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OFFER E-NEWS
October 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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OFFER E-NEWS
October 2006
SPONSORED
BY
THE
ORGANIZATION FOR FATIGUE AND
FIBROMYALGIA EDUCATION AND RESEARCH
AND THE
ARTHRITIS FOUNDATION
UTAH/IDAHO CHAPTER
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QUICK LINKS
~~~
"The
successful man will profit from his mistakes and try again in a
different way."
Author: Dale Carnegie
~~~
~~~
"The starting
point of all achievement is desire. Keep this constantly in
mind. Weak desires bring weak results, just as a small amount of
fire makes a small amount of heat."
Author: Napoleon Hill
~~~
~~~
"Ask yourself a
question:
Is my attitude worth
catching?"
Author:
Zig Ziglar
~~~
~~~
"Make
no little plans; they have no magic to stir men's blood.
Make big plans, aim high in
hope
and work."
Author: Daniel H. Burnham
~~~
"The
ideals which have lighted my way, and time after time have
given me new courage to face life cheerfully, have been
Kindness, Beauty, and Truth. The trite subjects of human
efforts, possessions, outward success, luxury have always
seemed to be contemptible."
Author: Albert Einstein
~~~
~~~
it is a habit."
Author: Aristotle
~~~
~~~
"When solving problem, dig at the roots instead of
just hacking at the leaves."
Author: Anthony
J. D'Angelo
~~~
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Local Awareness October Events
"Faces of CFS" a
traveling photo exhibit sponsored by the Center for
Disease Control and Prevention and the
CFIDS Association of America, will be visiting Salt
Lake City this month! Mark your calendar to make sure you
don't miss it:
OCTOBER 4th - 7 th
SALT LAKE CITY MAIN LIBRARY,
3rd FLOOR Gallery
Other related OFFER coordinated awareness
activities:
Oct. 4th - 7:00 p.m. Kimberly McCleary,
president & CEO of the
CFIDS Association of America, and the
nation's top CFS Advocate, will speak
at the monthly OFFER Education Meeting
at the Salt Lake County Complex North Building Council
Chambers (
Oct. 5th - 7:00 p.m. Documentary films
about CFS and FM at
the SLC Main Library at 210 East 400 South.
Oct. 7th - 1:00 p.m. CFS/FM Rally
on East steps of City/County Building (200 East 450
South) then
"Walk-a-Block"
for CFS/FMS awareness
to SLC Main Library (across the street),
followed by documentary films about
CFS and FM at 2 p.m.
at the SLC Main Library.
All of these October events are free and
open to the public. Please invite
anyone with Chronic Fatigue Syndrome or Fibromyalgia, and
caregivers, advocates, family, friends and health care
professionals that you know to attend the Wednesday night
and Saturday events to raise awareness in the community at
large. Over 100,000 people in
OFFER will have information tables and tables with
educational DVDs, t-shirts, wristbands, and water bottles
for sale 30 minutes prior to each event, so plan to come
early.
Lets make the Rally and Walk fun! Wear your OFFER shirts
or
make your own. Make posters, decorate wheel chairs,
strollers, etc. Parking on the street is free on
Saturdays, but you can only stay in a parking space for
the time the meter specifies (two hours, one hour, or
fifteen minutes). If you are in a two hour space you
would need to move to another space after two hours.
There is underground parking at the City Library. The
entrance is on 400 South. The first half hour is free.
Each additional half hour is $.75.
~~~~~~~~
OFFER 2007 Conference:
OFFER's 2007
Provider and Patient Conferences have been scheduled. The
Provider Conference is set for all day
Friday, May 4th and Saturday morning May 5th, 2007. The
Patient Conference is set for the
afternoon of Saturday, May 5th, 2007. Please go to the
following link on OFFER's website to see the details regarding
the Provider Conference. If you are a person with CFS or
Fibromyalgia and would like your medical providers to attend
this groundbreaking conference, you can print the flyer and, if
you like, the actual speaker list that is on our website and
give them to your providers so they can pencil in the dates.
Medical providers plan their schedules months in advance, so the
sooner you get this information to your providers the better
chance that they can attend.
The link is:
http://www.offerutah.org/Conference.html
~~~
OFFER
Education Meetings
OFFER's
Education Meetings are the
first Wednesday of each month at 7:00
p.m.,
and are free
and open to everyone.
Council
Chambers, Salt Lake Country Complex North Building
2001 South
State Street, Salt Lake City, UT.
(Park free at
the northeast corner of the complex)
~~~
October 4, 2006
Kim McCleary
President,
CFIDS Association of America
"Advocacy:
Working to Conquer Fatigue and Immune
Dysfunction
Syndrome"
~~~
November 1, 2006
James
Overall, M.D.
President,
Integrative Health Network
"Integrative
Health Approaches"
Find more
information about upcoming meetings at
~~~~~~~~~~~
FEBRUARY AND
MARCH EDUCATION MEETING
DVDs NOW
AVAILABLE
~
February,
2006: "Postural Guidelines and Helpful Habits to Minimize Body
Stress"
by Dawn
Duran, PT, MHS, CSCS from Canyon Rim Physical Therapy
If you missed
February's meeting, you missed learning about "the Rule of
Tongue," Kegels for men and women, and other bits of advice and
helpful tips that anyone, no matter what their health condition,
can do - from breathing correctly to stabilizing the core.
~
March
2006: "Finding and Evaluating Medical and Self-Help Information
by Paul
Shepherd, OFFER Board member, patient advocate
With so much
conflicting information about CFS, FM, and other conditions,
it's hard to know what is reliable. Paul offered help by
assembling a wealth of information about finding and evaluating
sources via the Internet and other places, lists of good links,
and some important questions to ask.
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IN THE NEWS LINKS:
CFS: New insights,
new hope - Chronic Fatigue Syndrome
Click on the link below to view the September article in
UTAH Health Magazine authored by Kim McCleary, President and
CEO of CFIDS Association of America:
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Fibromyalgia Fit Tips
Click on the link below to learn the latest Fibro Fit Tips:
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Minneapolis Mall of America CFS Exhibit
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Minnesota Public Radio CFS Program
The following link takes you directly to the Minnesota Public
Radio
CFS program direct link in their archives, in case you missed
the live show on August 9th.
Guests of host Kerri Miller are:
William Reaves, MD: Principal investigator of
chronic fatigue syndrome for the Centers for Disease Control and
Prevention
Alan Kind, MD: Retired physician who formerly
worked with
Park Nicollet clinic.
Laura Hillenbrand: Author of "Seabiscuit:
An American Legend." She has suffered from chronic fatigue
syndrome since she was 19.
~~~
Participate in FM and CFS Research from your Home
If you would like to contribute to a global fact
bank on people with serious chronic illness, click on the link
below. The purpose of the survey is to pinpoint the factors
that distinguish those patients who achieve better health and
recovery. The "Niagara Health Study," conducted by Canada's
Brock University, is gathering the raw data via an online
"no-names-involved" survey. A report on the data and findings
from this worldwide study will be reported by mid-2007.
~~~
CDC/CFIDS Campaign to:
"Spark!" Public Awareness Update
Look for the
full-page CFS ad in the July issues of
Ladies'
Home Journal and
Better
Homes and Gardens
~~~ ~~~
INFO-LINKS
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Pharmacotherapy for CFS
The most
common prescription and over-the-counter drugs, nutritional
supplements and herbal remedies that physicians are using to
treat their patients with CFS, From the CFIDS organization:
http://www.cfids.org/special/pharma.pdf
~~~
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Young Adults Forum Section, Youth Chat
pediatric education packages for kids with cfs
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Mayo
Clinic's Health Symptom Checker
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How
to Talk to your Health Care Provider
~~~~~~~~~
Promote OFFER
You
can support OFFER and promote awareness of FMS and CFS,
by buying
DVDs and CDs of OFFER Conferences and Education Meetings,
T-shirts, wrist bands, or turtle jewelry -
a gentle reminder that "slow and steady wins the race"
and we must learn to pace - Order online at:
Thank you for your continuing support!
~~~~~~~~~
Participate in Future CFS or FM Research!
Interested in
participating in future genetic or new research?
and
mail it to OFFER
1002 E.
South Temple, Suite 408
Salt
Lake City, UT 84102
OFFER will
contact you when there's a study that may interest
you;
and of
course, you can choose whether or not to participate.
Your
information is kept confidential.
~~~
Meditation for Fibromyalgia
Would you
like to participate in a research study on whether
mindfulness meditation can help relieve Fibromyalgia
symptoms?
To
qualify to participate, you need to be:
Female
and at least 18 years old
Have a
Fibromyalgia diagnosis from a physician
Be
relatively healthy, other than Fibromyalgia
Be able
to access the Internet from home
For
information about participating in the meditation study,
immediately call (801) 585-7690.
~~~
"Does a single 25-minute period of moderate exercise have
different effects on people with CFS and FM?"
Researchers
are seeking FM and CFS patients to volunteer for a new study
entitled, "Exercise Effects on Sensory Receptors and Cytokines
in CFS and FM." The principal investigator is Kathleen Light,
Ph.D., of the University of Utah Anesthesiology Department. The
study is part of the University's new Program for Research on
Mechanisms and Treatment of Chronic Fatigue and Fibromyalgia
Syndromes, co-directed by Alan Light and C. Richard Chapman.
For
information about participating in the exercise study, contact
Dr. Lucinda Bateman at
support@fcclinic.com
or (801) 359-7400, or Dr. Andrea White at
andrea.white@health.utah.edu
or (801) 573-5387.
~~~
National Data Bank for
Rheumatic Diseases (NDB)
Fibromyalgia Research
is conducting
research into factors that lead to the development
of
fibromyalgia. They need the help of people with fibromyalgia
in
researching this important issue. For more
information go to
Other Support
Groups in Utah
for a list of
other support groups around the state.
These include
patient-led and professionally facilitated groups.
To suggest a
group for this list, please contact OFFER at
offerregistration@yahoo.com
~~~
See OFFER's New Web Site
~
See our new online store where we
feature OFFER
educational DVD's and CD's of our past conference and education
meetings-Shirts, and turtle jewelry to remind ourselves to
pace. Don't forget to order an "OFFER HOPE"
wristband, they are great to remind us that to "OFFER
HOPE" to anyone needing it is one of the most important
and meaningful things we can do. Make it your personal mantra!
~
Check out the
"Resource" section for links to many informative
web sites,
and for past issues of E-News. Let us know what you
think about
the new site. We welcome any suggestions and
hope to
have more to OFFER in the future!
~~~
Urgent Call For Volunteers!
more of the
following areas:
~~~
FREE
Community Arthritis Classes
The Utah Arthritis Program,
the Arthritis Foundation, and TOSH-The Orthopedic
Specialty Hospital present a four-part series on
osteoarthritis.
? An
orthopedic surgeon will present the latest in medical and
surgical options related to osteoarthritis.
? A physical therapist will discuss exercise and lifestyle management options. ? A nutritionist will talk about important dietary considerations. ? A Utah Department of Health/Arthritis Foundation representative will share information on local arthritis classes and resources.
Schedule, *6:30-7:30 p.m.
LOCATION:
TOSH-The Orthopedic Specialty Hospital
(The building
with the glass pyramid on top)
5848 S.
Fashion Blvd. (300 East) Murray, UT 84107
For more
information, call 538-9340, or visit
www.health.utah.gov/arthritis
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