Youth Support Group

    Orem Support Group

    West Jordan Support Group

The inclusion of information in this newsletter does not constitute or imply endorsement by OFFER or the Arthritis Foundation Utah/Idaho Chapter. Please consult your physician before using any medication or therapy.
_______________________________________________________________
 
CFS/FM EDUCATION MEETING
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
 
Wednesday, June 1,  2005, 7:00 PM
Speaker: Michelle Beal, TRS and Associates
Topic: "Recreation Therapy: Improving Quality of Life"
Bring a guest and attend this month's free education meeting. 
 
ARTHRITIS FOUNDATION:
FIBROMYALGIA AND ARTHRITIS SELF-MANAGEMENT CLASSES:
The Arthritis Management Program can help you learn to manage your arthritis on a day-to-day basis. Trained volunteers, many of whom have arthritis or fibromyalgia, lead the courses. The program allows you to share experiences with others, offering you the opportunity to both help and learn from others.
    Salt Lake City: June 22 - July 27
    Twin Falls: Sept. 15 – Oct. 20
    Murray: October 4 - Nov. 8
For more information check out their website at:
www.arthritis.org/Communities/Chapters/LocalNews.asp?idchap=62

FIBROMYALGIA RESEARCH
The Fibromyalgia Research team, within the University of Utah is seeking participants for a study involving comprehensive rehabilitative treatment for FMS. Eligible participants must:
·    have been diagnosed with Fibromyalgia,
·    be between 21 and 65 years of age,
·    not exercise more than 30 minutes per week,
·    not have heart disease,
·    not be pregnant or planning to become pregnant within the next year,
·    not be planning any surgery within the next year.

The study includes comprehensive  medical, physical therapy, and pain psychology evaluations. Participants will be asked to do home assessments monitoring their FMS symptoms for 7 days.

Treatment includes active physical therapy, physical education and counseling. All treatments will be group format of 2 hours per session for ten consecutive weeks. Evaluations and treatments are provided at no cost to eligible participants.

Interested people may contact us by phone at (801) 585-7697
e-mail pain.research@hsc.utah.edu
or visit our website at http://www.painresearch.utah.edu/fibro.htm for more information.
 
CFS/FM RESEARCH DATABASE:
Want to participate in CFS and/or FM research? Then contact OFFER at offerregistration@yahoo.com with your request and we will send you a short survey permission form.
 
IN THE NEWS:
Treatment Injects Vitamins To Fight Fibromyalgia
http://www.immunesupport.com/library/print.cfm?ID=6442
<http://www.clinicaltrials.gov/ct/show/NCT00067405?order=1>

Study: Treat Depression, Pain Separately
http://aolsvc.health.webmd.aol.com/content/Article/105/107846.htm

Canadian CFS Diagnostic Code
http://glclk.about.com/?zi=8/r0m

Chronic Fatigue Kids' Families Distressed
http://aolsvc.health.webmd.aol.com/content/Article/100/105666.htm

Conference sheds light on Fibromyalgia  
http://www2.tooeletranscript.com//index2.php?option=content&task=view&id=2555&pop=1&page=0

HELP IN MANAGING SYMPTOMS:
The Fight Against Pain: Complete Coverage List
http://abcnews.go.com/Health/story?id=724684

Food allergy
http://www.mayoclinic.com/invoke.cfm?id=DS00082

Depression self-assessment

http://www.mayoclinic.com/invoke.cfm?objectid=3323EE4A-4AD6-4408-B82B7DDEB1D2FEB6&si=2804

VOLUNTEER'S ARE NEEDED:
Volunteers are needed for the OFFER office. If you would like to volunteer, please email Carol at offerregistration@yahoo.com

PHYSICIAN REFERRALS:
We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM.  If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.
 
OTHER COMMUNITY CFS/FM PROGRAMS:

PLEASE NOTE:
As a service to our community, OFFER is listing below other Utah organizations and individuals that provide support to people with fibromyalgia and chronic fatigue syndrome. OFFER does not sponsor, recommend, or endorse any of these services.  OFFER encourages you to ask questions as to qualifications and experience before making your decision to participate.

FM & CFS YOUTH SUPPORT GROUP IN SLC 
Facilitators Linnea Noyes PhD, Deb Keye-Shea PAC, and Ali Allen are currently seeking high school and college age students who would like to get together once a month to discuss the challenges of living with chronic fatigue syndrome and fibromyalgia.  An upbeat atmosphere and focus on social support, rather than therapy, is the overall goal. If you are interested, please call Linnea at 531-7464 or email Ali at http://mail.yahoo.com/config/login?/ym/Compose?To=fcclinic@xmission.com

WEST JORDAN SUPPORT GROUP:
Meets June 1st, 2:00 PM at the Golden Corral Restaurant at 8860 S. Redwood Rd. West Jordan. For more information contact Jan Jimmo at 801-955-3366.
 
FIBROMYALGIA AQUATIC CLASS at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM.  Call 314-4046 for more information.
 
FOR MORE INFORMATION ABOUT OFFER:
Visit our website: http://www.offerutah.org/
Check out our "Resource" section for links to many informative websites.
 
TELL YOUR FRIENDS:
Feel free to forward this email to anyone you think might be interested.  If you received this newsletter from a friend and would like to receive it monthly, send your request to offerregistration@yahoo.com