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CFS and FMS News
OFFER Conference on
September 13, 2008
click for more information
Here is a great article written
by Dr. Bateman in the CFIDS Chronicle
click
here
There is a new Fibromyalgia
Treatment Program sponsored by the U of U Dept of Anesthesiology
Click to learn more.
New DVD Video on
Fibromyalgia
You can view it on-line
click here to see it
Event on January 11th
Live Chat Q&A with Nancy Klimas,
M.D.
January 11, 2008 from 3 to 4 PM,
Pacific Standard Time (4 to 5 PM MST)
click the link below for
information or to participate
http://www.immunesupport.com/library/showarticle.cfm?id=8609&T=CFIDS_FM&B1=EM010208C
Important Announcement naming
Suzanne Vernon, Ph.D., Scientific Director for CFIDS.org
http://www.cfids.org/cfidslink/2007/110702.pdf
Here's a great
article from Dr. Charles W. Lapp if you have FMS/CFS and have
surgery scheduled.
http://www.immunesupport.com/library/showarticle.cfm?id=8592&T=CFIDS_FM&B1=EM010208C
Here is a video
link to a lecture given by Dr. A. Martin Lerner. He has
done much to pioneer
his approach to CFS and he explains his history with antiviral
therapy for
CFS and the various markers and other insights that he has
explored. He
made this presentation on August 22, 2007
http://www.cfsviraltreatment.com/video/medium.html
Chronic Fatigue and Fibromyalgia
Support Group
Click here for more information
Questions And Answers from the
live chat with Dr. Lucinda Bateman on Sept. 14, 2007
Click here
Important
News from our most recent E-News and other sources
Check out our new Bulletin Board.
You can access it from the Home Page.
Start a discussion or just chime in on a discussion someone else
started. Give it a try!
Here's a great reason to eat
dark chocolate!
(As if we needed one.)
Click
here.
Here's a wonderful booklet - written
by a young lady in our own community!!!
It contains great ideas for
youth, (and adults) who have to deal with CFS and FMS.
Take a look
Here is
some great information on Invisible Chronic Illnesses like CFS
and FMS
Click here
to see the site.
This is a
great Invisible Illness Awareness Video
click here
Here's a
great new article in Healthy Utah. Take a look.
Click here.
Here is a Blog by one of Dr. Bateman's patients currently taking
Valcyte. She has graciously given us permission to add a
link to her blog site.
Click here
Men with Fibro
Here's a great site for Men with Fibromyalgia. Spouses or SO's of Men with Fibromyalgia are also
welcome. Very Helpful and informative.
Click here
Alert!
If you have signed up for the
OFFER E-News,
but you are not receiving it, you may need to enter the
address in your spam filter software. If you are still
not receiving it, please email us at:
support@offerutah.org.
A New Medication Study for Fibromyalgia Patients
Dr. Lucinda Bateman is actively seeking fibromyalgia
patients, age 18-70,
to participate in clinical research studies of three
investigational drugs
for the treatment of fibromyalgia. If you are
interested, call Dr.
Bateman's office (801 359-7400) and talk to Ali Allen, RN,
research
coordinator, or others on the research team, to learn more
about the drug
studies currently underway. Qualified participants receive
study-related
physician visits, lab evaluations and the investigational
medication at no
cost.
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Media
Watch: Radio
Interview
with Dr.
Bateman
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On Tuesday,
May 1, 2007,
CFS &
fibromyalgia
expert Dr.
Lucinda
Bateman and
Kathy
Jensen, a
nurse who
has had CFS
since 1988
were
interviewed on
KNRS 570-AM
radio by
Abby Bonell.
The
"Newsmakers
at Nine"
program
discussed
chronic
fatigue
syndrome and
the patient
and provider
conferences
that took
place that
weekend in
Sandy, Utah.
If you
missed the
broadcast
you can
listen to it
or download
it from the
station's
website
archive at
http://www.knrs.com/pages/abby.html.
From there
just click
on ‘Abby’s
Podcasts’
and go down
to May 1st
and either
listen to or
download the
broadcast.
For more
information
about the
Organization
for Fatigue
and
Fibromyalgia
Education &
Research
conferences,
please visit
http://www.offerutah.org/Conference.html.
Please help
us share
this
information
with other
listeners in
the Salt
Lake City
area.
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Urgent Call For Volunteers!
OFFER
is in need of volunteers who would like to help in one or
more of the
following areas:
-
Education
Meeting, sales, attendance, running microphone, operating
camera
-
Data entry, office/clerical /phones
-
DVD
production and editing
-
Distribution of Brochures and
DVD's
-
Website content review and
writing
-
Public service announcements
and publicity
-
Writing reviews of monthly
education meetings
Shopping,
cleaning, driving, cooking, etc., for homebound individuals
If you have an
interest in doing any of these, please call OFFER at
328-8080 or
send an email to
offerregistration@yahoo.com.
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