoarthritis. What
will be covered?
• An orthopedic
surgeon will present the latest in medical and surgical
options related to osteoarthritis.
• A physical
therapist will discuss exercise and lifestyle management
options.
• A nutritionist will
talk about important dietary considerations.
• A Utah Department
of Health/Arthritis Foundation representative will share
information on local arthritis classes and resources.
Schedule,
*6:30-7:30 p.m.
LOCATION: TOSH-The Orthopedic Specialty
Hospital
(The
building with the glass pyramid on top)
5848
S. Fashion Blvd. (300 East) Murray, UT 84107
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Please
note: the inclusion of information in this newsletter does not
constitute or imply endorsement by OFFER or the Arthritis Foundation
Utah/Idaho Chapter. Please consult your medical care provider before
using any medication or therapy.