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 E-NEWS SEPTEMBER 2007 
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NEXT OFFER EDUCATION MEETING
 
September 5, 2007 at 7:00 p.m.
 
 
Kathy Seegers, APRN, NP
 
 
"Treating the Whole Person" 
 
Ms. Seegers is a nurse practitioner who provides medical and psychiatric care for patients with chronic illnesses at LifeTree Pain Clinic.  Her special interest in behavioral medicine lends itself to working with chronic pain patients, as she incorporates stress resiliency interventions and supportive counseling into daily practice.  Ms. Seegers obtained her Master of Science degree in nursing from the University of Utah.  She is board certified in Psychiatric/Mental Health Nursing and as a Family Nurse Practitioner.  Her professional career has spanned hospice home care, university research, inpatient and outpatient psychiatric and addiction care, acute medical nursing, and chronic pain outpatient treatment.  Prior to joining Lifetree, Ms. Seegers worked in collaborative practice with N. Lee Smith, M.D. at the Center for Interdisciplinary Medicine.  Other professional activities have included educational presentations and written articles for community service groups and health care professionals.  Topics have included Fibromyalgia and sleep problems, stress management, and adjustment to chronic illness.     
 
Location: 
Council Chambers, Salt Lake County Complex North Building
2001 South State Street, Salt Lake City, UT. 
(Park free at the northeast corner of the complex) 
 
OFFER's Education Meetings are the first Wednesday of each month at 7:00 p.m.,
and are free and open to everyone. 
 

 
 
 
 
OFFER WEBSITE PROVIDES WINDOW TO VALCYTE JOURNAL
 
If you read reviews of the February 2007 IACFS Conference or have heard the buzz about a promising new treatment for certain subsets of CFS here is an excellent Blog by one of Dr. Lucinda Bateman's patients currently taking Valcyte.  She has graciously given us permission to add a link to her blog site which is filled with useful information and great links.  Click here
 

 
OFFER MAY CONFERENCES DVD'S ARE COMING
 

 

 

 

The content of our May 2007 Provider Conference and Patient Conference is in the process of being put on DVD’s that will be made available through our website, www.offerutah.org, and at our OFFER EDUCATION MEETINGS.  Although the Provider Conference information is very technical, it does present some of the latest treatment methods and clinical trials that have been pursued.  The presentations are wide-ranging and cover landmark work in Fibromyalgia and Chronic Fatigue Syndrome.  Our Provider Conference presented an exciting picture of the strides in understanding that have been made since our 2005 conference.  This should be a time of hope for those who have suffered from CFS and FMS.  These materials will start to be available within the next couple of months.
 

 
 
"When you get into a tight place and everything goes against you, till it seems as though you could not hold on a minute longer, never give up then, for that is just the place and time that the tide will turn."  
Author: Harriet Beecher Stowe
 

 
IN THE NEWS LINKS
  
 
Chronic Fatigue Syndrome HHV-6-Possible Cure?
Physicians Encouraged by Valcyte
 

 
'Chronic Fatigue Syndrome' Name Challenged
 
 
See Healthy™ Utah article on Chronic Fatigue Syndrome
by Kim McCleary
 
 
New CFS Prevalence Study is Published
by the CFIDS Association of America
Go to: http://www.cfids.org/advocacy/2007/gac_061207.asp and follow the link to the full text.
 
 
 
IF YOU MISSED THE MAY 1ST RADIO INTERVIEW OF DR. LUCINDA BATEMAN AND PATIENT, KATHY JENSEN:
 
On Tuesday, May 1, 2007, CFS & Fibromyalgia expert Dr. Lucinda Bateman and Kathy Jensen, a nurse who has had CFS since 1988 were interviewed on KNRS 570-AM radio by Abby Bonell. The "Newsmakers at Nine" program discussed Chronic Fatigue Syndrome and the patient and provider conferences that took place that weekend in Sandy, Utah.

If you missed the broadcast you can listen to it or download it from the station's website archive at http://www.knrs.com/pages/abby.html.  From there just click on ‘Abby’s Podcasts’ and go down to May 1st and either listen to or download the broadcast.  Please share this interview with others who might have missed it.
 
 
VIEW JANUARY IACFS CONFERENCE SUMMARY
By Anthony Komaroff, M.D.
Professor of Medicine, Harvard Medical School 
This excellent 15 minute summary of this landmark conference is best viewed by using Internet Explorer.  This presentation is technical and is for the medical providers and researchers in the field, but because it is a brief summary, is relatively easy to follow.  It will give the lay person an idea of the excitement in the CFS and FMS research community.  The link is http://www.instatapes.com/IACFS/06/player.HTM#.  
 
 
 
 

 
INFO-LINKS
 
A New Study for Fibromyalgia Patients 
Dr. Lucinda Bateman is actively seeking Fibromyalgia patients, ages 18-70, to participate in clinical research studies of three investigational drugs for the treatment of Fibromyalgia.  If you are interested, call Dr. Bateman’s office (801-359-7400) and talk to Ali Allen, RN, research coordinator, or others on the research team, to learn more about the drug studies currently underway.  Qualified participants receive study-related physician visits, lab evaluations, and the investigational medication at no cost.

 
Check out this Website for Men with Fibromyalgia
 
OFFEHere's a great site for Men with Fibromyalgia.  Spouses or SO's of Men with Fibromyalgia are also welcome.  Very interesting.  Click here
 
OFFERUTAH.ORG Announces New Bulletin Board!
 
OFFER is excited to announce the launch of our new bulletin board.  This bulletin board is open to anyone and will provide a forum for those who want to share their journey with others who are living with CFS and/or FMS.  If you would like to join the forum, just go to OFFER's website,  http://www.offerutah.org/ and click on the 'Bulletin Board' button in the side menu.  jJust follow the instructions to register.  If you have questions, click on 'FAQ' or email the administrator.
 
 
Offer's Website
Visit OFFER's web site for additional resources to important health information and CFS/FM research studies at: http://www.offerutah.org/Resources.html.
 
 
 

 

 
"We must not allow other people's limited perceptions to define us."
Author:  Virginia Satir

 
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  Please Note: the inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your medical care provider before using any medication or therapy.

 

 
Copyright 2007



 
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