E-NEWS from OFFER & AF
Cough Suppressant May Ease Fibromyalgia Pain
Scientists 'unlock ME genetics'
Help in Managing Symptoms:
Sleep: Your body's means of rejuvenation
Time Management for Those with Disabling Conditions
Chill Out! 23 anti-meltdown tips from top stress experts
We Need your help:
Education Meeting
OFFER Office
Your recommendation for our Health Care Referral List
Other Community Programs:
Youth Support Group
Orem Support Group
West Jordan Support Group
For more information: offerutah.org
Tell your friends!
The inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your physician before using any medication or therapy.
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CFS/FM EDUCATION MEETING
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
Wednesday, July 6 2005, 7:00 PM
Speaker: Jolene Shields
Topic: "Hypnosis for Pain Relief and Wellness"
Bring a guest and attend this month's free education meeting.
ARTHRITIS FOUNDATION:
FIBROMYALGIA AND ARTHRITIS SELF-MANAGEMENT CLASSES:
The Arthritis Management Program can help you learn to manage your arthritis on a day-to-day basis. Trained volunteers, many of whom have arthritis or fibromyalgia, lead the courses. The program allows you to share experiences with others, offering you the opportunity to both help and learn from others.
Salt Lake City: June 22 - July 27
Twin Falls: Sept. 15 – Oct. 20
Murray: October 4 - Nov. 8
For more information check out their website at:
http://www.arthritis.org/Communities/Chapters/LocalNews.asp?idchap=62
FIBROMYALGIA RESEARCH
The Fibromyalgia Research team, within the University of Utah is seeking participants for a study involving comprehensive rehabilitative treatment for FMS. Eligible participants must:
· have been diagnosed with Fibromyalgia,
· be between 21 and 65 years of age,
· not exercise more than 30 minutes per week,
· not have heart disease,
· not be pregnant or planning to become pregnant within the next year,
· not be planning any surgery within the next year.
The study includes comprehensive medical, physical therapy, and pain psychology evaluations. Participants will be asked to do home assessments monitoring their FMS symptoms for 7 days.
Treatment includes active physical therapy, physical education and counseling. All treatments will be group format of 2 hours per session for ten consecutive weeks. Evaluations and treatments are provided at no cost to eligible participants.
Interested people may contact us by phone at (801) 585-7697
E-Mail: pain.research@hsc.utah.edu
or visit our website at http://www.painresearch.utah.edu/fibro.htm for more information.
CFS/FM RESEARCH DATABASE:
Want to participate in CFS and/or FM research? Then contact OFFER at offerregistration@yahoo.com
IN THE NEWS:
Research: The Effectiveness of Behavioral Therapy to Improve Sleep for Fibromyalgia and Sleep Apnea Patients
http://www.immunesupport.com/library/print.cfm?ID=6517
Gulf War Illness: 10 Years Later
http://my.webmd.com/content/Article/107/108377.htm
Chronic Fatigue Syndrome: From Skepticism to Science
http://www.immunesupport.com/library/bulletinarticle.cfm?ID=6483
Cough Suppressant May Ease Fibromyalgia Pain
http://www.nlm.nih.gov/medlineplus/news/fullstory_25030.html
Scientists 'unlock ME genetics'
http://news.bbc.co.uk/1/hi/health/4580051.stm
http://www.meresearch.org.uk/research/sponsored/genesig.html
HELP IN MANAGING SYMPTOMS:
Sleep: Your body's means of rejuvenation
http://www.mayoclinic.com/invoke.cfm?id=SL00002
Time Management for Those with Disabling Conditions
http://clk.about.com/?zi=18/17a&sdn=health_chronicfatigue&tm=215&gps=50_55_661_403&f=21&tt=2&zu=http%3A//chronicfatigue.about.com/od/copingskills/a/timemanagement_p.htm
Chill Out! 23 anti-meltdown tips from top stress experts
http://www.prevention.com/article/0,5778,s1-1-65-209-5289-1---,00.html
VOLUNTEER'S ARE NEEDED
Education Meetings: Volunteers are needed for our monthly education meetings. We need people willing to call and remind people of the meeting, to help with registration, be greaters, and sell OFFER's products. If you are interested in volunteering, please email Carol at carnzen@offerutah.org
OFFER Office: Volunteers are needed for the OFFER office. If you would like to volunteer, please email Carol at carnzen@offerutah.org
PHYSICIAN REFERRALS:
We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM. If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.
OTHER COMMUNITY CFS/FM PROGRAMS:
PLEASE NOTE:
As a service to our community, OFFER is listing below other Utah organizations and individuals that provide support to people with fibromyalgia and chronic fatigue syndrome. OFFER does not sponsor, recommend, or endorse any of these services. OFFER encourages you to ask questions as to qualifications and experience before making your decision to participate.
FM & CFS YOUTH SUPPORT GROUP IN SLC
Facilitators Linnea Noyes PhD, Deb Keye-Shea PAC, and Ali Allen are currently seeking high school and college age students who would like to get together once a month to discuss the challenges of living with chronic fatigue syndrome and fibromyalgia. An upbeat atmosphere and focus on social support, rather than therapy, is the overall goal. If you are interested, please call Linnea at 531-7464 or email Ali at fcclinic@xmission.com
OREM SUPPORT GROUP: For more information contact Judy Monson at 801-225-5887
WEST JORDAN SUPPORT GROUP: For more information contact Jan Jimmo at 801-955-3366.
FIBROMYALGIA AQUATIC CLASS at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM. Call 314-4046 for more information.
FOR MORE INFORMATION ABOUT OFFER:
Visit our website: http://www.offerutah.org/
Check out our "Resource" section for links to many informative websites.
TELL YOUR FRIENDS:
Feel free to forward this email to anyone you think might be interested. If you received this newsletter from a friend and would like to receive it monthly, send your request to offerregistration@yahoo.com