E-NEWS from OFFER
Arthritis Foundation's Quality of Life Programs
Accessible Home Foundation
Lupus Foundation's Mad Hatter's Picnic in the Park
For more information: offerutah.org
Tell your friends!
CFS/FM EDUCATION MEETING:
Salt Lake County Complex,
2001 South State Street, North Building, SLC, UT
Wednesday, September 1, 2004, 7:00 PM
Speaker: Dede Lewis, PT
Topic: "Physical Therapy Interventions for CFS/FM"
Bring a guest and attend this month's free education meeting.
FALL 2004 CLASSES FROM THE ARTHRITIS FOUNDATION:
The story about our successful study has gone global. Check out these news stories from around the United States.
Las Vegas: http://www.kvbc.com/global/story.asp?s=2103459
Philadelphia: http://www.nbc10.com/print/3593357/detail.html
FIBROMYALGIA RESEARCH STUDIES UPDATE:
Oral Growth Hormone: 8 FM patients qualified for the oral growth hormone trial that is being conducted by Dr. Lucinda Bateman and Radiant Research. They are just completing this 12 week study.
New Drug for FM: Dr. Bateman has also been chosen as a principle investigator for a 15 week clinical trial of another drug for FM. FM patients on simple or few medications can call her office at 359-7400 for more information.
ME/CFS AND FM CONSENSUS DOCUMENTS:
http://www.mefmaction.net/Default.aspx
IN THE NEWS:
Test Kit for Anti-Polymer Antibodies (APA) to Be Launched This Year Through
Corgenix Distribution Organization
http://www.prnewswire.com/cgi-bin/stories.pl?ACCT=109&STORY=/www/story/08-19-2004/0002234657&EDATE
Painkiller Vioxx Often Taken at Too High Dose
http://aolsvc.health.webmd.aol.com/content/Article/90/100801.htm
HELP IN MANAGING SYMPTOMS:
Friends and Family: When a Loved One has FM, How can I Help?
http://fmaware.org/patient/family/loved_onehas_FM_FP.htm
Restless Legs Syndrome:
http://www.mayoclinic.com/invoke.cfm?id=DS00191
YOUR RECOMMENDATION FOR OUR HEALTH CARE REFERRAL LIST
We need your help in developing a database of patient recommended self-help contacts and health care professionals that have helped you manage your CFS & FM. If you are a patient and would like to recommend someone to this list, please send us their name, title, address, and phone number.
WANT TO VOLUNTEER WITH OFFER?
Volunteers are needed for the following committees: Advocacy, Conference Planning, Education Meeting, Fundraising and Publicity, Research Development, and Volunteer Committee which includes office help and the call center. Contact Carol Arnzen at: offerregistration@yahoo.com
Arthritis Foundation:
OFFER is proud to work with The Utah/Idaho Chapter of the Arthritis Foundation to provide information and programs for individuals with fibromyalgia and chronic fatigue. Here is a listing of upcoming Fibromyalgia and Arthritis Management Courses. Tuition varies by facility. Fee includes text and resource materials. Sign up with a friend to split the fee at most locations. Class limit of 15. Some scholarships available based on host facility and participant need. Seats are limited. Registration deadline is one week before start date. Sign up online or call now to register! 801-536-0990/800-444-4993/ http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62">
BOUNTIFUL, Utah, Golden Years Center, 726 South 100 East
Sept. 13 - Oct. 18, Mondays, 12:30 - 2:30 PM
Tuition: $30, includes text
EAST SALT LAKE, Utah, Wasatch Wellness Clinic, 644 South 900 East, SLC 84102
Sept. 27 - Nov. 1, Mondays, 6:00 - 8:00 PM
Tuition: $30, includes text
SANDY, Utah, Butler Middle School, 2700 E. 7300 S., Sandy 84094
Sept 22 - Oct. 27; Wednesdays, 6:00 - 8:00 PM
Facility fee: $20 Pay to Community Education, Materials/text fee: $30 pay to Arthritis Foundation
RIVERTON, Utah, Oquirrh Hills Middle School, 12949 South 2700 West 84065
Sept. 23 - Oct. 28; Thursdays, 6:00 - 8:00 PM
Facility fee: $20 Pay to Community Education,
Materials/text fee: $30 pay to Arthritis Foundation
PRICE, Utah, Therapy Works, 53 South 700 East 84501
Sept. 14 - Oct 19; Tuesdays, 6:00 - 8:00 PM
Tuition: $30, includes text; Pre-registration Required.
FM CONNECT is a free online resource for local information about fibromyalgia. It features articles by Utah and Idaho health care practitioners, researchers, and other fibromyalgia experts. There's also a calendar of events, including exercise and self-help programs. Check out FM CONNECT at the address below: http://www.arthritis.org/Communities/Chapters/Chapter.asp?chapid=62#FMS
FIBROMYALGIA AQUATIC CLASS at T.O.S.H. (5848 S. Fashion Blvd. in Murray.)
Warm-water exercise class meets every Mon./Wed./Fri. from 5-6 PM. Call 314-4046 for more information.
Accessible Home Foundation
Need help in finding accessible housing? Check out this website:
http://www.accesshomes.org
Lupus Foundation's Mad Hatter's Picnic in the Park:
FOR MORE INFORMATION ABOUT OFFER: