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OFFER EDUCATION MEETING: October Schedule Change
"ME/CFS and FM: Research and Awareness in 2011"
by Lucinda Bateman, M.D.
Wednesday, October 5, 2011 at 7:00 p.m.
Dr. Bateman, the founder of OFFER, is one of a handful of internationally recognized experts in this field and will discuss the recently published new groundbreaking
ME International Consensus Criteria (ICC).
Location:
Salt Lake County Complex, North Building, 2001 S. State Street, SLC, UT.
Park in the northeast corner of the complex.
To view the remaining 2011 Education Meeting Schedule, click here.
OFFER VOLUNTEERS INTERVIEWED ON "UTAH ISSUES" RADIO PROGRAM
You can listen to the taped recording of "Utah Issues." The program was taped on September 15, 2011 on X96 to discuss ME/CFS and Fibromyalgia. OFFER was represented by Loren Lambert, JD and Angela Linford.
Hosted by: Bill Allred from X96
YOU ARE NOT ALONE
JOIN THE OFFER YOUNG ADULT SUPPORT GROUP FOR CFS/FM
A bi-monthly casual and positive gathering of friends and family 18 and older who are living with these life-challenging illnesses.
Every 3rd Friday of odd-numbered months (i.e. January, March, May, etc.) Location rotates among members.
Please feel free to contact me with any question/comments/suggestions or to host an event.
OFFER'S NEW BLOG: LINDA'S CORNER:
OFFERUtah.org has a blog with great ideas for dealing with ME/CFS and Fibromyalgia. Visit and share. We WANT your comments and ideas if a post strikes a chord with you. Let's get a conversation going.
It's true, making health-related goals can pull us forward to a better place. But if goals lack this one thing, they will probably fail. Drop by Linda's Corner and find out how to set a goal and raise the odds you will achieve it.
To stay up-to-date on health management tips as well as what's happening in the ME/CFS & Fibromyalgia world, go to Linda's Corner on OFFER's home page under "What's New." http://www.offerutah.org/lindascorner/
OFFERUtah.org Support Board!
The Offer Support Board has been revamped with entirely new and very gifted management and is gaining popularity. Go to the OFFER website and click on "Support Group" or go to: www.offerutah.org/supportboard/index.php. This is a great place to learn more information and join in on the discussion.
OFFER'S Facebook Site is Now Available!
OFFER Utah has a Facebook site. Go to: http://www.facebook.com/pages/OFFER-Utah/110674102285101 to view the Facebook page and join as a friend. This is a great place to check for announcements about upcoming Education meetings.
OFFER'S YouTube Site is Now Available!
OFFER'S Twitter is Now Available!
"The most wasted of all days is that on which one has not laughed."
Author: Nicolas Chamfort
TRANSFORMING CFS RESEARACH
(video presentation with slides)
By Suzanne D. Vernon, PhD
Scientific Director, CFIDS Association of America
Stockholm, Sweden Seminar on ME/CFS
August 24, 2011
Go to: http://www.rme.nu/sites/rme.nu/files/s_vernon-cfids.pdf
Scientists Retreat on Chronic-Fatigue Theory
by Amy Dockser Marcus
September 23, 2011
The Wall Street Journal
The partial retraction was published online in Science Magazine on 9/21/2011
Live Chat: Chronic Fatigue Syndrome - Science and Controversy
hosted by Martin Enserink on 21 September 2011
The Relation between Vitamin D Deficiency and Fibromyalgia Syndrome in Women -
Source: Saud Medical Journal, Sep 2011
ProHealth.com
by M H Matthana
September 9, 2011
Underfunding of Fibromyalgia & Chronic Fatigue Syndrome Research
By Adrienne Dellwo
About.com Guide
February 9, 2011
How Much Research is Being Done on Fibromyalgia & Chronic Fatigue Syndrome?
By Adrienne Dellwo
About.com Guide
September 5, 2011
Go to: http://chronicfatigue.about.com/b/2011/09/05/how-much-research-is-being-done-on-fibromyalgia-chronic-fatigue-syndrome.htm
Cracking The Conundrum of Chronic Fatigue Syndrome
(with comments by Lucinda Bateman, MD)
September 5, 2011
by Patti Neighmond
NPR: YOUR HEALTH (blog and radio broadcast)
Dr. Lapp on CFS versus FM: Twins, Cousins, or Just Acquaintances?
ProHealth.com
by Charles W. Lapp, MD
September 6, 2011
Large Candidate Gene Association Study Reveals Genetic Risk Factors and Therapeutic Targets for Fibromyalgia
Arthritis & Rheumatism
September 8, 2011
American College of Rheumatology
Applying Venture Philanthropy to Chronic Fatigue Syndrome
by Amy Dockser Marcus
September 23, 2011
The Wall Street Journal
"There is no chance, no destiny, no fate, that can hinder or control the firm resolve of a determined soul."
Author: Ella Wheeler Wilcox
CURRENT PATIENT STUDIES
Fatigue Consultation Clinic
Dr. Bateman's Research Team continues to seek research participants. They are currently enrolling in 3 drug studies for adolescents with FM, one drug study for adults with FM, and a number of biomarker studies for patients with CFS. The link to the FCC Research Department page is: http://www.fcclinic.com/researchdept.htm.
Fibromyalgia Clinical Trial for Patients
The Fibromyalgia Research Team at the University of Utah School of Medicine's Pain Research Center is beginning a new clinical trial on Fibromyalgia patients. We are currently recruiting participants for a nutrition and weight management study.
The Fibromyalgia Research Team has been awarded a National Institutes of Health grant to provide nutrition and coping education for symptom and weight management for overweight or obese Fibromyalgia patients. We are recruiting participants who have been diagnosed with Fibromyalgia syndrome, are between the ages of 21 and 65, and have a Body Mass Index of at least 25. Eligible patients will undergo pre and post treatment evaluations and will receive 12 weeks of treatment at the University of Utah Pain Research Center. The treatment will be in a group format and will be provided at no cost.
If you have any questions or would like additional information about this study please do not hesitate to contact Mark Herrera at (801) 585-7692.
"Better to have spent a life reaching for a dream that never came true, than to have slept through a life that never had a dream."
Author: Samantha Pickreign
INFO LINKS
State of the Knowledge Workshop on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) Research Report now available
NIH Pain Consortium/National Institutes of Health
"Creating Stress Resilience: How Spiritual Well-being Reduces Pain and Suffering" presents truly remarkable and potentially life-altering insights into creating stress resilience for anyone who is not aware of the latest research based principles and practices.
By N. Lee Smith, M.D. - VIDEO
"Teaching an Old Dog New Tricks"
By Linda Milne
Linda's Corner blog
Smooth Moves: Eight Tips for Moving
By Carole Jean
CFIDS & Fibromyalgia Self-Help
September 2010 OFFER Conference presentations for healthcare providers and patients are available on the OFFER website. The website allows visitors free access to all of the presentations. The information is located in the "What's New" box on the home page with a link to the healthcare provider's videos and a link to the patient conference videos. Anyone can access either session of the conference.
To access the presentations, click here: http://www.offerutah.org/conferences.htm
Lucinda Bateman, M.D., at the Fatigue Consultation Clinic in Salt Lake City, is currently giving new patient priority to adolescents ages 12-17, who have symptoms of fibromyalgia.
Please call (801) 359-7400 to initiate a visit.
OFFER's Website
Visit OFFER's website for additional resources to important health information and CFS/FM research studies at: www.offerutah.org under Resources.
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