E-NEWS from OFFER
Organization for Fatigue & Fibromyalgia Education & Research
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In this Issue:
CFS/FM Education Meeting - July 7, 2004
Fibromyalgia Research Studies Update
In the News........
      Post traumatic Stress, Fibromyalgia Linked
      Weather Change Can Bring on Migraine
      Aquatic exercise: Gentle on your bones, joints and muscles
      Fibro Fit Tips
      Advocacy Alert: 06/23/2004
      One-Third of Adults Have Tried Alternatives
How can you help?
      Your recommendation for our Health Care Referral List
      Volunteer with OFFER
Arthritis Foundation's Quality of Life Programs
For more information: offerutah.org
Tell your friends!

 

CFS/FM EDUCATION MEETING
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
 
Wednesday, July 7, 2004, 7:00 PM
Speaker: Hugo Rodier, MD
Topic: "Latest Findings in Immunology and CFS"
Bring a guest and attend this month's free education meeting. 
 
FIBROMYALGIA RESEARCH STUDIES UPDATE
Dr. Lucinda Bateman is working with Radient Research on an exciting new research study for FM treatment.  Eight patients were accepted into the growth hormone study sponsored by Pfizer.  This will be a 2 week study.

Dr. Bateman has also been accepted to participate in another research study of the drug pregabalin.  Developed by Pfizer, pregabalin has been studied in extensive clinical programs worldwide. The company has completed pivotal studies to support the filing of a New Drug Application for pregabalin for the treatment of neuropathic pain and generalized anxiety disorder and as an add-on therapy for epilepsy.  Pregabalin has shown to provide improvement of pain, sleep, and fatigue levels in patients with fibromyalgia.  Enrollment for this local study will begin in September. Call Radient Research at 801-325-1000 for more information about this study.

 

IN THE NEWS:
Post traumatic Stress, Fibromyalgia Linked
<http://aolsvc.health.webmd.aol.com/content/Article/88/99964.htm>

 

Weather Change Can Bring on Migraine
But Headache Sufferers Don't Know Which Changes Affect Them
<http://aolsvc.health.webmd.aol.com/content/Article/88/99966.htm>

 

Aquatic exercise: Gentle on your bones, joints and muscles
Check out the slide show!
<http://www.mayoclinic.com/invoke.cfm?id=HQ01619>

 

Fibro Fit Tips
<http://www.arthritis.org/communities/Chapters/OhioRiverValley/FFT_070804.asp>

 

Advocacy Alert: 06/23/2004
Publication of this study was announced at Monday’s meeting of the Department of Health and Human Services CFS Advisory Committee. The CFIDS Association of America assisted CDC researchers respond to this reporter’s request to speak with individuals whose careers were impacted by CFIDS and provided additional background material. For more information about the economic study, including a link to the full manuscript, visit <http://www.cfids.org/advocacy/2004/c-act_06212004.asp>
K. Kimberly McCleary, President & CEO, The CFIDS Association of America

 

One-Third of Adults Have Tried Alternatives
<http://aolsvc.health.webmd.aol.com/content/Article/87/99640.htm>

 

HOW CAN YOU HELP?


YOUR RECOMMENDATION FOR OUR HEALTH CARE REFERRAL LIST
We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM.  If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.

 

WANT TO VOLUNTEER WITH OFFER?
Volunteers are needed for the following committees: Advocacy, Conference Planning, Education Meeting, Fundraising and Publicity, Research Development, and Volunteer Committee which includes office help and the call center. Contact Carol Arnzen at: offerregistration@yahoo.com <mailto:offerregistration@yahoo.com>

 

ARTHRITIS FOUNDATION'S QUALITY OF LIFE PROGRAMS:
OFFER is proud to work with The Utah/Idaho Chapter of the Arthritis Foundation to provide information and programs for individuals with fibromyalgia and chronic fatigue.

 

FM CONNECT is a free online resource for local information about fibromyalgia. It features articles by Utah and Idaho health care practitioners, researchers, and other fibromyalgia experts. There's also a calendar of events, including exercise and self-help programs. Check out FM CONNECT at the address below and signup for a free monthly email newsletter. 
www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62#FMS <http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62#FMS>

 

FIBROMYALGIA AND ARTHRITIS SELF- MANAGEMENT COURSES are six week courses to learn about pain management, nutrition, exercise, relaxation, medication & more. Seats are limited.  Register today by calling Victoria at 536-0990 or sign up online at www.arthritis.org <http://www.arthritis.org/> Course fee varies by location, includes text book and resource materials. Limited scholarships available based on need.

 

FIBROMYALGIA AQUATIC CLASS at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM.  Call 314-4046 for more info.

 

For more information and to register, contact the Arthritis Foundation at: <http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62> or call 801-536-0990 or 800-444-4993

 

FOR MORE INFORMATION ABOUT OFFER:
Visit our website:  www.offerutah.org <http://www.offerutah.org/>                                                                                                Check out our "Resource" section for links to many informative websites.

 

TELL YOUR FRIENDS:
Feel free to forward this email to anyone you think might be interested.  If you received this newsletter from a friend and would like to receive it monthly, send your request to offerregistration@yahoo.com <mailto:offerregistration@yahoo.com>