OFFER E-NEWS

June  2006 
 
SPONSORED BY
 THE ORGANIZATION FOR FATIGUE AND 
FIBROMYALGIA EDUCATION AND RESEARCH
 
AND THE ARTHRITIS FOUNDATION UTAH/IDAHO CHAPTER
 
~~~
The only gift is a portion of thyself.

Author:  Ralph Waldo Emerson
 
 
 
~~~
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
~~~
 
 
The more you lose yourself in
something bigger than yourself,
the more energy you will have.
 
Author:  Norman Vincent Peale
 
 
 
~~~
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
~~~
 
 
When you become detached mentally
from yourself and concentrate
on helping other people with their
difficulties, you will be able to cope
with your own more effectively.
Somehow, the act of self-giving is a
personal power-releasing factor.
 
Author:  Norman Vincent Peale 
 
~~~
 
 
 
 
 
 
 
 
 

 
  
 
 
 
 
 
 
 
 
 
~~~
 
 
"Fear less, hope more,
eat less, chew more;
whine less, breath more;
talk less, say more;
love more,
and all good things will be yours"   
 
Swedish Proverb
 
 
 
~~~
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
~~~
 
The greatest virtues are those which are most useful to other persons.
Author:  Aristotle
 
~~~
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
~~~
 
 
Believe, when you are most unhappy,
that there is something for you to do in
 the world. So long as you can sweeten another's pain, life is not in vain.
 
Author:  Helen Keller
 
 
 
~~~
 
 
 
 
~~~
 
 
 
 
Mantra
 
I am River.
You may place obstacles in my way,
but whether trickle or torrent, I will find a way to go under,
over, around or through, carving a new path as I go, leaving obstacles to be worn down to nothing more than someone else's worry stones. 
 
 
Terry Lone-Editor
 
~~~
         OFFER Education Meetings:
 OFFER's Education Meetings are the
first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone.
Park free at the Salt Lake County Complex North Building,
 2001 South State Street, Salt Lake City, UT.
 ~~~
June 7, 2006
Kay Koellner, PhD,  Psychotherapist, Salt Lake City
    “Cognitive-Behavioral Aspects of Chronic Illness” 
~~~ 
July 5, 2006 
  Lucinda Bateman MD  OFFER Executive Director,    
    “Select Research Advances and Implications for Fibromyalgia and Chronic Fatigue Syndrome Treatment”
 ~~~
See upcoming meeting topics on our new website at
 http://offerutah.org/MEETINGS.html
  
~~~~~~~~~~~
IN THE NEWS LINKS:
 ~~~
 ~~~
More on FIbromyalgia-Targeted Advertising
 ~~~
ProHealth Founder Part of $4 Million
National Awareness Campaign
 ~~~
Dr. Richard Podell:
Fibromyalgia, Chronic Fatigue Syndrome,
and Disability Evaluation
 http://www.immunesupport.com/library/ showarticle.cfm/ID/7039/T/CFIDS_FM/searchtext/podell
~~~
"But You Don’t Look Sick"
 This article was written by someone
with Lupus but the CFS/FM reader is sure to identify with the
story.  Please use the link below to read this article.
 
~~~
CFS Public Awareness Campaign:
 ~~~ ~~~ ~~~
 
Info-Links
~~~
Pharmacotherapy for CFS
Pharmacological Treatments for CFS from the CFIDS Organization. The most common
  prescription and over the counter drugs, nutritional supplements and herbal remedies that physicians are using to treat their patients with CFS http://www.cfids.org/special/pharma.pdf
~~~
 
Prescription Drug Assistance Programs   www.pparx.org
~~~
 
Adults Forum Section, Youth Chat
 pediatric education packages for kids with cfs
~~~~~~~~~
 
Promote OFFER
 You can support OFFER and promote awareness of FMS and CFS,
 by buying recordings of OFFER Conference and Education Meeting sessions, T-shirts, wrist bands, or turtle jewelry -
a gentle reminder that "slow and steady wins the race"
and we must learn to pace -
 
  Thank you for your continuing support! 

 
~~~~~~~~~
 
 
 
Participate in Future CFS or FM  Research! 
 
 Interested in participating in future genetic or new research?
Just fill out the registration form at 
and mail it to OFFER 
 1002 E. South Temple, Suite 408
Salt Lake City, UT 84102
  OFFER will contact you when there's a study that may interest
you; and of course, you can choose whether or not to participate.
Your information is kept confidential. 
  
~~~
 
National Data Bank for Rheumatic Diseases (NDB)
Fibromyalgia Research
is conducting research into factors that lead to the development
of fibromyalgia. They need the help of people with fibromyalgia
in researching this important issue.  For more information go to 
Have a Great Physician or Health Care Provider?
 We need your help in expanding OFFER's list of health care
professionals who treat FMS and CFS. If you are a patient and
would like to recommend someone, please email us at offerregistration@yahoo.com
giving the practitioner's name, title, address, and phone number,
along with a brief description of how that person helped you.
OFFER will contact the practitioners to ensure they are willing to
be included on the referral list.
Interested practitioners also are invited to contact OFFER at offerregistration@yahoo.com.
The referral list is on line at http://offerutah.org/Doctors.htm 
                            
~~~
Other Support Groups in Utah
for a list of other support groups around the state.
These include patient-led and professionally facilitated groups.
To suggest a group for this list, please contact OFFER at offerregistration@yahoo.com 
~~~

See OFFER's New Web Site
 
Visit OFFER's new web site at http://www.offerutah.org
 
See our new online store where we feature OFFER educational DVD's
and CD's of our past conference and education meeting talks, Tee Shirts, & turtle jewelry to remind ourselves to pace.
 Don't forget to order an "OFFER HOPE" wristband, they are great
to remind us that to "OFFER HOPE" to anyone needing it is one
of the most important and meaningful things we can do.  Make
it your personal mantra!
 
Check out the "Resource" section for links to many informative
web sites, and for past issues of E-News.  Let us know what you
 think about the new site.  We welcome any suggestions and
hope to have more to OFFER in the future!
 
~~~ 
 
Urgent Call For Volunteers!
 
 OFFER is in need of volunteers who would like to help in one or
more of the following areas:     
  • Education Meeting, sales, attendance, running microphone, operating camera  
  • Data entry, office/clerical /phones   
  • DVD production and editing   
  • Distribution of Brochures and DVD's
  • Website content review and writing 
  • Public service announcements and publicity  
  • Writing reviews of monthly education meetings

    Shopping, cleaning, driving, cooking, etc., for homebound individuals 

    If you have an interest in doing any of these, please call OFFER at

    328-8080 or send an email to offerregistration@yahoo.com.
               

    ~~~
      
    E-News Subscriptions:

    Feel free to forward this email to anyone who might be interested. To start  your subscription to this free newsletter, send your request to offerregistration@yahoo.com, or fill out the online form on our website at this link

    http://offerutah.org/enewssignup.htm

    You must add offerregistration@yahoo.com to your address book or safe list so that your E-news does not get filtered as spam. 

    You may unsubscribe at anytime by clicking the link at the bottom of the E-news.  At no time will OFFER ever sell or give your email address or any other personal information to anyone. 
     

    ~~~ ~~~ ~~~

    Arthritis Foundation Programs

    UT Arthritis Walk 2006 At Historic Wheeler Farm
    July 8, 2006 at 10:00 AM 
     
    Time to Walk the Walk!

    The Arthritis Walk® is the Arthritis Foundation’s annual nationwide event that raises awareness and funds to fight arthritis, the nation’s leading cause of disability. It is a tremendous opportunity to help improve the lives of 66 million men, women and children with arthritis or chronic joint symptoms. Get your company involved or recruit friends and family members to form a team. Best of all, walk in honor of a loved one with arthritis and know you’re making a difference by raising funds to support Arthritis Foundation research, public health and public policy efforts to improve the lives of people with arthritis.

    At the Event…
    Choose from a three-mile or one-mile walk route

    Write an inspirational message on the Wall of Heroes

    Wear a blue “hero” hat if you have arthritis

    Enjoy the fun, festivities and free health information

    Register on line at http://www.arthritis.org  

    Register online today! Once you register, you can set up your own personal Web page and begin fund raising. Raise $100 or more and earn an official Arthritis Walk® T-shirt.

    FIBROMYALGIA AND ARTHRITIS SELF-MANAGEMENT CLASSES:
     The Arthritis Management Program can help you learn to manage
    your condition on a day-to-day basis. Trained volunteers, many of whom have Arthritis or Fibromyalgia, lead the courses. The program allows you to share experiences with others, offering you the opportunity to both help and learn from others.

    ~~~
    Say "Know" to Fibromyalgia Pain Take the Arthritis Foundation Self-Help Program, designed for people with Arthritis, Fibromyalgia and related conditions, to learn how to better manage pain and stress, how to effectively use relaxation and sleep techniques, and for information about medications and alternative therapies.

     Call the Arthritis Foundation at 801-536-0990/800-444-4993 or on line at http://www.arthritis.org 

      FREE Community Arthritis Classes
    The Utah Arthritis Program, the Arthritis Foundation, and TOSH-The Orthopedic Specialty Hospital present a four-part series on osteoarthritis.

     What will be covered?

     
    • An orthopedic surgeon will present the latest in medical and surgical options related to osteoarthritis.
    • A physical therapist will discuss exercise and lifestyle management options.
    • A nutritionist will talk about important dietary considerations.
    • A Utah Department of Health/Arthritis Foundation representative will share information on local arthritis classes and resources.
     
     
Schedule, *6:30-7:30 p.m. LOCATION: TOSH-The Orthopedic Specialty Hospital
(The building with the glass pyramid on top)
5848 S. Fashion Blvd. (300 East)  Murray, UT 84107
For more information, call 538-9340, or visit www.health.utah.gov/arthritis

Please note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.



 
This message was sent from OFFER UTAH. It was sent from: OFFER (Organization for Fatigue & Fibromyalgia Education and Research, 1002 E South Temple, Salt Lake City, UT 84102. You can modify/update your subscription via the link below. Email Marketing Software

 

 
To be removed click here