E-NEWS from  OFFER

Organization for Fatigue & Fibromyalgia Education & Research

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In this Issue:
CFS/FM Education Meeting - June 2, 2004
Conference Update- May 14-15, 2004
I Remember Me, a film by Kim A. Snyder-Order your DVD or VHS today
Fibromyalgia Research Study
In the News........
How can you help?
--Your recommendation for our Health Care Referral List
--Volunteer with OFFER
Arthritis Foundation's Quality of Life Programs
For more information: offerutah.org
Tell your friends!

CFS/FM EDUCATION MEETING
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
 
Wednesday, June 2, 2004, 7:00 PM
Speaker: Stuart Drescher, PhD and Cathryn Benton, LPC

Topic: "Unmasking Anger: What it teaches us about illness"

Bring a guest and attend this month's free education meeting.  
 

CFS/FM PROVIDER AND PATIENT CONFERENCES
Advances in Understanding & Treating CFS & FM
held May 14-15, 2004, in Salt Lake City, Utah was a wonderful success!  124 health care providers attended on the 14th and 400 patients attended on the 15th.  Although most that attended had either CFS or FM, there was an exciting energy in the conference workshops. We would like to thank everyone who attended and for their wonderful words of encouragement and praise for our event. 

Here's what some had to say.........I was impressed with the quality of the presentations and thoughtful way it was put together...The event was well organized, appropriate to the audience, and logistically well designed for CFS/FM patients....impressive presentations and cutting edge.....the resting rooms and massage therapists were very nice for people in pain....its always so good to know that the interest in this illness is growing. Please keep up the good work....great job, better than last years......absolutely fantastic conference!

I REMEMBER ME, a film by Kim Synder
This award winning film, available in both DVD and VHS, sold out during this year's conference. There is still time to order your copy by June 7th by contacting OFFER at 328-8080 or by email at offerregistration@yahoo.com <http://us.f520.mail.yahoo.com/ym/Compose?To=offerregistration@yahoo.com>. The cost is $23.00 which includes postage.

FIBROMYALGIA RESEARCH STUDY
Dr. Lucinda Bateman is working with Radiant Research on an exciting new research study for FM treatment.  If you are interested, call right away, as enrollment may be completed by the first week in June.  The number to call is 801-325-1000 for your initial screening. http://offerutah.org/request.jpg

IN THE NEWS:
Breast implants are not related to the development of fibromyalgia
http://www.arthritis.org/Resources/DisplayScreamingNews.asp?id=472

Study Shows Paroxetine (Paxil) Reduces Symptoms of Fibromyalgia
http://www.immunesupport.com/library/showarticle.cfm/ID/5650

Daxor Corporation Announces a Study by the University of Miami/Jackson Memorial Hospital of Chronic Fatigue Syndrome Using the BVA-100
http://aolsearch.aol.com/aol/redir?src=websearch&requestId=19d288358a7b0ed1&clickedItemRank=6&userQuery=Daxor+Corporation+%2B+Chronic+Fatigue+Syndrome&clickedItemURN=http%3A%2F%2Fwww.cfidsreport.com%2FNews%2Fdaxor.htm">

CFIDS.org Symposia Paper
http://www.cfids.org/cfidslink/symposia-paper.asp

HOW CAN YOU HELP?

Your recommendation for our Health Care Referral List                   We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM.  If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.

WANT TO VOLUNTEER WITH OFFER?
Volunteers are needed for the following committees: Advocacy, Conference Planning, Education Meeting, Fundraising and Publicity, Research Development, and Volunteer Committee which includes office help and the call center. Contact Carol Arnzen at:
offerregistration@yahoo.com <http://mail.yahoo.com/config/login?/ym/Compose?To=offerregistration@yahoo.com>

ARTHRITIS FOUNDATION’S QUALITY OF LIFE PROGRAMS: OFFER is proud to work with The Utah/Idaho Chapter of the Arthritis Foundation to provide information and programs for individuals with fibromyalgia and chronic fatigue. 

FM CONNECT is a free online resource for local information about fibromyalgia. It features articles by Utah and Idaho health care practitioners, researchers, and other fibromyalgia experts. There's also a calendar of events, including exercise and self-help programs. Check out FM CONNECT at the address below and signup for a free monthly email newsletter. 
http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62#FMS

FIBROMYALGIA AND ARTHRITIS SELF- MANAGEMENT COURSES are six week courses to learn about pain management, nutrition, exercise, relaxation, medication & more. Seats are limited.  Register today by calling Victoria at 536-0990 or sign up online at www.arthritis.org <http://www.arthritis.org/> Course fee varies by location, includes text book and resource materials. Limited scholarships available based on need.

Fibromyalgia Aquatic Class at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM.  Call 314-4046 for more info.

For more information and to register, contact the Arthritis Foundation at: http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62#Gift or call 801-536-0990 or 800-444-4993

FOR MORE INFORMATION ABOUT OFFER:
Visit our website: 
www.offerutah.org <http://www.offerutah.org/>                                                                                                Check out our "Resource" section for links to many informative websites.

TELL YOUR FRIENDS:
Feel free to forward this email to anyone you think might be interested.  If you received this newsletter from a friend and would like to receive it monthly, send your request to
offerregistration@yahoo.com <http://mail.yahoo.com/config/login?/ym/Compose?To=offerregistration@yahoo.com>