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OFFER E-NEWS
MAY 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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OFFER E-NEWS
MAY 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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QUICK LINKS
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Think of the
beauty still
left around you
and be
happy.
-Anne Frank
~~
Disability does not
mean
Inability
-Anonymous
~~
Picture taken by PWCFIDS
Frankie Nilsen
"Hope" is the thing with
feathers-
That perches in the soul-- And sings the tune without the
words-
And never stops--at all--
Emily Dickinson
Life is what happens while you
are waiting for a cure.
-Arlene Vermaak
Adversity has
the effect of
eliciting
talents
which in prosperous
circumstances
would have lain dormant. -Horace
Most of the
important
things in the
world have
been
accomplished by
people who
have kept on
trying when
there seemed
to be no
hope at all.
Dale Carnegie
" Do your little bit of good where
you are; it's those little bits
of good
put together that overwhelm the
world."
Archbishop Desmond Tutu
You give
but little when you
give of
your possessions. It is
when you
give of yourself that
you truly
give. - Kahlil Gibran
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OFFER
Education Meetings:
OFFER's
Education Meetings are the
first Wednesday of each month at 7:00
p.m.,
and are free
and open to everyone.
Park free at
the Salt Lake County Complex North Building,
2001 South
State Street, Salt Lake City, UT.
~~~ May 3, 2006 "Fibromyalgia Update" N. Lee Smith, M.D., OFFER Board Member
Internist,
HealthSouth
June
7, 2006
Kay Koellner, PhD, Psychotherapist, Salt Lake City “Cognitive-Behavioral Aspects of Chronic Illness” ~~~
BREAKING NEWS!
NEW BREAKTHROUGHS IN CFS RESEARCH! "Chronic Fatigue's Genetic Component: CDC Study Clarifies Predisposition to CFS Syndrome" http://www.washingtonpost.com/wp-dyn/content/article/2006/04/20/ AR2006042001869_pf.html
~~~~
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CDC’s Large-Scale
Study of Chronic Fatigue
Syndrome Points to Underlying Factors, Illness Subtypes http://www.cfids.org/advocacy/2006/pharma.pdf
Collaborative
Study: Chronic Fatigue Syndrome –
Research
Report Summaries
View the summaries for the 14 studies just released on CFS that are making headlines! Go to this link, and click on Summary under each
study you
are interested in, summaries are free,
the
rest is not.
http://www.futuremedicine.com/toc/pgs/7/3?cookieSet=1
~~~~
Press Briefing on
Chronic Fatigue Syndrome
http://www.cdc.gov/od/oc/media/transcripts/t060420.htm
~~~
~~~~~~~~
May 12th is
International
CFIDS/ME Awareness Day:
Tell Congress That You Are Concerned About CFIDS
http://www.cfids.org/advocacy/awareness-day.asp
...Please consider joining us for this year's event. We recognize that for many people affected by CFIDS, limitations imposed by health, strained finances and other responsibilities make it impossible to consider traveling to Washington, D.C., so we are extremely grateful for the efforts and sacrifice that participants make to take part in this experience. As the date approaches, we'll have a "virtual lobby day" through CFIDS Link and our Grassroots Action Center http://capwiz.com/cfids/home enabling those who can't be with us in Washington to augment the impact of what advocates are able to accomplish in person
on
Capitol Hill.
~~~~~
National
Fibromyalgia Association
Awareness Day 2006 Campaign May 12, 2006 "But You Dont Look Sick! The Invisible Pain of Fibromyalgia" http://www.fmaware.org/may12.htm
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and Education
Meeting sessions.
Another
way to help is by buying turtle jewelry --
a gentle
reminder that "slow and steady wins the race"
and we
must learn to pace -- available at
Thank you for your continuing support!
~~~~~~~~~~~~
Participate in Future
CFS or FM Research!
Interested in
participating in future genetic or new research?
and
mail it to OFFER
1002 E.
South Temple, Suite 408
Salt
Lake City, UT 84102
OFFER will
contact you when there's a study that may interest
you;
and of
course, you can choose whether or not to participate.
Your
information is kept confidential.
is
conducting research into factors that lead to the development of
fibromyalgia. They need the help of people with fibromyalgia in
researching this important issue. For more
information go to
Have a Great Physician or Health Care Provider?
We need your help in expanding OFFER's
list of health care professionals who treat FMS and CFS. If you
are a patient and would like to recommend someone, please email
us at
offerregistration@yahoo.com
giving the
practitioner's name, title, address, and phone number,
along with a
brief description of how that person helped you.
OFFER will
contact the practitioners to ensure they are willing to
be included
on the referral list.
Interested
practitioners also are invited to contact OFFER at
offerregistration@yahoo.com.
for a list of
other support groups around the state.
These include
patient-led and professionally facilitated groups.
To suggest a
group for this list, please contact OFFER at
offerregistration@yahoo.com
hope to
have more to OFFER in the future!
URGENT CALL FOR VOLUNTEERS
OFFER
is in need of volunteers who would like to help in one or more
of the following areas:
~~
Say
"Know" to Fibromyalgia Pain
Take the
Arthritis Foundation Self-Help Program, designed for people with
Arthritis, Fibromyalgia and related conditions, to learn how to
better manage pain and stress, how to effectively use relaxation
and sleep
techniques, and for information about medications
and
alternative therapies.
SPRING
SPECIAL: Class tuition & textbook is $30.
Mention this
coupon to receive the textbook
for
FREE ($15 value).
Pre-registration is required as seats are limited.
Call the
Arthritis Foundation at 801-536-0990/800-444-4993 or
on line
at
http://www.arthritis.org
Pick
the date and location that work best for you and sign up today:
SANDY
May 1
through June 12, Mondays, 1-3 P.M.
Sandy
Senior Center
9310 South
1300 East
ST.GEORGE
May
2006 (call about dates/time)
Dixie Regional Hospital
1380
East Medical Center Drive, (River Rd. Campus)
MURRAY
May 2006 (call about dates/time)
TOSH, The Orthopedic Specialty Hospital 5848 South Fashion Blvd. (300 East)
CEDAR
CITY
June 7-July 12, Wednesdays, 1-3 P.M.
Cedar City Senior Center,
489
East 200 South
~~~
The Utah Arthritis Program, the
Arthritis Foundation, and TOSH-The Orthopedic Specialty
Hospital present a four-part series on osteoarthritis.
• An
orthopedic surgeon will present the latest in medical and
surgical options related to osteoarthritis.
• A physical therapist will discuss exercise and lifestyle management options. • A nutritionist will talk about important dietary considerations. • A Utah Department of Health/Arthritis Foundation representative will share information on local arthritis classes and resources. Tuesday, May 2- Arthritis of the hand Wednesday, May 3- Arthritis of the hip Thursday, May 4- Arthritis of the foot/ankle
(The building
with the glass pyramid on top)
5848 S.
Fashion Blvd. (300 East) Murray, UT 84107
For more
information, call 538-9340, or visit
www.health.utah.gov/arthritis
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Please
note: the inclusion of information in this newsletter does not
constitute or imply endorsement by OFFER or the Arthritis Foundation
Utah/Idaho Chapter. Please consult your medical care provider before
using any medication or therapy.