E-NEWS from OFFER
Organization for Fatigue & Fibromyalgia Education & Research

---------------------------------------------------------------------------------------------------------

Partnering with the Utah/Idaho Chapter of the Arthritis Foundation


    OFFER's website: www.offerutah.org

    AF's website: www.arthritis.org

   
In this Issue:
    CFS/FM Education Meeting - October 6, 2004
    Fall 2004 Classes from the Arthritis Foundation
    Update: Community Meeting for Dr. Robinson's patients
    FM Connect Article: Primal Reflex Release Technique
Research: 

    CFS/FM Research Database
    FM Research Study Update: Need volunteers

In the News:
    Arthritis Drug Vioxx Pulled Off Market
    Galantamine, Potential Chronic Fatigue Syndrome Drug Fails
    Skin Offers Clues to Chronic Fatigue Syndrome
    Duloxetine Effective in Fibromyalgia
    Bacteria May Be the Cause of Irritable Bowel Syndrome
Help in Managing Symptoms:
    Fibro Fit Tips
    Quality of Life Scale-Where do you fit?
    Working Effectively With Your Medical Team
    The Lies We Tell Our Doctors:     
How can you help?
     Your recommendation for our Health Care Referral List
     Volunteer with OFFER
Other Community CFS/FM Programs 

For more information: offerutah.org
Tell your friends!
_______________________________________________________________
 
CFS/FM EDUCATION MEETING
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
 
Wednesday, October 6, 2004, 7:00 PM
Speaker: Richard Glade, LCSW
Topic: "Biofeedback and FM/CFS"
Bring a guest and attend this month's free education meeting. 

 

ARTHRITIS FOUNDATION:

Fibromyalgia & Arthritis Self-Management Course
This six-week class includes the textbook "Good Living with Fibromyalgia." Sign up online or call to register at 801-536-0990 or 800-444-4993.

www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62

 

Murray Class:

Hand & Orthopedic Rehab, 5151 South 900 East, Murray, UT  84117 
Oct. 6-Nov. 10, 2004, Wednesdays, 8:00 PM
Tuition: $50, includes text; Pre-registration Required.

 

Self-Management Program for Young Adults:
Salt Lake City Main Library, 210 East 400 South, Salt Lake City, UT  84111
Oct. 6-Nov. 10, 2004, Wednesdays, 8:00 PM
Tuition: $30, includes text; Pre-registration Required.

 

COMMUNITY MEETING FOR DR. ROBINSON'S PATIENTS:
The community meeting held September 30, at 6:00 PM was standing room only, with over 150 people in attendance. Tears were shed during a moment of silence that was shared by all that attended, in memory of Dr. Deborah Robinson, one of Utah's few CFS/FM specialist that passed away September 17. Drs. Lucinda Bateman and Stuart Drescher discussed coping with the loss and shared ideas on what to do now. If you were a patient of Dr. Robinson and were unable to attend the meeting and need support call OFFER at 328-8080.

 

FM CONNECT ARTICLE:
Primal Reflex Release Technique as a Treatment Option for Fibromyalgia
by Dede Lewis, Physical Therapist
www.arthritis.org/Communities/Chapters/LocalNews.asp?idchap=62

 

FIBROMYALGIA RESEARCH STUDIES:
Dr. Bateman is seeking FM patients who are not on daily medications for pain, sleep or mood to participate in research of a new medication.  If you are interested, or know someone who is, please call her office for more information at 359-7400.

 

CFS/FM RESEARCH DATABASE:
Want to participate in CFS and/or FM research? OFFER is creating a list of individuals who have CFS and/or FM that are willing to be contacted about volunteering for research studies. To be added to this list, contact OFFER at offerregistration@yahoo.com

 

IN THE NEWS:
Arthritis Drug Vioxx Pulled Off Market
aolsvc.health.webmd.aol.com/content/Article/94/102995.htm

 

Galantamine, Potential Chronic Fatigue Syndrome Drug Fails
aolsvc.health.webmd.aol.com/content/Article/93/102489.htm

 

Skin Offers Clues to Chronic Fatigue Syndrome
aolsvc.health.webmd.aol.com/content/Article/93/102249.htm

 

Duloxetine Effective in Fibromyalgia
http://yalenewhavenhealth.org/healthnews/healthday/040909HD521116.htm
http://www.rheumatology.org/press/2004/fibro0909.asp?aud=prs
http://www.medscape.com/viewarticle/488994_print

 

Bacteria May Be the Cause of Irritable Bowel Syndrome
http://www.immunesupport.com/library/showarticle.cfm/id/5932

 

HELP IN MANAGING SYMPTOMS:
Fibro Fit Tips:
http://arthritis.org/communities/Chapters/OhioRiverValley/FFT_091004.asp

 

Quality of Life Scale-Where do you fit?
An Acrobat file at http://www.theacpa.org/documents/Quality%20of%20Life%20Scale%20R11.pdf

 

Working Effectively With Your Medical Team
http://www.arthritis.org/Communities/Chapters/LocalNews.asp?idchap=62

 

The Lies We Tell Our Doctors:
http://my.webmd.com/content/Article/94/102763.htm

HOW CAN YOU HELP?

HEALTH CARE REFERRALS:
We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM.  If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.
 
WANT TO VOLUNTEER WITH OFFER?
If you would like to be a part of OFFER's volunteer team, contact Carol Arnzen at offerregistration@yahoo.com

 

OTHER COMMUNITY CFS/FM PROGRAMS:
 
FIBROMYALGIA AQUATIC CLASS

at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM.  Call 314-4046 for more information.

 

ARTHRITIS FOUNDATION PROGRAMS

For more information on programs in Utah, including ongoing water and land exercise classes, see the Utah/Idaho Chapter section of arthritis.org, at
http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62

FOR MORE INFORMATION ABOUT OFFER:
Visit our website:  www.offerutah.org
Check out our "Resource" section for links to many informative websites.
 
TELL YOUR FRIENDS:
Feel free to forward this email to anyone you think might be interested.  If you received this newsletter from a friend and would like to receive it monthly, send your request to offerregistration@yahoo.com